This week I started a new journey and it evolves around a nasal spray that is supposed to “save my life”.
Spravato a medication approved for adult who suffer from treatment resistant depression and it’s administered in the form of a nasal spray.
I have now completed the ENTIRE list of medications approved to treat anxiety and depression, along with trying mood stabilizers as well.
The trail by fire began at age 16 and has continued into my 30’s now. So much of that time has been spent trying to cope with side effects and negative reactions. I’ve forgotten what its like to not be hit with waves of nausea, breakout in cold sweats and for my hands to be steady.
When Spravato was suggested to me, I was so happy to hear that someone had actually tried to create a medication for “people like me”. I didn’t have high hopes that I would feel amazing after my first treatment(but hey a girl can dream right?), but this was my very last resort, I had to hold onto some hope.
Tuesday morning I signed myself in, walked to my room, spoke with the nurses, tilted my head back at a 45 degree angle and sprayed 1 puff in each nostril, waited 5 minutes and then repeated. The nurses turned off all the lights and closed the window shades(which I can not be more thankful for honestly) and told me they’d be back to check on me in a bit.
The first onset my vision got wavey(literally what it felt like, I was looking at everything while on board a swaying boat), then my body started feeling really heavy and I felt very aware of like every organ and ounce of blood in my body(its hard to explain), then I couldn’t tell what was actually happening and what was just visions swirling around in my head for a few minutes, then I started to tear up a bit because all I wanted in that moment was for someone to be there holding my hand to be an anchor if will, keeping me grounded. Then more strange colors wave in and out of my mind and then it all starts to ease up. By the 30 minute mark the worse seem to be over. By the 2 hour mark(when I was allowed to leave) I felt mostly “okay”. I walked out, got on the elevator and met my husband down stairs who was driving me home, all while thinking I don’t know how I feel. I wasn’t happy or sad, sleepy nor wide awake. That feeling lasted about an hour or so then the overwhelming sadness came flooding in.
I felt like such a burden looking at the paper with all over following appointments for the rest of the month.
There really isn’t any way to “fix” me. I’m broken beyond repair.
I am a heavy paperweight on top my families exciting life story that no one gets to read yet.
I went for my second infusion this morning and the “trip” felt even worse and lasted a bit longer this time. But once that passed I went right back to feeling like myself again(I’m not sure whether that’s a good thing or not though).
There are a million thoughts circling in my mind and it’s hard to grab on them just one, but overall the probably the best way to descried how I feel is just sad.