Tag Archive | motivation

I don’t wanna go on with you like that šŸ’›

No one is going to dull my sparkle! Still shining āœØļø šŸ’›

But I don’t wana go on with you like that
It gets so hard sometimes to understand
This vicious circle’s getting out of hand
Don’t need an extra eye to see
That the fire spreads faster in a breeze šŸ–¤

I Don’t Wanna Go On With You Like That- Elton John šŸ–¤

This is the version of this post that I’ll probably share on Facebook. I have a much longer version for this blog. But, for now, I will share this shorter version (still super long).

I shared this on here before, but I later removed the post out of concern that certain people may see it. I think the post is called ā€œI don’t wanna go on with you like that.ā€ Elton John! It’s back in my drafts, and I considered publishing it again. But, I’ll share this instead and name it after the original. Lol

When I posted it last year, I was in a darker place. I had no idea what to do. This year, I’m in a much better and productive headspace. Back then, I was depressed.

Also, there was something slightly identifying in some of my screenshots. Someone would have to do some serious sleuthing to do anything with it, but still. Lol

I don’t want anyone to be able to contact my ā€œfamilyā€ who this is about.



I have been carrying something heavy that no one knows.

Multiple occasions, I tried to share this and just couldn’t bring myself. But I can’t keep it inside anymore.

I finally asked for help and feel a weight has been lifted off of my whole body. I did not even realize how heavy it was until it lifted.

I am so happy and light, it’s just amazing. I knew to an extent how much suffering alone was affecting me, but not just how much until I finally reached out for help.

I haven’t even received help yet and already feel a sense of being empowered, just at the prospect. And I did have the opportunity to share my experience with a professional person before I visit in person.

My appointment is later this month.

There was a point, just a year ago, where I felt this situation was not compatible with life. And, if you read this, you’ll understand why.

I want my side out there. I want my voice heard.

I feared that if I shared this, people may see it as a reflection of me, like if someone is doing this to me there must be a reason for it. Like maybe I deserve it. Because who would do this to someone for literally no reason? It’s not uncommon for people to think if we are the target of abuse or assault, we did something to ā€œdeserveā€ it. But that’s not the case. No one deserves this.

I am being badly abused. Every day. It has been going on for years. There are almost no breaks.

I live with severe domestic violence, and no one knows it but me.

Last year, it reached the point where I can no longer cope. I can’t go it alone anymore. I called the National Domestic abuse hotline last Summer, and it was AI. Not a person. And it wouldn’t help me because I’m not abused by a romantic partner. As if that’s the only abuse that’s valid.

It was extremely disheartening to call for help and not only not be greeted by another human but told by a robot that my experience is not valid. And it told me it would send me a link to resources where I can get help. I clicked the link, and it was a link to their own website with the same number I contacted and was told my experience isn’t valid. What a joke.

I considered calling the suicide hotline, but I feared I would be locked away if they traced my call and tracked my location. I was involuntarily hospitalized years ago for being suicidal. They physically restrained me, took me to Court, and locked me away for weeks against my consent. So, I decided not to call, and continued to suffer alone. Also, my problem wasn’t being suicidal, it was being abused. I wanted help with the origins of the problem, not the side effect of it. I eventually came to handle it better in my mind. But the situation is still toxic.

Life did not used to be like this for me. And I miss when it wasn’t. I miss having a normal life at home. There were always toxic issues. But nothing to this extent.

The worst of it has been going on the last two years. Before that, it was manageable and mostly able to be ignored. I had a happy childhood, full of vacations & camping trips and movies and playgrounds and ice cream and toys. My dad made childhood fun. And my mom took care of me and was, overall, a loving mom (unless she was angry). This is something that escalated through the years.

My mom & sister are violent domestic abusers.

They should be on a list.

I don’t wish negative things on them, but my sister plans to get married in the future and have kids. And every good man (and even potential platonic friends) should be warned. She’s out there.

And she accuses pretty much everyone of rape, even admitted it wasn’t true in some cases. I am sorry for whatever poor bastard gets involved with her. Have fun being falsely accused of rape. Lol

She lied and told my mom she caught me watching rape movies and getting off on it in my bedroom. My mom called me a ā€œsick fuck.ā€ She also posted this on Facebook, said I was getting off on women screaming ā€œStopā€ and ā€œNo.ā€

One day, she was awake in her bedroom. I heard her. I was in my bed, watching Pippi Longstocking. And my sister ran down the steps, screaming to my mom that I woke her up blasting a rape movie and traumatized her. My mom was furious and cursing at me.

I realized that after my dad moved out a couple years ago, what he was displaying all these years was mostly reactive abuse. It was a response to my mom’s years long verbal absue of him. He became a monster (mostly to my mom), and I thought it was all him. I forgot through the years what she did to him first, because his reaction to her became so extreme that it overshadowed what she was doing all along, to both of us.

I never knew reactive abuse is a thing until he moved out and I saw what she began doing worse to me, and I began to have the same reactions as he did, after a while, except in my case, they aren’t anywhere near as toxic. When I say something to her about her being wrong, she says “That’s what he always said, you’re just like him, you’re both narcissistic assholes!” Or something of that sort. It hit me that that’s why he was reacting that way all along. Then, coincidentally, not long later, I saw a post about reactive abuse on social media. I get it now. He eventually put her in her place and kept her there. It was the only way to stop her. Then, he looked like the monster.

When he moved out years ago, for five years, she was way worse with me then, too, and I always wondered why for those five years, she was worse with me, instead of happy to be rid of him. Now, I understand, the source of it all was her, and when he moved out, I became the target. Everything he said through the years is now happening worse to me. It always did, just worse now.



He is a toxic person, and much of what he did wasn’t justified. But as soon as he moved out two years ago, she moved right onto me, and I find myself having all the same thoughts he used to say “She comes at me and at me and at me,”

“She twists my words around to make me look bad and then argues with me,” “I’m like a lion in a cage, she just pokes me and pokes me and pokes me until I react and then I’m the bad guy,” “She constantly criticizes me for no reason.” “She constantly makes me do all her shopping.” “She has anger issues.” “She always has negative body language/tone with me for no reason.” “She’s always laughing at me.” (She always accused him of trying to control her movements and expressions and tones, and I thought he was being seriously abusive to her, but since he moved out, and she got worse with me, I see now. He was doing that because she was constantly hostile with him, just like with me. I do the same thing now. I’ll say one simple thing that is valid or reasonable, and she’ll roll her eyes or look at me like I’m disgusting. This takes a toll after a while to where you just get angry about how they’re looking at you and how the animosity seeps through their body language. )

This has been going on much longer than two years, my mom was toxic her whole life, but the worst of it was in the last couple of years. And in these last years, I began to see the whole picture more clearly.

My mom is full of rage & hate. For life itself. And it’s all unleashed onto me because I’m an easy target. The rage radiates off of her. It’s palpable. She screams and yells and curses and stomps around the house day & night, day after day, ranting & raving & raging. She throws things, crumples things up in her hands out of anger, stomps her feet, throws stuff to the floor and stomps it, making these primitive gutteral sounds of fury.

My mom cannot handle anything that is not even remotely criticism. She does Olympic medal level mental gymnastics to reach the conclusion that something is criticism against her. And then she goes off about it. And any mistake she makes is someone else’s fault, usually mine. She forgets where she set her glasses down, and it’s my fault for talking and not paying attention to where she set them. She drops a bag a cashier is handing her, after it’s already in her hand, and it’s the cashier’s fault. One day, that happened, and glass in the bag broke.

She said it was the cashier’s fault for how she handed the bag to my mom (she literally just reached out for her to take it). Then, when we got home and I was upstairs, I heard my mom downstairs telling my sister that the cashier dropped the bag and broke the glass thing my mom bought. She can take no responsibility.

Oh. And she’s a racist, too šŸ™ƒ


She calls black people N***ers. (I have multiple screenshots), but only to my sister and me. No one else knows she’s a racist. She says women, even married women, who don’t want to become pregnant should “keep their legs closed, the filthy w.hores.”

The blue is my message to my mom. The grey is my mom’s message to me. The word is highlighted because I looked through old messages to find this. She’s been a racist her whole life. I used to call her out on it, but I stopped giving her the satisfaction, and just ignore it now. She liked getting a rise out of me. This message alone should be enough to confirm that my mom is as vile as I say she is. Her and my sister claim that I lie about her, that she’s such a great person and such a great mom. Welp! I’ll just leave this gem right here and let you decide for yourself lol There’s more like this, and ones of her saying women should keep their legs closed if they don’t want to get pregnant. She also called me a d*ke more than once and has referred to a few gay women that way, again, not to their faces, of course. So, yeah.


If you saw her outside, you would never know it. She’s softspoken and sweet and mild mannered-seeming. She says thank you and giggles this fake, sweet, innocent giggle and has people thinking she’s the sweetest little lady.  (She has become so angry, though, that she’s beginning to show it to others, like cashiers she gets angry at).

But within the walls of our house, she’s violent, oppressive, cruel. She screams at the dogs, says the most vicious insults about me. Says our little dog should be put down when she’s mad at him for snapping at our other dog (she’s only saying that out of anger, she wouldn’t really). She is the most vile, putrid woman you could ever meet. Not to quote Donald Trump, but “Nasty woman.” Lol

One of my cousins stopped talking to my mom because my mom lashed out at her with an abusive text message when my cousin did not talk to her that way. My mom is abusive when angry.

None of this is new, it’s just so much more extreme now, that she’s almost unrecognizable compared to what she used to be.

On my 40th b-day, my mom told me that “40 doesn’t suit you” and called me a miserable bitch as soon as I woke up. I actually wasn’t, I woke up happy and got to see my friend for breakfast. I got a free Starbucks coffee. I went for a walk in the breezy weather. I laid in bed with my dogs. But I was a “miserable bitch” and a “horrible bitch.”

She argued with me over money as soon as I woke up and argued with me about doing all her shopping. Her and my sister refused to work their whole life and depended on my dad’s and my pay to support them and then argue that I don’t bring home enough money. They do almost no house work and won’t do their own food shopping or run any of their own errands. And when I say I’m tired of it, and they have to start doing something, I’m a “horrible bitch” and an “abuser.”

My mom always tries to ruin special days and events for me. I thought it was my dad all these years. But I see after he moved out, it still happens and worse. And I remember now what she always did before he got worse.

She tried to ruin my 40th b-day. She yelled and cursed at me and slung insults. For no reason. She always finds some excuse. But I decided not to give her the power anymore. And now, I’ll have someone helping me.

I asked her to take a picture of me in my 40th b-day sash that I bought myself. It’s hard to get a full body picture, myself. And she was passive-aggressive about it. What “mother” acts like this? She seriously couldn’t take a simple picture for me, for a special occasion?

Many moms would go all out for their daughter’s special day, and would be more than happy to do something to bring them simple joy. She did absolutely nothing for me, just argued with me the second I woke up, said passive-aggressive remarks, and mumbled “happy birthday,” as if she could hardly even pretend to care.

When it’s my sister’s birthday, she’s pampered with expensive flowers, a “birthday girl” ribbon, a balloon, whatever expensive cake she wants, a bunch of gifts, stuffed animals, money, whatever she wants to order online…. Whenever it’s mine, I’m told to get my own cake or whatever they feel like throwing at me, and my sister gets me a few gifts, just out of sense of obligation. My mom couldn’t care less.

My sister at least pretends to care with the bare minimum. She did argue with me, too, though. I went out for a walk, and the very second I walked in the door, they both came at me, arguing, my mom almost yelling, calling me insults. My sister did not tell me Happy Birthday and then used the excuse that I started an argument, when it was really her & my mom who did.

They tried to ruin it for me, but I wasn’t going to let them. I had a great day. I couldn’t completely ignore them, but I engaged as little as possible and told myself to consider the source. They are vile, miserable people. And misery loves company. I wasn’t going to be its company.

Not going to keep me down ā¤ļø


One of them (sure it’s my sister) takes and breaks my stuff when I’m out, pours my perfume in my bed. I bought myself a cute Plushie/stuffed animal, months ago, and I came home to find its throat slashed one day. And of course, neither one of them know what happened to it.

They deny that they are abusers, and they claim that I am the abuser. I have screenshots to back up some of what I say. Not the worst of it, but enough evidence. They have NOTHING on me. Just the lies they constantly tell. They use the fact that both of them agree and it’s two against one, to ā€œconfirmā€ I’m the problem.

And what’s funny is, my sister frequently shares memes that say, ā€œI hope your abuser dies today.ā€ šŸ¤£šŸ˜‚

If I could, I would ghost them both so hard, for the rest of this life. But, unfortunately, that’s not an option at the moment.

I found a therapist who is just beginning to get back into work. She put her career on hold to have kids. Now that they’re older, she’s back to work.

She’s going to be leaving the center soon, she’s an intern, completing her degree now.

So I won’t be her longterm client, which is actually good. I don’t feel I need longterm therapy. I can just use a few sessions to learn some coping techniques and get my voice heard.

She’s a mom and specializing in relationships, so I feel that she’ll be a good fit. As a mom herself, she’ll automatically see that what I experience with my own mom, is not normal. She may understand it in a firsthand way almost, because she knows what normal and healthy relationship she has with her own kids, and she has professional experience as well. It would be good if she has basic knowledge of cults/mind control & sociopathic tendencies. Because I believe that’s what’s going on here.

She sent me a form and asked me to explain my situation in-depth.

I’m so thankful for the chance to send it in writing first because I am much better in writing than talking.

So, it will already be on record for her to get much of the whole picture.

It’s kind of long, but I’m going to share here. I’ll copy & paste what I sent my therapist. They wanted as much details as possible, and I am thankful for that because I’m very detail oriented.

Here is exactly what I sent my (temporary) therapist (I censored my sister’s name so that no one can potentially find her and tell her any of this. I would probably be m.ur.dered, and they would probably say it was one of the dolls):

I live with my mom and sister, and they have frequent and unprovoked/easily provoked blowups/outbursts directed at me. They curse at me and argue with me and find problems with me, almost regularly, for the most trivial things or things that aren’t even wrong. It’s constant, unnecessary criticism.

And when I tell them it’s unnecessary, they call me a ā€œnarcissistā€ who can’t handle criticism, even though I say it’s frequent, unnecessary & disproportionate criticism that is the problem, not criticism that really is warranted. Everyone needs criticism, occasionally, but this is constant and unnecessary.

They sling vicious insults at me. I’m called things like a ā€œpiece of shitā€ and a ā€œstupid fuckā€ and ā€œtrash,ā€ and ā€œa freak,ā€ just for accidentally knocking something over or forgetting to do something, or even for things they accuse me of that aren’t true. My mom has called me scum before and other abusive insults just for spilling something, or for things my sister lied about. I never talk this way to them.

Any mistake I make or a perceived mistake by them, they attack my whole character or personality, instead of seeing it as just a mistake anyone can make. Anything I do that they don’t like, even if it’s not wrong or nothing that bad, I’m automatically a terrible person. They call me ā€œshit for a person,ā€ simply for being later than I said I would be for something, and any other petty mistakes.

My mom tells me my hobbies and interests are ridiculous and tells me anything I think or feel is ridiculous. Anything I say about myself, she denies it. If I say I always do something, she tells me I never do. If I say I’m working late, she accuses me of lying and being out just for fun.

If I say I’m good at something, she tells me I’m not. If there’s something I like about myself, she tries to tear it down. If I have an insecurity about something, she tries to fuel it.

She tells me my job is nothing and that it’s a job any lazy person can do and that it’s not even work. She tells me I did nothing with my life, just as an insult. When she tells me I did nothing with my life and I tell her I work, she automatically accuses me of being arrogant and trying to ā€œrub it inā€ that her and my sister don’t have a job. When my point was just to say I do actually do something with my life, because she says I don’t. They take everything I actually say and intentionally misinterpret it or put an absurd spin on it, to make me look ridiculous or wrong.

My mom tells me no one likes me, and when I mention people who like me, she says it’s only because I’m fake and that if I showed them my real self, they wouldn’t like me.

When I say it’s wrong to talk to me this way, my sister & mom call me a narcissist or too touchy or tell me I deserve to be talked to that way. When I say I don’t do any of this toxic stuff to them, that they do to me, my mom says things like ā€œWell good for you, do you want a medal or a cookie?ā€ When my point was that it shouldn’t happen to me. I cannot reason with either of them because I only get mocked or lashed out at or told it never happened. My mom mimics my voice when I tell her what she does is wrong. She’ll say exactly what I say and use a baby voice, to mock me. She’s 64 years old.

They often deny any of it happened. They do things in front of my face, like throw something, then literally a second later, say it never happened and that I’m either a liar or crazy and imagining it. It’s impossible to address anything they do because they just deny it ever happened.

The lying with them is extreme. It’s abnormal lying. It’s lying that has no ā€œrulesā€ anymore. People usually lie only when the other person did not actually see/hear it and can’t know for certain. Even lying has ā€œrulesā€ or a reasonable aspect to it. But their lying is beyond typical lying.

They do and say stuff directly in front of or to me and then claim it never happened. I don’t have this problem anywhere else, with anyone else. I have a job and a volunteer job and a couple friends I meet up with, and no one else tells me I’m crazy and imagining things or lying or mis-remembering.

Most of this happens in person, but sometimes I have screenshots to prove something they tell me I’m crazy or lying about, to show that I’m right and not ā€œcrazy,ā€ and then they call me a ā€œfreakā€ for having screenshots or saving messages. But it’s impossible to work out a problem when someone denies that it ever happened.

There’s like no reference point to work on anything because according to them, it doesn’t exist. Even if they admitted something but defended themselves on it, I can at least try to work with that and come to a solution or something. But when they deny it ever happens, there’s no conversation to take place. And that’s just it, I have to drop it.

They manipulate and control me. They threaten to break or throw away my stuff when I’m at work, and they threaten to throw me out if I don’t do favors for them. They make me go get their food & snacks every single day and run all their errands, and if I have to work late or say I’m going out and can’t do their shopping, they tell me I’m ā€œwithholdingā€ and ā€œstarvingā€ them, even though they are able-bodied, mentally competent adults, who have full access to my bank account & venmo account. I don’t drive, and they make me carry so much stuff home in bags for them, almost every day.

They make me bring bottles of soda and food and anything else they want. When I say it’s injuring my back and neck, they call me a liar and selfish and say I just don’t want to help them. We live very close to the stores, but they won’t leave the house to get their own stuff. Some mornings, my mom makes me go to a store for her and then more stores for her and my sister later in the evening. If I don’t, I have consequences.

If I refuse to do excessive things they ask me, I get insults and cursed at, or find my perfume poured into my bed or my stuff broken or missing, or my phone chargers cut. They both deny it was them and tell me I’m just losing my mind or that a ghost must have done it.

Or they tell me that maybe one of their dolls took it or broke it because I made the doll angry (They’re doll collectors, and they believe the dolls are haunted & conscious). No one else is in our house. I’m certain it’s my sister doing this.

Every single thing I tell them is toxic about them, they say it’s really true about me. I generally have to stay silent to avoid worse problems with them. But they always find an excuse for an argument or blowup, and it’s always them together against me.

My mom intentionally tries to provoke me to get a reaction, and when she finally gets a reaction, she calls me a narcissist who is harassing her, or calls me crazy. She starts arguments with me as I’m walking out the door or before important events. I used to think it was a coincidence, that something always happened to fall into her lap right then, then I realized it’s intentional, so that I have to walk out shaken up and wondering if it will continue when I get home.

My dad used to say he was like a ā€œlion in a cage,ā€ that my mom would ā€œpoke and poke and pokeā€ until he reacted and then he was the ā€œbad guy,ā€ and now she does that to me since he moved out. She used to laugh at him and mock him and say ā€œOh yeah, you’re a lion,ā€ about his analogy. And she does the exact same to me when I try to explain what she’s doing.

My mom & sister start arguments with me at night, so I have to go to bed shaken and stressed. But it’s all one-sided arguments because I’m not allowed to say my side. If I ever speak up, they scream at me or tell me to shut up, or they talk over me.

Anything that goes wrong, my mom takes it out on me, even when it’s nothing to do with me. If it’s not explicit insults, it’s passive aggressive remarks, and just hostile body language and facial expressions and a cold tone. When I tell her that she’s just always negative with me, that her body language and expressions and tone are antagonistic and cold for no reason, she tells me I’m trying to control how she is.

When she says vicious insults about me and I say it’s wrong, she tells me that’s how she talks and that I’m trying to change who she is and control her, instead of acknowledging that it’s toxic to me.

My mom & sister are severely verbally/emotionally abusive, and they refuse to listen to how it affects me. They tell me I’m exaggerating or lying or that I deserve it and make them do that. Or they laugh at and mock me and say I’m ā€œtoo touchy.ā€ I tell them what they’re doing is abuse, and they laugh together and say things like ā€œPoor Kim, you’re a poor little abuse victim.ā€

It’s frequent middle-school-style bullying.

Then, they use my reaction to their abuse against me, to ā€œconfirmā€ that I’m the true problem. They say whatever they want to me or about me, and then they won’t let me talk or say my side. I have to take everything they throw at me and be silent, or they accuse me of harassment.

I’m looking for ways to cope with that and be less affected by it, because at the moment, none of us can change our living situation. The toxic family situation is not new, but through the years, it worsens to where it’s hard to live with sometimes.

My sister is very unhealthy, emotionally. She was since she was a child. She’s almost 30 years old. She has the intellectual ability of someone her age, but she throws fits like a toddler when she doesn’t get her way. She uses her health conditions as a form of manipulation.

She was manipulative since she was a child in ways no kid would even know how to be.

Since childhood, she threatened to kill herself or run away or take drugs or tell vicious lies about us if we did not do what she wanted, like take her to a playground or buy her things she demanded. My mom never got her help. She was a child, threatening suicide, and my mom let it slide. She would tell her not to tell my dad. And when my dad did find out, they wouldn’t let him get her help.

My sister has always threatened me. She’s 10+ years younger than me but tried to control me her whole life. She would threaten to lie to my boss and say I was stealing off the company or stealing off clients, unless I did what she wanted. She threatened to call my therapist back then and lie and say I was ā€œgoing off.ā€

She threatened to lie and say my dad sexually abused her, when she got angry at him. She threatened to tell my friends I said things about them that I never said. She threatened to lie and tell people I abused her. She recently threatened that she’s going to ā€œmake my life hell.ā€ When I tell her what she does is wrong, she breaks down and sobs hysterically and calls me an abuser, and my mom yells at me and agrees with her.

She did this since childhood. She controlled my mom, dad, and me. But, especially my mom. My dad is also very toxic and was less easy to control, so she mostly kept it to just my mom and me. I stopped falling for it, and now, my sister has resentment for me for not doing everything she wants.

She threatens to lie and tell people I abuse her and that I’m a narcissist. She posts this stuff publicly on Facebook, and I ignore it. She knows she can do this with no consequences. But just once, I shared a meme about verbal abusers on Facebook and said I have family like this. I did not name anyone.

My mom & sister saw it and knew it was about them, and they had a blowup on me for talking about them on Facebook, even though I never said it was them. I still don’t hear the end of it. But my sister lies frequently about me on Facebook, where I can see it. I can’t share my side, or I’ll have to suffer the consequences. But my sister knows there’s no consequences for saying anything to or about me.

It got worse the older she got. I had surgery a couple years ago, for example, and my sister wanted my oxy pills. She doesn’t have a drug problem, she claimed she had a headache. I said no, and she had a breakdown and was yelling and cursing at me and said she would kill herself if I did not give her the pills. She told me it would be my fault if she kills herself.

My mom began screaming and cursing at me, along with her, and told me my sister is going to kill herself if I don’t give her my pills, and that it will be my fault if she does.

They were yelling vicious insults about me. Finally, to stop the yelling and cursing and insults and threats, I gave her my pills. Instantly, as if a switch was flipped, they calmed down and were laughing together and talking to me, like nothing happened. I was still angry and anxious and stressed, while they were already over it, like nothing. It wasn’t normal.

Emotions don’t just change in a second, especially intense emotions. She was threatening to die by suicide, and two seconds later, after she got her way, they’re both there laughing and talking and having a light-hearted conversation. They tell me that the fact that I’m still angry about something later, even mere minutes later, is me ā€œnot dropping thingsā€ and me ā€œdragging something onā€ and ā€œharassingā€ them. I never get to say my side or explain or defend myself.

This is just one example of what happens almost regularly in my house.

My sister demands us to come out of the bathroom when she wants to get in there and says it’s our fault if she gets a uti if we don’t come out. If I’m in a shower and don’t come right out, they both scream at me and call me a ā€œpsychopathā€ who wants my sister to get a uti. My mom literally jumps off the toilet when my sister bangs on the door and demands it. My sister is only doing this to control and get what she wants, when she wants it.

She uses the excuse that she has stomach issues or gets utis and has special needs that she should get in the bathroom right when she needs it. That could be a valid situation in some cases, but with my sister, it’s all about control & entitlement. It’s a pattern.

My dad is also a toxic person, but not as toxic to me as they are. Him and my mom never got along. She has a lot of pent up anger because of him. He moved out around two years ago, and as soon as he moved out, my mom’s verbal abuse got worse with me. It’s like she moved onto me once he was gone. I’m an easy target for her anger.

When my mom is angry, she becomes vicious and cruel in ways she isn’t when she’s not angry. Through the years, she has become frequently angry, so she’s frequently vicious now.

It began as me being an easy target, and then took on a life of its own. It’s like I’m her punching bag now. It’s as if she has an at-home gym where she goes to blow off steam whenever she feels like, and goes wild on a punching bag, and I’m that human punching bag. And there’s nothing I can do to stop it. When I try, it only makes it worse.

Everyday, she comes at me as much as she can. I’m often not home, but it’s when I am home. It’s in the mornings as I’m leaving for work, and at night when I get home. I mostly stopped texting her during the days because it was happening in messages.

She could never do this to my sister or dad because they would do worse back to her. I don’t. So, she learned that she can unleash it all onto me, with no consequences to herself.

I had a therapist years ago who said, by what I described, my mom displays displaced & disproportionate anger. She suggested I talked to my mom about it, but my mom wouldn’t accept she can do anything wrong. My mom becomes furious when she’s told she’s wrong. She’s still like that now. When I told her what my therapist said, she said she doesn’t care what ā€œsome quackā€ thinks of her. Now, she’s much worse than back then.

My mom is also abusive in more subtle ways that, on the surface, or in isolated cases, my not seem that bad, but all adds up. She’s regularly passive-aggressive, in just mundane interactions. Most interactions with her, even in messages, leave me drained or anxious or in turmoil, even if I can’t pinpoint exactly why. After paying closer attention, I realized she does subtle things on purpose to get at me.

My sister dropped out of school on the first day of 9th grade, and my mom never homeschooled her. My mom always took care of our basic physical needs and bought us anything we wanted, but when I got to be an adult, I realized my mom was very neglectful in other ways, particularly with my sister.

I had some basic rules, growing up. But my sister did not. I don’t have kids, but I understand that kids need guidelines or rules, and they have to have some kind of age-appropriate accountability when they break them.

My mom never set rules or boundaries or encouraged my sister to work at having a future in terms of money or work. My sister had no bedtime growing up, nothing was off limits. She was allowed to watch and eat anything she wanted, whenever she wanted. She refused to go to elementary school unless my mom did volunteer work there. My mom volunteered there til my sister graduated. My sister went to middle school, and then never went to high school.

When my sister did wrong, she either wasn’t told or was told about it and would have meltdowns and then was told it was ok after that, that she wasn’t wrong, just to calm her down.

My dad was around, but he never had a say in anything back then. My mom had the final say, and her philosophy was that my sister could do what she wanted, when she wanted, with no consequences.

And now the consequences of that are severe, as an adult. My sister is beyond entitled. She doesn’t function like an adult, even though cognitively or intellectually, she is adult age. Emotionally, she’s like three years old.

My sister never got a GED. She has an 8th grade education. My mom has no problem with that, but she does have a problem with my low pay and my job she calls ā€œshittyā€ and ā€œnothing.ā€

My mom never had any true problems with me. I was a very easy kid, I never gave her problems as a teenager or young adult. I went to school and work. I contribute, financially. She has no reason to have the resentment for me that she does. It’s all because I’m an easy target. And it’s regularly and intentionally fueled by my sister. My mom is like my sister’s puppet. My sister tries to control me through my mom.

My mom hasn’t worked in 40 years. She chose not to.

They both refuse to work or even get government assistance because they don’t want to leave the house. They depend on my pay and some of my dad’s social security money he gives us to help out. And they say it’s my fault we don’t have enough money because I did ā€œnothingā€ with my life and have a ā€œshitty job.ā€

They almost never leave the house, and they refuse to socialize with anyone. My mom wasn’t always that way, she had friends. But my sister isolated her, through the years. I used to think it was my dad isolating my mom, but I realized it’s my sister. My sister wants my mom only to herself.

They have no life outside of each other and no opinions or personality outside of each other. They disagree on nothing, and anything I tell my mom, she tells my sister, even if I ask her not to. My mom refuses to text me unless it’s in a group chat with my sister. But they have their own chat without me.

My sister has to oversee every single message my mom and me send to each other. She’s that controlling of my mom.

If my mom even hints at disagreeing with my sister on anything at all, or won’t do something she wants, my sister will scream and threaten all night long.

It’s an extreme pathological bond. It’s not normal for anyone, not even a romantic couple. They don’t exist without each other. It’s like they’re the same person.

My sister won’t go to any of her doctor or dentist appointments without my mom. At almost 30 years old.

They also share the same delusions with no basis. For example, they are both convinced that a friend I had in college, years ago, a young woman, was going to kidnap me and sell me into human trafficking. There is literally no basis for this. She was Brazilian, so they came up with this racist delusion.

They also held other strange delusions, through the years, including that my sister’s doctors were conspiring against them, doctors who did not even know each other. These are things that no reasonable person would believe. And somehow, both of them happen to believe the delusion.

This may just be a hobby, I’m not sure if this is pathological or just a different belief system/interest, but they share a doll collection, and they both truly believe the dolls walk around when no one can see and that the dolls communicate with them and tell them things.

They use crystals and pendulums and ā€œmagicā€ wands. But they both literally believe all this and that the dolls are telling them the same thing. They believe the dolls get angry at me on their behalf. They don’t have any separate beliefs. They don’t question or doubt each other, ever. And the source of it is my sister. If my sister said she saw a real zombie in her bedroom, my mom would believe it.

They’re like a two-person cult. It’s triggered by my sister. I realized recently that the root of all this is my sister. I had a therapist years ago, before my sister and mom were this bad, who said what I was describing about them is ā€œemotional incest,ā€ but it’s much worse than that. It’s brainwashing. It’s legit brainwashing, not something said as an insult or loosely. My sister brainwashed my mom.

My therapist years ago thought my mom was the one coercing my sister into it. But it was my sister all along. Back then, I did not understand the situation or the underlying phenomenon.

As a teenager & younger adult, my sister & mom would have shouting matches, regularly, every single night. My sister would have blowups every night about all of her problems, and would demand my mom to listen to her and try to fix her problems.

It was an every night thing that would last hours. It was our normal. It never involved me. It was my mom and sister, and then my dad would involve himself and make it even worse. My sister and dad would have blowups that would trigger each other’s. It was usually taken out on my mom.

Back then, my mom was not as vicious with me because she was getting her anger out on my sister. Eventually, the shouting matches got less & less. My mom would compliment her and buy her flowers and gifts and do constant favors for her, to keep her calm.

Then, the pathological bond began to develop to an extreme, and my mom’s anger was directed more at me. It got worse after my dad moved out, two years ago. The better my mom & sister get along, the worse my mom is with me.

For many years, I was confused about the source of this whole toxic family situation. I used to think the main culprit was my dad because his voice was the loudest and his toxic ways, most explicit. But when he moved out, it got even worse. I realized he was a problem, but not the main problem.

I began to consciously pay attention during interactions and see exactly what’s going on. And I thought back to all the issues through the years and realized my sister is the underlying problem. My mom has toxic traits of her own that I think are innate. She used to verbally abuse my dad before he became worse abusive to her as a result.
But my sister is the main instigator of the main problem here.

My mom used to have a personality outside of my sister, and we used to get along well enough. She was always toxic in some ways, but not this extreme. She used to say when my sister was wrong, and my mom had her own mind. My sister took over my mom’s whole person. My mom is not allowed to agree with me on anything, or my sister has outbursts and says we’re against her. Then, my mom will change her mind and agree with my sister.

This was not always the case to this extent, but there was always a hint of it. My mom always had to give into what my sister demanded, since she was a toddler. The difference is, my mom knew what was happening. She knew my sister was being controlling and wrong. She used to tell me all the things my sister did and how her life would be easier without my sister and that she felt like she had a toddler still.

She used to defend me against my sister and tell my sister she was wrong when my sister did something to me. Now, she supports everything my sister does to me. She goes along with her and encourages it.

Gradually, through the years, my mom stopped realizing what my sister is doing and is now devoted to my sister. It’s like Stockholm syndrome. She traumatized my mom into worshipping her and being devoted to her, unconditionally. My mom knows she gets rewarded the more affection and agreement she shows my sister and ā€œpunishedā€ if she goes against her. But it’s not conscious anymore.

She literally says my sister can do no wrong. And if I say my sister did something wrong, my mom yells and curses at me, and yells ā€œDon’t you dare say anything bad about her, you fucking bitch, she does nothing wrong!!ā€ Or she just tells me to shut up and refuses to listen. Then, she goes back and tells my sister what I said about her. Then, my stuff goes missing or gets broken when I’m at work.

If my mom or me are using the microwave and my sister wants to use it, my sister wants us to stop using it and take our food out before it’s done so she can use it. My mom listens. My mom will stop the microwave and take her food or coffee out before it’s done, and lets my sister use the microwave. I don’t.

And I get called vicious insults for it and get lies told about me or accused of untrue things, like that I’m taking longer on purpose just to make my sister wait. Or my sister will say her depression was triggered because I wouldn’t let her use the microwave as soon as she wanted and that if she kills herself, it will be my fault. Then, she goes on Facebook and writes that I’m a monster and a domestic abuser. And I can’t defend myself or explain my side.

My sister makes my mom make her food if it’s something not microwaved, throws her trash around the floor and makes my mom pick it up. If she wants something, upstairs, my mom has to go up and get it for her and bring it down to her. My mom has to make all her doctor and dentist appointments. My mom has to wash my sister’s clothes.

And I have to pick up my sister’s prescriptions and do all her food shopping or any paperwork she needs done.

There is nothing wrong with my sister that she can’t do this. She’s just entitled. My sister does nothing but watch movies all day, while my mom and me do everything she needs. And she’s almost 30 years old. My mom sees nothing wrong with this anymore. She used to say my sister was running her ragged.

When I speak up about it now, after years of saying nothing about it, I’m told I’m abusing my sister and trying to make her feel low about her life and that I’m arrogant.

I used to think my sister was just spoiled and overly sensitive. Now, I understand it’s way worse than that. She’s manipulative & abusive. I’m not qualified to diagnose, but I think she has sociopathic tendencies. I even saw her seriously injure herself before, without her knowing I saw, just so she can tell my mom I left my scissors out and she ā€œfellā€ onto them, simply so my mom would be angry at me.

She stabbed herself deeply in the leg. She went running and screaming to my mom that I carelessly left my scissors out and that she fell onto them. My mom came yelling and cursing at me and calling me insults. She wouldn’t believe that I saw my sister stab herself with something she already had with her, not my scissors. My mom called me a liar. She automatically believed my sister.

And there is no physical or logical way those scissors would have been able to even scratch her. I set them up how they were and lightly touched them with my fingertip, and they fell back. They could never have deeply cut anyone.

My sister wants me to have a toxic relationship with our mom and her and my mom have a perfect one. She will lie about me right in front of me to my mom. And my mom will believe her. She’ll tell my mom I said an insult about her or that I knocked something over, when it never happened. And my mom will yell and curse at me or say something vicious about me.

And when my mom turns around and can’t see, my sister will smirk at me, to let me know she got something over on me. My sister and me both know what’s going on, but my mom won’t see it. My sister is consciously controlling and enslaving her and using her against me.

My sister lies frequently about me to my mom, just to have my mom angry at me or defending my sister against me.

And my sister will thank her for defending her against me. She says ā€œThank you, Mommy, I love you Mommy.ā€ And will secretly smirk at me. And my mom responds ā€œYou’re welcome, sweetie, I love you too, sweetie,ā€ both in extremely sweet, fake voices.

My sister makes herself child-like, but it’s completely fake. She knows what she’s doing, my mom doesn’t anymore. But I think on some level, she does still know.

She spends money excessively, and my mom allows it. She used to not let my sister spend too much, but my sister would blow up on her & threaten until she got her way. She would accuse my mom of intentionally triggering her depression or eating disorder. Now, she does that to me. My mom began to just allow anything my sister wants.

My sister would be excessively sweet to my mom, intentionally, to get a positive reaction. My mom used to recognize what was happening and doesn’t anymore. When I try explaining, she either gets furious, or laughs at me, depending upon her mood. But she always denies it.

Eventually, my mom stopped resisting and dedicates her life to my sister. She even talks to my sister in a fake, sweet tone, that’s forced. But, I don’t think she realizes anymore that she’s doing this. Rarely, she will tell my sister ā€œno,ā€ and my sister yells & sobs and threatens, like before, so my mom gives in. My sister always had blowups into the night, mostly directed at my mom, unless she got her way.

A few months ago, my sister demanded to spend $400 that we needed for bills & food. My mom, for once, said no. My sister screamed all night and threatened to kill herself, until my mom let her spend it. I said we need that for bills & food, and my mom & sister both began yelling & cursing at me and calling me a narcissistic abuser who just wanted to make my sister feel low about herself. Even though just minutes before that, my mom said the same thing to my sister.

My sister claims she has multiple identities/alters/personalities living in her body. I have never seen any real signs of this. And she says it’s my fault. She pretends to be a different personality when she doesn’t get her way or is told she’s wrong, and she loses track of what she’s even doing.

Her name is ****, and she’ll be pretending to be a different personality talking about herself, and she’ll say ā€œI told you to stop doing this to me,ā€ then she’ll correct herself and say ā€œI mean,**** told you to stop doing this to her!ā€

Clearly, it’s fake, when she’s making mistakes like that. She’ll do or say something and then later tell me it was one of the ā€œaltersā€ and that she shouldn’t be accused because it wasn’t her fault if they did something wrong in her body.

I tried bringing all this up during arguments when everyone is angry. And I tried bringing it up later when everyone is calm.

I tried bringing the issue up in a calm manner, and I tried bringing it up in an angry, snippy tone. I tried putting it in writing, and talking about it in person. But no matter what, nothing gets through to them. No matter how or when I try to explain how toxic this all is, it doesn’t get through. They get defensive or mock me.

They tell me I’m just having ā€œpersonal issuesā€ or that my real problem is with something or someone else and that I’m just taking it out on them. Or they tell me I’m lying or exaggerating or that I deserve it. They tell me they do nothing at all wrong.

Recently, when I was leaving for work, I told my mom that my mental health is being affected and asked if we can go for a walk together later and talk about how what her and my sister does, affects me and how we can all work on it together, to stop it and make it better for all of us.

And her response was ā€œI’m not going anywhere with you, we don’t do anything to you, get the hell out of here.ā€ So, I had to just walk out for work with nothing solved.

There is no working through this with them or getting through to them. They are not normal or rational people, and they never will be, especially my sister. And as long as my sister has this hold on my mom, my mom will never, ever see it, or even try to understand.

So, I have to learn how to coexist with it and manage it in my own mind while it’s going on.

Last Summer, the effect on me was so severe that I developed a prominent twitching in my upper lip when I would be walking home and know I have to see them, or when I would walk down the steps in my house, knowing they were there in the living room and I would have to walk by them.

And I developed an intense burning in my abdomen that felt like my stomach acid burning a hole through the lining. My heart was having palpitations. I told them this was happening as a result of what they’re doing to me, and they laughed at me and said I was making myself out to be a ā€œpoor little victim.ā€ They both laughed hysterically at me. And my mom sarcastically, to be dismissive, said ā€œOh sure you have heart palpitations.ā€ To imply that I don’t.

I learned to cope better and stopped the physical effects. But I would like more ideas on how to live with it.

I can explain & express myself better and remember details better in writing, so I tried to explain in-depth here so it will be easier to remember & talk about in person during my appointment. I wouldn’t be able to remember as many details when I’m talking in person.

**********

That’s the whole message my therapist received, so she’ll know all this already when I get to my first appointment. That is so helpful. I’m glad they set it up that way.

I actually asked for help a while ago, but I wasn’t getting anywhere. Whenever I found a therapist or therapy place and read about it or talked to them on the phone, they were either too expensive, virtual (I don’t want that), just not vibing with me, or there were no spots available.

Someone I talked to about it before, sent me the bio of a therapist who is taking on one more patient before she leaves in a few months. That sounds perfect to me as I don’t feel I really need a therapist other than this problem.

I think it can be resolved in a few sessions. I want my side heard and to maybe get some tips to cope with it in my own mind since there is NO CHANCE of the situation getting better. I have to count on my own mind to just handle it.

I read her bio, and I think she’ll be great. I’m glad I found her, and it feels I already have an ally in my corner who is committed to listening to understand my side.

This abuse is pernicious. It’s done in a way that’s clever and more difficult to call out. It’s carefully crafted to make it look like it could all be me and have me doubting myself and asking myself if I’m really just being petty and overreacting. My gut has always known I’m not. Then, I paid attention and thought it through and then saw social media posts about abuse & abusers like this. Sometimes whole families against one. And I understand now. They claim I’m the abuser and toxic person.

If I am the abuser, then why are my sister’s Facebook posts about me public, where I can see? An abuser would knock her head off for that. Why does my post have to have certain people blocked off it, but hers can be public?

Because I’m the one who would suffer the consequences of holding an abuser accountable. How ironic that I am the one called a narcissistic abuser, yet they can say whatever they want to and about me, right in front of me, with no consequences. And I have to keep everything in or suffer the wrath.

I see people in person and in movies refusing to accept something that is not even a fraction of the mistreatment I endure. That’s when I am reminded how bad it really is. When I see people calling out mistreatment that is nothing next to this because they know it’s wrong. And I’m expected to believe what happens to me is ok and that I deserve it (when I’m not being told it never happened).

I have a happy life outside of this. I have a fulfilling job and volunteer job. I have hobbies & interests, friends, and my pets. I have my health and events I attend. This makes it easier to cope with.

So, here is my side and my voice.

And, I hope anyone else out there struggling in silence like this, will read this, and recognize it as abuse and understand what is happening to them is wrong. It’s not ok. It’s not “just the way they are.” You are not overreacting. You’re not “too sensitive.” Your reactions and emotions are valid. You are not the problem. They’ll have you feeling like you are and doubting yourself and feeling petty. They are serious abusers.

They are no better than the husband who walks through the door and batters his wife and slaps her around.

You are seen and heard and understood here in my space. šŸ’š

(It’s possible I may add to this post later, but I do have another, much longer version. Sometimes, I edit my posts later, when I think of more to add)

Xoxo Kim

National Donate Life Month {organ donation story} šŸ’ššŸ’™

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My story was selected to be shared on “Share Your Wishes,” a UK based organ donation org. March is Kidney Month, and they were sharing one kidney transplant/donation story a day, all month long.

I’m honored that mine was chosen! šŸ’ššŸ’™

Kidney Month is over, but it’s still Donate Life Month! So, I’m sharing here. It’s late but still relevant!



“Kim shares her story in the hope that it will encourage even just one person to consider becoming a living organ donor, and register as a donor too, as both are equally important and very desperately needed.

ā€œOn 16th January 2024, at 37 years old, I donated one of my kidneys to a stranger. It was a lifelong dream of mine since I read a true story, almost two decades earlier, about a man who donated one of his kidneys to an anonymous stranger. I thought it was the most beautiful thing, someone giving a literal piece of himself to save another struggling human.

It deeply resonated with me. I always had the gift of perfect health and wanted someone else to have even just a little bit of what I have. It made perfect sense, if I have more than enough of something, to give some to someone who doesn’t have enough. As soon as I read that story, I knew it would be me one day giving my kidney to a person in need.

Nearly, twenty years later, it was! That beautiful story stayed with me for all those years until I finally got around to making that decision. It was a very easy decision for me to make once all my life circumstances aligned for it to all work out. There was never any hesitation or reconsidering. It was my calling.

I knew that the potential benefits to a kidney recipient outweighed any of the rare potential risks to myself and that even if I did experience a complication at some point, at least it would be because I tried to help someone. I could never regret it.

I knew that maybe I would experience a rare complication, but someone in need of a new kidney did not have the luxury of “maybe” that I had. Someone else was already suffering complications of an illness that I could potentially help.Taking on some of someone else’s pain for a while, to potentially give that person a whole life, was more than worth it.

I did not care who received my kidney. It was a gift given out of love for my fellow human and sentient being. My only hope was to relieve a little bit of the suffering in the world. The less suffering, the better for the whole world.

In the U.S., we have The National Kidney Registry. Through the Registry, we can donate our kidney to an anonymous stranger they choose for us and receive a kidney voucher to give to anyone in the country we choose, usually a friend or family member. That person usually gets a new kidney soon after the donor’s surgery, often in a matter of months.

In my case, I did not know anyone who needed a new kidney, so I decided to look for another stranger to give the voucher to. I just happened to hear about a man in my location who was in urgent need of a new kidney. I looked up his family on social media and offered the kidney voucher, or my actual kidney, if we happened to be a match. No recipient was chosen for me yet.

Coincidentally, we turned out to be a match and only lived fifteen minutes apart! It turned out he wasn’t cleared for transplant yet, though, and still had more work to be done before he could have a transplant.

So, I continued with non-directed donation and gave my kidney to whoever in the Registry could use it. That person’s transplant was an immediate success! I have no contact with him and no information about him other than that he’s a 50 something year old man. I hope that one day we can meet or exchange a letter!

A year after my non-directed kidney donation, the man I gave the kidney voucher to, Greg, received his new kidney through my donation to the anonymous stranger. His transplant was also a success, and he is doing amazing! He felt his new kidney working instantly. He got his whole life back after being so sick for years on dialysis. He is able to work again, eat his favorite foods, go out with friends, volunteer for organ donation, and work on his dream of becoming a dialysis tech to help others in the position he was once in.

We have become great friends and meet up for breakfast and do organ donation volunteer work and attend organ donation events together. We love to bring awareness to living donation and organ donation in general.

I’m thankful that my one donation saved two lives. I think of both of my recipients as my kidney brothers.

My evaluation process to see if I was physically & emotionally healthy enough to donate my kidney, took six months. I loved every second of it. My donation surgery was flawless. I had a smooth & quick recovery. Very little pain and no fatigue. I did not even need Tylenol! No pain meds at all. I was out of work for recovery for three months only because my job is very physical, but I felt like my usual self after only two weeks!

Two years after my kidney donation, I am just as healthy as with two kidneys! I have a medical test once a year to check my kidney function. My recent results showed that my kidney is functioning as well as it possibly could. I have just as much energy and walk 10+ hours a day. I’m a pet nanny/dogwalker for work. I would never know I had surgery or only have one kidney. Nothing at all changed, physically. My scars have (unfortunately! I love them!) faded. I have one lifelong restriction with one kidney, and that is NSAIDS/Natural vitamin supplements. I’m recommended to avoid those.

I have become an organ donor ambassador with The Gift of Life Program where I live, doing volunteer work to bring awareness to organ donation. Organ donation is a beautiful thing that is so life-affirming. So many people, the donors (living and deceased, alike), the donor families, the healthcare workers, and everyone who advocates for the recipients, come together and go to great lengths to save one life.

Donating my kidney expanded my life perspective and showed me just how powerful each of our lives are. Any choice we make, good or bad, has a boundless & unfathomable ripple effect and will change the world in some way.

Anything my kidney recipient/s go on to do in life is something that never would have happened if I did not donate my kidney. They’ll go on to touch more lives, develop relationships, do work and acts of kindness. Even way into the distant future, when my recipients and me are no longer here, the impact of my kidney donation could still be existing.

This goes for any choice we make in life. It will have an impact we can’t foresee and may never know. I never realized this to this extent until I gave my kidney to save a stranger’s life. It’s the most enlightening thing!

Donating my kidney is the best thing I ever did. The sense of relevance and joy and importance never fade, no matter how much time goes by.

I love being part of the whole organ donation family and feel a sense of kinship with all associated with organ donation in any way.

I truly, inadvertently, gave the absolute best gift to myself when I gave the gift of life to someone else. At the end of this life, whenever it may be, this one decision alone makes my whole life a success.

I would make the same decision again & again. I see my experience with the perspective of this amazing thing I got to experience more than look at this amazing thing I did for someone else. It’s better than I ever imagined it would be.

My kidney donation has given me this whole family, a new friend, an expanded life perspective, and most of all, the gift of seeing someone’s whole life change, dramatically, for the best.

Even though it wasn’t my intention or expectation, my experience with kidney donation truly has given me just as much as it has given those who received the gift of life out of it. It has become an essential part of my identity.

In the USA there are over 100,000 people waiting for a life-saving organ, over 90,000 of them are waiting for a new kidney. A healthy person with two kidneys can get one of them off that waiting list and off of dialysis with little to no cost to us.

If I could, I would give a kidney to every person in need! šŸ’šā€

Please #ShareYourWishes about your #organdonation decisions with your loved ones, say #YesIDonate and register your decisionNHS Organ Donationtion

Xoxo Kim ā¤ļø

Random Update šŸ’š

Friends & kidney buddies for life šŸ’š

Keep smilin’, keep shinin’
Knowing you can always count on me
For sure
That’s what friends are for
For good times and bad times
I’ll be on your side forevermore
That’s what friends are for

Yesterday, my kidney recipient, Greg, & me attended the Donor Dash, the walk to honor organ donors and their families, and bring awareness to organ donation. We live only fifteen minutes apart and meet up for coffee, walks, breakfast, events, Phillies games…We spent Christmas Eve together and plan to spend Thanksgiving together this year!

The 3k walk takes place every April. It’s hosted by the Gift of Life Program, here in Philadelphia. I’m a trained volunteer organ donor ambassador with the organization. April is National Donate Life Month. 100,000+ people are in need of a new organ, 90,000+ of those, are waiting for a kidney. Every year, we walk together, to honor the donors, celebrate the recipients, and bring hope to those still waiting.

This is me, yesterday, thinking I was going on the walk like this šŸ˜† Turns out, it was freezing cold! I had to put a sweater on. Thankfully, it wasn’t raining.

In less than one week, I’ll be turning 40 years old! Going into middle age fit & healthy. Middle age looks good on me lol My friend (mentioned above) and me are going out for breakfast!

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That’s What Friends Are For – Official video

That’s all for now!

Xoxo Kim ā¤ļø

Love those kidneys šŸ«˜šŸ’™šŸ’š

Happy (belated) World Kidney Day!! šŸ’ššŸ«˜šŸ’™

Here’s your friendly reminder to hit the (water) bottle today!

Show those beans some extra tlc on their special day!!

I meant to post this weeks ago and never got around to it. But, it’s still Kidney Month! So relevant enough lol

#inmarchweweargreen
#worldkidneyday
#livingdonor

Xoxo Kim

Happy Donor Day!! šŸ’™šŸ’š

Happy Donor Day!! šŸ’™šŸ’š

Every February 14th, we celebrate & honor organ donors (and donor families), registered donors, & the beautiful, selfless gift they give or intend to give. The gift of life. ā¤ļø

Yes!

I said yes to organ donation in life & in death.

I am a living donor, a registered potential deceased donor, the friend of an organ recipient, and the daughter of a parent with organ failure, in urgent need of a liver transplant. So, organ donation is something I’m touched by, directly, but even before that, I was a passionate advocate for organ donation.

That’s why I chose to become a living donor when I had no ties to it, personally, yet. I just always thought it’s the most beautiful, ultimate act of love to another human, giving a literal piece of ourselves.
Since I was a little girl, I wanted to be an organ (and blood) donor.

Over 100,000 people are waiting for a life-saving organ.

Only around 1%-2% of the population becomes a deceased organ donor, and less than 0.1% of the general population are living donors.

Approximately 29% of organ donors are living ones.

Around 60% are registered as potential deceased donors (We need more!!). And over 90% of the population supports organ donation, including all major religions.

I am a volunteer organ donor ambassador with the Gift of Life Program here in Philadelphia. I did the training in 2024, the same year I donated my kidney. I work to bring visibility to organ donation and educate people on the topic.

I LOVE my volunteer job. I love being part of this community, doing work that helps literally save lives, and the whole donor/transplant community. I have the privilege of meeting and working with many recipients/recipient families, donor families, those waiting for a new organ, and other living donors.

Recently, I attended one of their summits where I got this sign.

Here’s a tribute/shoutout to all the organ donors & registered donors and especially all the donor families out there who said YES to saving lives, in their own darkest moment.

I always knew donor families are amazing, but I especially realized just how amazing they are after my dad got sick. My dad won’t live long enough to get a deceased donor liver. But all those donor families out there still said YES to saving my dad and others in need like him.

Anyone can say yes or no to organ donation, but the family gets the ultimate say and are the ones who actively make the decision for the deceased donor. A significant amount of families with the opportunity to donate their family member’s organs but say no, regret it three months later. They wish they would have said yes, but were too distraught in the moment. After the initial stage of grief & shock, they realize they would have said yes. I learned this during the ambassador summit.

The most selfless thing someone can do is register as a potential organ donor. Deceased donors get absolutely nothing in return for their incredible act of love. Unlike living donors, they don’t even get to experience the joy of helping someone. People register as organ donors purely to help another human with no possibility of any benefits to themselves.

To register as a potential deceased donor, click on this link.

https://www.organdonor.gov/sign-up

And to register as a living kidney donor:

https://www.kidneyregistry.com/

You can donate to an anonymous stranger here, or if you know someone in need, you can donate for them through here.

To choose your own recipient (stranger) as a living donor:

MatchingDonors.com

This is like a dating profile but to look for your perfect donor/recipient dna match. Most of them are looking for kidneys and livers, mostly kidneys.

You can make an account as a donor and browse the recipient ones, see their pictures, read their stories. If you’re moved by any of them, you can reach out and offer to be evaluated to give them your organ that they need. (Likely a kidney or portion of your liver)

I tried this many years ago, years before donating my kidney. And just couldn’t. I couldn’t choose who gets to live out of so many. They flooded my inbox like sharks on blood as soon as I opened an account. They were imploring for my kidney and sending me pictures of themselves with their kids and grandkids and telling me why it should be them who gets my kidney.

It was devastating. Some of the pictures are still burned into my memory so vividly, today. Pictures of young parents kissing their kids, pictures of old people hugging their grandkids, a picture of a young ER nurse in need of a new kidney, in her blue hospital scrubs at work, asking me to save her life so she can continue to save others, a picture of a baby in his crib with a big smile on his face, a picture of a young dad and his kids in a park with the biggest smiles…How could I possibly choose?

I wasn’t even sure I was going to choose my own recipient and was just trying it out. I had no idea potential recipients would flood my inbox, telling me how much they don’t want to die, and pleading for me to let them live.

They were all ages, infants up to 80+ years old. Most were searching for themselves, others were searching for a family member or friend in need. All of them tugged on my heartstrings, some more than others. But I couldn’t choose.

I came close to choosing one. A 50 something year old man, the dad of two adult daughters. He was too humble to request a kidney for himself, so his daughters were for him. I wrote a message that I was going to send to his daughters.

But, then, I just couldn’t choose.

That’s when I knew for sure that non-directed kidney donation was for me. It always resonated with me more, anyway. Just tossing my kidney out to whoever catches it.

I closed the account. It still haunts me today.

Years later, my kidney was given to an anonymous 50 something year old man through a non-directed donation.

Anyone interested in donating to a stranger of your choice can sign up through that link.

If you choose someone and you’re not a match, you may be able to do paired exchange or the voucher program where you donate to an anonymous stranger chosen for you, so the person of your choice gets an organ through your donation.

We’ll never have enough deceased donors because almost no one dies under the appropriate circumstances. Even if everyone in the world registered as a potential organ donor, there would be an extreme shortage of organs for those in need. More people registering would help, though. So, living donors are very much needed.

We especially need kidneys. Of the 100,000+ people waiting for a new organ, over 90,000 are waiting for a kidney.

One person can donate two organs while alive! Usually a kidney and portion of the liver. It’s extremely rare. There’s only a few hundred double living donors in the entire world. Not a few hundred a year. A few hundred EVER! Many have donated one organ to a stranger and then another organ later to another stranger. Some donated to a family member or friend and loved the experience so much, they went on to donate a different organ to a stranger.

I recommend registering as a deceased donor!! We don’t need our organs when we’re gone and have no use for them, but someone else does.

I’m an atheist, but one of my favorite quotes has always been “Don’t take your organs to Heaven, Heaven knows we need them here.”

šŸ’™šŸ’š

#organdonorssavelives

Xoxo Kim

Two Years!! šŸ’ššŸ«˜šŸ’™

šŸ’™šŸ’š

“To save one life, it’s as if you saved the world.”

(Content warning āš ļø: There’s a picture of a human kidney in this post at the end lol)

January 16th.

My favorite day of the year! The one day a year where it’s still appropriate for me to brag years later šŸ˜† To everyone else, it’s old news now, but, to me, it never gets old lol

Each day leading up to 1/16, I can’t wait. It’s like having two birthdays, except even better. I even buy myself a cake and gift to celebrate the best thing I ever did.

On 1/16/2024, I donated one of my kidneys to a stranger.

It was my calling and lifelong dream.

It was a gift given out of love for my fellow human & sentient being without care about what person were to receive it. The less suffering in the world, the better.

I knew the potential benefits to a recipient outweigh the rare potential short-term & long-term risks to myself. And even if I were to experience one, at least it’s because I tried to help someone.Ā  I could never regret it (Unless I find out he’s a Cowboys fan šŸ˜† JK, I always have to throw that joke in somewhere, I even wrote it in my thank you letter to my transplant team lol)

My decision was inspired by a true story I read many years before, about a man who donated his kidney to an anonymous stranger. I thought it was the most beautiful thing I ever read, to give a literal piece of himself to save another.

I instantly knew I would do the same one day. Almost two decades later, I did! If I have more than enough of something for me, it makes complete sense to give some to someone who needs it.

Two men were saved through my one kidney donation. I volunteered to give my kidney to whoever needed it and was a match for me. It was an anonymous donation that was given to “the next person on the wait list.”

I share a set of kidneys with a 50 something year old man in Minnesota. I love to joke that I’m in two places at once and can pee for two šŸ˜†

Because I donated through the National Kidney Registry, I was given a kidney voucher to give to anyone in the country I wanted. I chose someone who wasn’t close enough to the top of the deceased wait list but was in urgent need. I did not know anyone who needed a new kidney and so gave it to another stranger I heard needed one.

He was brought into the system to receive an anonymous living donor kidney because I gave him the voucher. He got the kidney of a living person who was donating for someone who isn’t a match for that person.

My kidney voucher recipient, Greg,Ā  received his new kidney just over a year after my non-directed donation!


Coincidentally, we live only fifteen minutes apart and are a match!

So, I was going to donate to him directly, before an anonymous recipient was chosen for me. But, he had some more work before being cleared for transplant, so I moved forward with non-directed donation.

We are now good in-person friends!

We have similar views and values and some similar interests and sense of humor. I wasn’t planning on becoming friends with either of my recipients. Just planned on helping someone and going on my way with no strings attached. But we have become good friends and turned out to have much in common!

I have no contact with the person who has the kidney I gave. Maybe one day!

I think of both of my recipients as my kidney brothers. šŸ’™

It was and still is the most incredible thing I ever did. I had no idea the significant change it would inspire in me. A change that has become even more prominent as the years go by.

My intention was only to help someone, but in the process, it also changed me for the better.

No one else can see it on the outside, but on the inside, I am forever changed. It has become so much an ingrained & essential part of my identity that it’s like I wouldn’t even be the me I am now without this experience. Sometimes, it’s like nothing else even matters when I think of it.


It serves as a kind of buffer against the stresses and disappointments and tragedies of life. Whenever I feel something dragging me down, I remember this, and it pulls me right back up. It brings me comfort in situations where I would be inconsolable. When my depression flares up with feelings of worthlessness & insecurity, I remember my own life literally, physically, saved someone else’s, and am reminded of how powerful & valuable each life is, and I push through, knowing I can do even more good.

When I look around at all the tragedy & destruction in the world, all the hatred and wrongs and evil, I am reminded that I did the absolute best I could to counter that, by loving my fellow humans in the ultimate way there is to love: Showing them that their own life matters enough for me to risk my own to save theirs, no matter who they are.

I’m like a colorful 3d version of what used to be a grey stick figure. It made me better in a general way. Even when I’m not consciously thinking about it, I can feel it.

It’s not that I was unhappy before or anything like that, it’s just the experience added so much depth to me in a way that’s unimaginable & indescribable. But I tried my best to put it into words.

I wrote a very long (you know me with the paragraphs long essays šŸ˜†) thank you letter to my transplant team at Penn Hospital before being released as a patient recently (we stay a patient for two years after our donation surgery). They loved it.

I would like to share part of that letter here:

I used to think of living kidney donation in a limited way, that it helps someone live, and their friends and family get to still have them around. And that was motivation enough for me to regift one of mine.

But, after this experience, I began to realize it’s so much more expansive than that. Countless things are going to happen when a person’s life is saved or changed that would never happen if they weren’t saved or changed for the better. It has an unfathomable and boundless ripple effect.

That person will go on to do things that will contribute to an infinite amount of other things. They’ll do work, engage in acts of kindness, have many encounters with various people, develop relationships, maybe have kids, and those kids will do an infinite number of things, on & on. When one person is saved, their life will have a limitless impact on the world, there’s no telling how many more will be helped, touched, or saved in various ways because that one person’s life was spared.

Even way into the very distant future, the impact of our choice to donate our kidney could still be existing even if it doesn’t involve the recipient or donor anymore. This isn’t just true for organ donation but any choice we make. Any choice, good or bad, any act of kindness, can have a lasting effect we can’t foresee and may never know.

This is true for every single one of us. We all impact everything around us in ways we may never know. Each impact we have will go on to create more effects. On & on & on.

The decision we make to give life doesn’t only help our organ recipient and voucher recipient, if we have one, but every single life they go on to touch.

We have no idea how powerful our own life is, no matter who we are or what we do. Every little thing we do touches someone or something for better or for worse.

If the thread that is us was missing, the uni-verse would not be the same. Part of it would unravel. We’re all connected in an infinite amount of intricate ways we’ll never fully understand. We’re all a thread in the tapestry of life, holding each other together.

After giving my kidney to save a stranger’s life, I understand this now in a deep way I never did before. It’s so enlightening.

I love being part of the whole organ donation family and feel a sense of kinship & belonging with all the other donors, donor families, recipients, and their families.

My body ā€œlostā€ a kidney, but I received so much more in return.

My kidney donation has given me this whole family, a new friend, an expanded life perspective, and most of all, the gift of seeing someone’s whole life change, dramatically, for the best.

Even though it wasn’t my intention or expectation, my experience with kidney donation truly has given me just as much as it has given those who received the gift of life out of it.

šŸ’š

That’s an “excerpt” out of my thank you letter to my healthcare team.

I dropped off a copy of it in person along with gifts, and gave six of the team members a copy, personally, the ones I worked with most closely. They were so thankful and said they were blown away!

My surgeon called me and asked for my permission to share it in a mass e-mail within the Penn network lol Of course, I said yes!

It took MANY people to come together to save the two who were saved by my kidney donation, not just me. It took their friends & family & others advocating for them and helping with resources, and all the healthcare workers involved. Both of them received a kidney not only because of me but because someone else donated a kidney also.

The man who shares my set of kidneys with me received mine because someone donated theirs for him to get mine. If it wasn’t for Greg’s family & friends sharing his need for a new kidney, that information would have never reached me.

That’s the beautiful thing about organ donation & kidney chains, it’s so life-affirming and shows just how valuable one life is, that countless people go to great lengths to save that life.

I get all the credit (lol), but, truly, we ALL played an equally crucial role. If just one of us was missing, things would be significantly different. It’s possible someone may not even be here today.

It’s a beautiful thing to be a small part of.

The scars have faded. But the joy and sense of relevance never fade no matter how much time goes by. It’s not on my mind as much as in the beginning, but it’s always with me, and when thoughts of it or reminders pop up, it’s like an instant dopamine surge. Like being in love & walking on air.

I truly, inadvertently, gave the absolute best gift to myself when I gave the gift of life to someone else.

At the end of this life, whenever it may be, this one decision alone makes my whole life a success.

I would make the same decision again & again.

I also thank my transplant team at Penn for trusting me to donate my kidney! I take the best care of my remaining kidney and am overly cautious with it. I don’t ingest anything that can hurt it without checking first and make sure to water it regularly!

I am just as healthy with one kidney as with two.

I share my story for three reasons, because it makes me happy, because it uplifts others to read/hear (who doesn’t like a good Hallmark-like story šŸ˜†), and because it brings visibility to organ donation and may hopefully inspire even just one person to become a living donor and/or register as a potential deceased donor.

There are a couple of people alive today because I read that story many years ago. If I just heard we can donate our kidney to a stranger, I may not have, I’m not sure. But reading a true story about someone, personally, who did, it made me see something in myself like that person and motivated me even years later.

You never know who you or your life may be inspiring!

I see my experience with the perspective of this amazing thing I got to experience more than look at this amazing thing I did for someone else. It’s better than I ever imagined it would be.

And two years later, it makes me even happier than when I first donated my kidney because it took a while to process and finally fully sink in, this profound & rare thing I did, because I have since become an organ donor ambassador with the Gift of Life Program in Philadelphia, bringing awareness to organ donation, and get to work with and connect with others who share my passion, and because now my kidney voucher recipient got his new kidney, and because we are now friends, which we weren’t really in the beginning.

We attend organ donation events together, living donor celebrations, do 3k walks for organ donation/kidney disease awareness…It just gets better & better.

Cheers to my kidney twin in Minnesota, and Happy Kidneyversary!! šŸ„‚šŸŽ‰šŸŽŠ

Many, many more for the both of us šŸ’š

Also, will celebrate my other kidney brother’s Kidneyversary coming up in early February!!



“He ain’t heavy, he’s my brother.”

šŸ’™šŸ«˜šŸ’š

Xoxo Kim

I’ll bleed out for you ā¤ļø

(I have sunscreen & olive oil on my skin/hair, so if I look greasy, that’s why šŸ˜†)

I’m bleeding out
So if the last thing that I do
Is bring you down
I’ll bleed out for you
So I bare my skin
And I count my sins
And I close my eyes
And I take it in
I’m bleeding out
I’m bleeding out for you, for you

Bleeding Out – Imagine Dragons

I donated platelets! Just eight days after donating whole blood!

This is my first platelet donation in a few years.

It takes hours hooked up to a machine with a needle and tube in both arms, for platelet donation. We’re restrained and can only move our legs and neck. The arms have to lay straight, can’t bend them or anything, the tubes in each one are hooked up to a machine. Can’t even look at our phone because we can’t hold anything. They do put a movie on for us. I watched “Jaws,” and the Red Cross nurse said “You picked a hell of a movie to watch while donating blood.” 🤣

Getting an itch or runny nose is the worst, there’s nothing that can be done about it. Just have to let the snots drip and itch go unscratched. I have allergies, so I tend to sneeze/get a runny nose. If you sneeze, you can’t cover your mouth & nose lol Awkward

The machine takes our blood through one arm and takes the platelets out of the blood, then it puts the rest of our blood back into our body through the other arm. They also have to inject us with stuff to reduce risk of blood clot and whatever else. It’s very, very, very rare, but I recently learned there’s a risk of death while donating platelets or any blood, even the simple whole blood routine. Say what??? Apparently, the risk is so low it’s not even worth mentioning to us, but I read it online.

It’s freezing cold when donating platelets. It’s something to do with whatever is happening to the body. It happens to anyone who donates platelets. It feels like being in a freezer even if the room is heated. They put a heated blanket on us and give us hand warmers, but eventually the heat runs out. We can probably request more.


They said most people don’t have this problem, but it makes me sick and lightheaded. Platelet donation always has. I feel like I’m going to pass out, even laying down. The feeling comes & goes throughout the donation. When I walk out after it’s over, I feel “under the weather.” I’m also all stiff because of not moving for hours. It also makes my whole face tingle and my fingertips. I don’t have this experience when donating whole blood, which is what I usually donate. I think it’s side effects of whatever they’re injecting me with, not the loss of platelets/blood doing this. There was one point where I thought, yeah, I’m not doing this again. Ever. Like ever. The next day, I’m back to my usual self.

The Red Cross said they need my platelets more now because of the ongoing platelet shortage crisis. We can donate once a week. They said the platelet crisis is extreme, there are so many more in need than are donating.

I guess I’m going to have to suck it up.

Me, after donating whole blood recently. (Again, the oily look is because I put various things on to protect my hair & skin against the elements)

It’s amazing that there are people sitting there hooked up to a machine for hours having parts of their body taken out for complete strangers. The Red Cross doesn’t pay their donors, but they occasionally give gifts and prize opportunities. They especially love platelet donors (and O blood donors because it’s the most needed blood type). The donors are getting nothing tangible out of it.

I was pleasantly surprised at how many other platelet donors were in there donating.

For the people who say people suck and there are no more good people, let’s remember our platelet donors. They are laying there for hours on a machine, some every week, giving parts of their own body away for people they’ll never meet. They aren’t just giving their body parts away but a significant amount of their time and some of their own comfort & health. And getting nothing in return.

I’m not a dedicated platelet donor, but there are people who are. There are people who haven’t missed a donation in many years. I would like to donate once a week and have tried before, but they said my body doesn’t produce enough platelets to keep giving them away. It only really makes enough for itself. Stingy bone marrow. Lol I also don’t want to risk becoming anemic, which can happen with frequent blood donation. I probably won’t donate every week, but if I have enough, I’ll try to frequently.

Donated platelets often go to cancer patients and organ transplant patients when theirs are too low. 

I’m glad I donated, and even though it kind of makes me sick, it also uplifts me to know it’s going to help someone else, likely cancer patients. They have to sit in a chemo chair every week and a platelet transfusion chair, having no choice, I’m just in the donation chair, which is a gift. The least I can do is share that fortune with someone else. That’s the thought that motivates me to keep going. šŸ’š

Xoxo Kim

It’s a…..BOY!! šŸ’™ {I’m not preggošŸ˜†}

Random recent photo of me ā¤ļø

“The road is long
With many a winding turn
That leads us to who knows where
Who knows where
But, I’m strong
Strong enough to carry him
He ain’t heavy, he’s my brother
So, on we go
His welfare is my concern
No burden is he to bear
We’ll get there
For I know
He would not encumber me
He ain’t heavy, he’s my brotheršŸ’™

He Ain’t Heavy, He’s My Brother – Bill Medley

I did not want to trick anyone for a few seconds but couldn’t think of a more fitting title to this post. Lol

OMGOMGOMG!!!

I received some HAPPY news!! It made my heart skip a beat, literally lol. It’s like something inside me shifted in a deep way, and I’m not the same me I was before. And, I just have to share!

I’m not having a baby, but…

It’s a……BOY!!! šŸ’™

And I’m glowing!
šŸ¤£šŸ˜‚

I just found out I have a kidney brother!!!

I’m overwhelmed.

It’s the most heartwarming thing, to find out about the person I share a set of kidneys with.

This must be the same feeling expectant mamas feel when the ultrasound tech/doctor says “It’s a boy” or “It’s a girl.” (Yeah, I know they can’t actually know til the gender identity develops a few years later, but it’s still a happy moment) A surreal, awe-inspired feeling. And, it doesn’t even matter the personality or anything or if it’s mutual, just unconditional love.

Last year, I volunteered to give my kidney to the next person on the waitlist in the U.S. who I matched with.

January 2024 šŸ’ššŸ’™šŸ«˜

It was given to a fifty-something-year-old man in Minnesota.

I just found out!

I knew he’s in Minnesota (I’m in Pennsylvania) and that his transplant was a success (our kidney began working instantly after it was connected to his body), but did not know the age or gender.

I had a feeling all along that my kidney would go to a man. It was like a gut feeling.

I did not care about the gender or age of the person who would receive my kidney; everyone wants to live & be healthy, no matter our age/gender. But, I was slightly curious. At first, I was a little bit curious. Then that curiosity began to fade to where I was almost indifferent. Then after almost a year, the curiosity came back and more intensely. I thought I would never know.

I feel like an identical twin missing my other half as if we were separated at birth, a feeling that just crept up on me after around a year. Lol (I guess we’re not identical though as we don’t have the same exact anatomy šŸ˜†)

Now, I learned through my transplant team that he’s a 50-something-year-old man. We’re anonymous strangers, so that’s all I know.

It made me so happy to receive even just that little bit of information. Like an indescribable feeling. Happiness & warmth. Awe. It adds to my experience and makes the person less an abstract concept and more human in my mind. Just to have a general idea in my head of the person who traveled this journey with me and laid on an operating table the same morning I did, a few states away, so our destinies became one.


It made the whole experience really sink in.

To receive this news makes me even happier than I realized it would. šŸ’™šŸ’™šŸ’™ It’s one of the most amazing happiest experiences of this whole life of mine. I did not know just what I was missing til I found out. There’s no way to even put it into words.

It’s like having a long-lost brother out there somewhere. He’s a complete stranger to me, yet he’s my own flesh & bl0od. He literally has a piece of me inside of him.

Now, I want to meet him šŸ˜†šŸ˜­šŸ˜

I have two kidney brothers now because my kidney voucher recipient is also a man. Lol When we donate our kidney to “the next person on the waitlist,” we get to choose any specific person in the country to also receive a new kidney through our donation (we can choose five people, and the first one to receive the kidney, the others get canceled out. I made sure to only choose one so as not to get someone’s hopes up, then someone else gets it first, or so he wouldn’t have anxiety all along that maybe someone else would get it first and cancel out his place).

I looked for another stranger in need since I did not know anyone who needed a kidney transplant. I heard about a man who lives close to where I do who was in urgent need. After I donated my kidney to an anonymous stranger, he got his new kidney through my donation. I did get to meet him in person, and we’re friends on Facebook! šŸ’š

Two new (kidney) brothers. How lucky am I?! 😁 Never had a brother before! 🫘

Xoxo Kim šŸ’•

Ramblings of a living kidney donor- frequently asked Q&A šŸ«˜šŸ’š

šŸ’ššŸ«˜

(Words are censored because I sometimes copy/paste posts off of Facebook to here or here to Facebook where certain words can get us a suspension or post removal. They can’t detect context. So I can be posting about donating blood. It will see blood and automatically detect it as violence. Also, I censor common trigger words that people with trauma history may see.)

Content warning āš ļø!!!!! There is a picture of a human kidney in this post!! It will gross you out lol It’s not a scan image, it’s the kidney after it was taken out of my body before it was sent to its new person. I asked the surgeon to take a pic for me šŸ˜†šŸ˜

Bridge Over Troubled Water – Simon & Garfunkel

Questions we get asked as altruistic/non directed/living kidney donors and my responses:

1.) What if your child/family member needs a kidney transplant in the future, and now you can’t give them yours? Would you regret it?

Nahh.

This is probably the most frequent question.

I could not regret saving/attempting to save a life. I did what I felt called to do when I did. And if someone in my family needed a kidney transplant after I donated to a stranger, I would remember that someone else’s family needed that kidney too and are no less worthy or less important than my family member. I wouldn’t be kicking myself wishing I held out knowing a whole other life is spared and enhanced. Of course if my family member needed a kidney transplant I would have given mine when I had two. But since that wasn’t the case, I wouldn’t regret it if it happens later. How could I regret someone else’s child, mom, grandad, sister, niece, best friend, husband….or just a person being alive??

And I would remember that there are kind people out there who would donate an organ to a stranger like I did and have hope that one of them would help my family member the way I helped someone else’s. I couldn’t imagine not helping someone when I’m passionate about it because maybe someone I know will need me later. That may never happen and then someone would be sick or dying, and I would miss the opportunity to get to experience being a living organ donor. It makes no sense to me to hold out for something that is very unlikely to happen when something is already happening now that needs tending to. Also, who is to say I will be healthy enough later? Health is so fleeting & fragile. I may not be qualified later if my family member needs one. People take good health for granted just assuming we’ll always be healthy. This question shows that in the assumption that I would still be healthy enough later to help a family member. I hope I will. But unfortunately there’s no guarantee. To be a living kidney donor, we also have to be financially fit enough and have appropriate life/work circumstances. At one point years ago my circumstances changed, and I wasn’t financially qualified or able to take off work for recovery and wasn’t sure when/if I would ever be qualified again. I got super lucky when things changed again for the better. There’s also no guarantee my financial/work/life situation won’t change again. I would miss my chance. I am nothing but lucky to have the gift of this very rare experience.

2.) What if your kidney goes/went to a Donald Trump supporter/Republican/some @$$hole?

šŸ¤£šŸ˜‚šŸ˜†šŸ˜­ As long as it’s not a Cowboys fan, we’re good!

Jk!

Altruistic or non directed kidney donation is certainly not for everyone. It’s not for the faint of heart. There are people who say they would love to donate a kidney to a stranger but are too afraid it will go to someone they feel is undeserving like people with certain political or religious views. I have read stories by people who donated their kidney but absolutely had to be sure it was going to someone who has Liberal political views like them or had to be sure the person has personality traits they like. They can’t be a non directed donor with this frame of mind. It can truly take a toll on someone emotionally to keep wondering if the person who has their kidney is worthy or if they find out who the person is and they don’t measure up to their standards. They have to go looking for a specific person in need and make sure that person measures up. I don’t understand it myself, I could never choose out of a list of people and decide someone is worthy of my kidney but someone else is not or prefer one over another out of multiple strangers, but whatever floats their boat, it’s their body and their journey, and their choice. If they want to save a life but only one they feel is worth it, that is valid. There is a website, MatchingDonors, where potential donors & recipients can browse and read profiles by people offering a kidney and needing a kidney. Like a dating website but instead of finding our perfect romantic match, we find our perfect kidney match. Their pictures show up and any information they share about themselves. I tried it years ago and couldn’t choose. I knew altruistic/non directed donation is for me or if I just happen to see one particular person in need. But I couldn’t choose one of many. I wanted to help them all. Some tugged on my heartstrings more than others. But I could never choose.

It takes a certain kind of person to donate to a random anonymous stranger we know nothing about. It takes more than just compassion. It takes a strong stomach and a certain way of thinking. We have to truly believe every/almost every life matters and detach. We have to accept that our kidney can be keeping someone alive we absolutely would not be able to stand if we met them. Someone with values or personality traits we abhor. We have to feel that we not liking someone doesn’t mean they are less worthy just because we don’t like them. We have to step out of that egoistic, self important way of thinking to be able to be ok with non directed donation. Self important /egoistic in this sense is ok because kidney donation is an act of kindness, not an obligation. It’s completely valid to choose who we would and would not donate to or not donate at all. But it is egoistic to a certain degree, to decide one person is worth it and not another, and it does require us to avoid that sentiment that someone is inferior or unworthy “because *I* don’t like them” because “*my* opinion of them is the one that matters.” If we cannot overcome that sentiment, altruistic kidney donation is not for us. You know how ticked off you are every single day on social media. I see it every single day, my social media friends furiously bashing people of different political or religious views, arguing viciously with people then blocking them and still complaining about them after they’re gone, mocking people they don’t like, even wishing d3ath on certain people, laughing at some people who died. Could you handle it if your kidney was in one of their bodies keeping them alive? My self proclaimed Liberal humanitarian friends relentlessly mock some famous people who die, often because they’re Conservatives, sometimes because they’re greedy billionaires.

What if instead of one of them dying, they were still kicking and with YOUR kidney? If they were healthy and thriving and going on doing whatever they’re doing because your body part is keeping them going? Just imagine. Like I said, it takes a strong stomach lol

The way I see it is that a whole person is just that. A whole person. There’s more to every person than just their views/religion, more than just the aspects we see and cannot stand. They have interests, roles they play to others, goals… whatever I don’t like about them is only one aspect. And someone else loves them just how they are. Why does me not liking them make them less worthy when someone else does like them? My opinion is no more important than the opinion of the person who loves them. Someone isn’t less worthy just because *I* don’t like the person. I may not want to be their friend or not want them in my space, but that doesn’t mean I won’t be their kidney donor.

For example, those Donald Trump supporters. They wake up and drink coffee every morning, they go to work, they laugh at jokes them and their friends tell each other, they walk their dogs, they take their son to a ballgame and take their daughter out to lunch. They go home at night and watch their favorite movie or read their favorite books. They feel the same exact pain you feel when they get injured or sick. They feel the same fear if a g u n is pointing at them or they’re diagnosed with a devastating illness. They have the same longings to love and be loved and to live. If you cut them, they bl33d the same red. They have a whole life other than whatever someone doesn’t like about them. Who is to say they don’t deserve to live it?

I am reminded of Jeremy Bentham asking

Can they suffer?

In terms of whether or not animals are worthy of rights.

“The question is not, Can they reason?, nor Can they talk? but, Can they suffer? Why should the law refuse its protection to any sensitive being?ā€ – Bentham (1789)

To me the question isn’t, Do I like them?, nor Do I agree with them? but, Can they suffer?

Also, are you a potential organ donor? Does your ID say you’re an organ donor? If yes, you may be donating to someone you wouldn’t like some day. You think all your organs that can be donated are going to only people who you would like and agree with on everything there is to agree on? Think again lol (I would not knowingly donate my kidney to a cold blo0ded murder3r, or a known terr0rist or domestic abus3r or serious s*x offenders or someone who has a lot of power and would use it for destructive things,…I would not want to aid in or support their large-scale destructive actions/energy in the world, but if my kidney happened to go to one of them, I would not regret my act of kindness because at least I tried to help, and it doesn’t take away any of the kindness on my part, a loving act is a loving act, there’s two aspects to donating a kidney, the practical help it offers someone and just the fact we did something so amazing. If my kidney went to an a-hole, it’s still an amazing thing I did)

I do not have a preference. I’m a Liberal atheist. If I found out the kidney I gave away is now making pee in someone who is a Christian Conservative and goes around calling people like me “snowflakes” and “sheeple” and “libtards” and “woke” and “commies,” (šŸ¤£šŸ˜‚) so be it. I’ll give you my kidney just before blocking you on social media šŸ˜†

To me, there is something beautiful about altruistic/non directed kidney donation. Not knowing, not caring who our kidney goes to because every life matters. So universal loving! Of course all kidney donations are equally beautiful. But non directed has this unique aspect to it.

The way I see it, what makes someone worthy of my kidney is the fact that they are suffering/have the ability to suffer, not that they agree with me on something or are a pleasant or kind or compassionate person. We all suffer or have the ability to suffer the same way irrespective of our views or personality traits or likability.

3.) What if you need a kidney transplant in the future?

I’m on the priority transplant list now, so if I ever need one, I can get one fairly quickly. Since I donated a kidney, I won’t have to wait years like the average person in need of a new kidney. I can get a living donor kidney within weeks/months very likely. Even if that wasn’t an option for me, I would have donated. The chances are very slim. And if it were to happen, I would deal with it just like everyone else who needs a kidney transplant deals with it. At least I would be able to say I’m sick because I took a chance and helped someone. So many are sick just because. I have a way better chance of being in a car crash, yet I still get into cars. And no one questions it. I’m much more likely to be a victim of g u n v!olence in the U.S than develop kidney failure, yet I’m out all day & night walking the streets of Philadelphia where g u n v!olence is rampant. And no one (except my mom) questions it or has an issue with it.

I’m rarely to never questioned on why I get into cars or don’t live in a bubble so I don’t get sh0t or ass@ulted or sick. But when it comes to a loving act of kindness to literally save a life, people question why I would or make remarks to say/imply that I shouldn’t have because of a risk to my own safety.

Someone may say getting into cars and going outside are worth the risks because it’s necessary, it’s needed to live life. This kidney transplant was necessary. It was needed for someone to live. That person is no less worthy or important than I am that my needs are worth certain risks but theirs aren’t.

šŸ’ššŸ’‹šŸ˜˜

4.) What ever possessed you to give your organ away to a stranger/to lay on an operating table and risk dying for a total stranger? (Or something of this sort, but “possessed” has come up a few times šŸ˜†)

The philosophy that every life matters and that if we have more than enough of something (money, health, resources…) its an even greater gift to share that with someone less fortunate in that respect. Remember all deceased organ donors donate to strangers. And blood donors too. What’s the difference if I’m alive and donate to a stranger? I donate blood regularly to random strangers. What’s the difference? If you checked yes to organ donation on your driver’s license and you die in a way where you can be an organ donor, you’ll be doing what I did, donating to a complete stranger. Is that such a wild cr@zy idea? To reach out and help a fellow human?

🫘

5.) What if you suffer a complication?

I may or may not suffer a complication, but for someone else there is no maybe. A person on dialysis or about to begin dialysis doesn’t have the luxury of maybe that I have. They are already suffering a complication. I’m lucky & privileged to even have that “maybe.”

Also, I hope I would never not do something that deeply resonates with me because of fear. Avoiding things we’re passionate about because of fear, is no way to live, in my opinion. I prefer to take chances if it’s something I truly want and feel called to do and whatever happens happens than living in a safe bubble not fully living and then dying as an old woman. What if I did not do this and wouldn’t have suffered a complication? I would miss out on the experience and always wishing I chose to go through with it and wondering what if I did. It has been on my mind every single day for over five years and on my mind off & on for many years before that. It was never something I could ever regret no matter what. It’s my dream come true!

6.) “I would never give my kidney to a stranger/anyone, you’re a better person than I am.”

This is a response I have received by a few people.

No one is a better person for doing an act of kindness. “You’re a better person than I am” only applies, in my opinion, if you’re going around intentionally interfering with or hurting others while I’m not.

7.) Are/were you scared?

Yes!! It took brass ovaries, and I got’em. The two weeks before surgery, my body would be gripped in a sense of panic waking up in the mornings. Sometimes it would feel that “fight or flight” response. Occasionally it felt like it thought it was getting ready to die. Lol Dramatic. My worst, pretty much only, fear was that I would experience prolonged fatigue when I live a very active life. Thankfully got no fatigue at all! On the morning of the surgery, I woke up completely calm and peaceful & hopeful, no anxiety or fear at all walking into the hospital with my two kidneys getting ready to send one off to a great new home. šŸ’š

8.) What if you die/would have died on the operating table?

Very very unlikely. But what better way to go than in my sleep and saving someone else’s life? 😁

Scars n all šŸ’š
🩷

9.) Have you met/do you want to meet your recipient?

No, I haven’t. And not necessarily. I do not mind either way. I don’t have the burning desire or curiosity that many anonymous donors seem to have. For me it wasn’t a social call but an attempt to enhance & extend someone’s life. If they reach out to me ever, I will be delighted. But if not, I’ll live. Lol Each transplant center has their own rules for when an anonymous donor or recipient is allowed to contact the other, anonymously. Some have to wait up to a year. So my recipient may not be allowed to contact me yet. I was allowed to contact them right away but did not. I may send them a card for our first Kidneyversary next year to brighten their day. My transplant center would send it to theirs. Not knowing who they are or if they’re grateful does not lessen the joy of my experience. Occasionally I’m slightly curious of the age & gender of the person.

10.) Has your life changed since donating a kidney?

Only in my mind. It’s the most amazing experience, I am filled with joy & ecstasy. I understand the meaning of “intimate strangers,” knowing a complete stranger and me are the only two in the world to have had this kidney in our bodies, that we both laid on an operating table on the same morning to become connected to each other forever. I know that everywhere I go, I’m very likely to be the only one there with one kidney. Every room I walk into, I’m the only one there who gave a kidney away and knows this rare unique experience. It’s an isolated feeling but not in a negative way.

After two weeks I was almost 100% my usual self. I jokingly asked if they even took the kidney. After a month I was 100%. I would never know I only have one kidney or had surgery if not for my memories & the beautiful scars.

Here are the lifelong restrictions/lifestyle changes I was told by my team:

1.) No NSAIDS
2.) No natural herb supplements
3.) No supplements made outside the U.S.
4.) Blo0d pressure check every six months
5.) kidney function tests once a year
6.) Extra water

11.) Can you still have kids?

Yes! Having only one kidney does not affect fertility at all. It does make it a “high risk” pregnancy though, so for women/birthing people who donate a kidney and decide to become pregnant later, it’s important to let their healthcare team know so they can be closely monitored to prevent very serious complications to the woman and the unborn. With close monitoring it can be a safe & healthy pregnancy.

12.) Are you religious/was this motivated by religious beliefs? No, I’m an atheist. I don’t need a god or religion to be compassionate or empathetic. My basic humanness is enough. I have felt it as a deep calling, it felt like something larger than me working through me, which is a bizarre experience for an atheist. And I have received what many believers would call “signs.” But I don’t believe in that. It was my desire to help someone that inspired me, and the deep calling feeling was just part of my experience. I don’t believe that any supernatural being would have been disappointed or punished me if I did not go through with it. And I don’t believe it scored me points with anyone or is my ticket into Heaven or some other afterlife. I just wanted to help someone!

šŸ’š

Living organ donation isn’t for everyone. These are just my experiences not something that everyone should feel for themselves. For me, living kidney donation truly felt like a calling. It was the easiest decision of this life of mine. I truly experience more stress trying to decide what flavor ice cream I want or if I want tea today or an iced latte šŸ˜‚ No hesitation, no uncertainty whatsoever. I knew since the day I read a heartwarming story 15+ years before my donation, about a man who donated his kidney to an anonymous stranger, that I would one day do the same. I am 100% happy & thrilled with my decision. šŸ’ššŸ«˜

Anyone interested in living kidney donation can check these out:

National Kidney Registry (the National Kidney Registry offers donor benefits like reimbursement for lost wages during recovery and travel/lodging expenses if necessary and a place on the priority list on the off chance the donor ever needs a kidney transplant in the future, also a kidney voucher for a friend/family member {or anyone} of the donor, so if someone they know ever needs a kidney transplant, since the donor donated to an anonymous stranger, they’ll let one person of the donor’s choice get a kidney transplant without waiting long, I donated my kidney voucher to another stranger, so two people are being helped through my one kidney donation)

Matching Donors (this website provides pictures and stories by people in need of a kidney transplant. Potential donors & recipients can browse and communicate with each other. A donor can choose to try to help a specific person, they may not be a match. But if they’re both associated with the National Kidney Registry, the donor can do a non directed donation and donate the voucher to the person they found on Matching Donors – this isn’t just for kidneys but other organs we can donate while alive also. Some people have donated their kidney AND a portion of their liver to different people {not at once lol usually have to wait around a year}! And it’s completely safe!)

Sending love to all!

Xoxo Kim šŸ’‹ā¤ļø

S.c.a.r.s šŸ’š

The girl wore her scars the way some women wore their finest jewelry. šŸ’š

Just showing off my kidney donation scars! My healthcare team said they are healing very well. šŸ˜ These are my scars at just over two weeks after surgery. It’s now over six weeks later, and they look the same.

šŸ’š

The incision just above my shorts is the main incision where the kidney was extracted. 🫘 It’s like a C-section scar. I always liked those, they’re pretty and delicate and girly, but I never wanted kids. Now I joke that I get to have my very own except instead of taking a kid out, they took a kidney! šŸ˜†

My recipient and me are doing great! 😁

I was so happy to receive the news that my recipient is doing amazingly well! I was told that I can reach out and contact the person by sending a card or letter. I have to remain anonymous at first. Then if both of us agree, we can break anonymity and get to know who each other is.

I’m so happy with my decision to donate a kidney!! šŸ’š

I hope you are having a beautiful day or night wherever in the world you are!

Xoxo Kim šŸ’‹šŸ˜˜šŸ©·