@ctnnb1connectcure
Connecting families, raising awareness, finding treatments and a cure for CTNNB1
2024 Impact Report
2024 Impact Report
Visit Our Website
Visit Our Website
What is CTNNB1 Syndrome?
What is CTNNB1 Syndrome?
Please help us spread awareness by liking, commenting, and sharing this video! You can also visit our website at www.curectnnb1.org.
Free Genetic Testing
Free Genetic Testing
Free Genetic Testing (3-12 months old)
Free Genetic Testing (3-12 months old)
Free Genetic Testing for Infants with Neurodevelopmental Symptoms
CTNNB1 Digital Release Form
CTNNB1 Digital Release Form
Access Google Forms with a personal Google account or Google Workspace account (for business use).
Newly Diagnosed?
Newly Diagnosed?
Citizen Health Study - Join now!
Citizen Health Study - Join now!
Transform hours of medical paperwork into instant answers with Citizen Health's AI Advocate. Built by rare disease families, for rare disease families, get answers to your questions about medications, treatments, and care coordination for rare diseases. Trusted by 50+ patient advocacy groups.
SimonsSearchlight's Study - Join now!
SimonsSearchlight's Study - Join now!
Donate
Donate
Podcast
Podcast
The CTNNB1 Connect and Cure Podcast is for anyone looking for information on CTNNB1. Listen to the latest information, research, stories, and ideas while connecting…
Volunteer
Volunteer
Parent Facebook Group
Parent Facebook Group
Librarey - Rare disease and disability resources for families
Librarey - Rare disease and disability resources for families
Librarey is a resource repository for rare disease patients and caregivers. Developed and maintained by Comend and supported by the Warsaw Breakage Syndrome Foundation.
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Facebook
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LinkedIn
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TikTok
Apple Podcast
Apple Podcast
YouTube
YouTube
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