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Update on Federally Funded TSC Research - TSC Alliance
Update on Federally Funded TSC Research - TSC Alliance
Last year, when funding for the TSCRP and other Congressionally Directed Medical Research Programs was cut for FY25, the TSC community joined together, working hard to make their voices heard
Seizure Action Plan Awareness Week 2026
Seizure Action Plan Awareness Week 2026
MENU Seizure Action Plans A Seizure Action Plan
Support Team TSC 2026
Support Team TSC 2026
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25th Annual Comedy for a Cure Purchase your tickets here!
25th Annual Comedy for a Cure Purchase your tickets here!
Step Forward to Cure TSC
Step Forward to Cure TSC - REGISTER TODAY!
Step Forward to Cure TSC - REGISTER TODAY!
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Download your Flat TSC Buddy here!
Download your Flat TSC Buddy here!
Thank you to our sponsors - Nobelpharma America
Thank you to our sponsors - Nobelpharma America
Thank you to our sponsors - MassMutual SpecialCare
Thank you to our sponsors - MassMutual SpecialCare
MassMutual can help you prepare financially to care for a loved one with special needs via long term care insurance, life insurance or investments.
Thank you to our sponsors - Upsher-Smith
Thank you to our sponsors - Upsher-Smith
REGISTER HERE - Ask an Advocate session 2/9/26: Making Advocacy Simple for you and your family
REGISTER HERE - Ask an Advocate session 2/9/26: Making Advocacy Simple for you and your family
Government Action Alert! - TSC Alliance
Government Action Alert! - TSC Alliance
Team TSC: Endurance 2026 - Support Emma!
Team TSC: Endurance 2026 - Support Emma!
Regulating Together Webinar - 1/15/26 @ 7 pm ET REGISTER HERE
Regulating Together Webinar - 1/15/26 @ 7 pm ET REGISTER HERE
Regulating Together – A Group Intervention to Address Emotion Dysregulation
Regulating Together – A Group Intervention to Address Emotion Dysregulation
The TSC Alliance announces the retirement of Chief Scientific Officer Steven L. Roberds, PhD. - TSC Alliance
The TSC Alliance announces the retirement of Chief Scientific Officer Steven L. Roberds, PhD. - TSC Alliance
REGISTER TODAY - 2026 TSC World Conference
REGISTER TODAY - 2026 TSC World Conference
Scholarships - 2026 TSC World Conference
Scholarships - 2026 TSC World Conference
Run with Team TSC in the 2026 United Airlines NYC Half Marathon
Run with Team TSC in the 2026 United Airlines NYC Half Marathon
Nominate a someone you know for a Volunteer Award!
Nominate a someone you know for a Volunteer Award!
TSC Alliance Holiday Giving - Give Here!
TSC Alliance Holiday Giving - Give Here!
Cardiac Rhabdomyomas in Pregnancy Survey - Take the survey here!
Cardiac Rhabdomyomas in Pregnancy Survey - Take the survey here!
ISAW - 2025
ISAW - 2025
TSC Alliance Giving Tuesday 2025
TSC Alliance Giving Tuesday 2025
Transition Webinar - The Psychological Impact on Caregivers 12.18.25 REGISTER HERE
Transition Webinar - The Psychological Impact on Caregivers 12.18.25 REGISTER HERE
Leave us a review on Great Nonprofits
Leave us a review on Great Nonprofits
Join the 2026 Step Forward to Cure TSC National Planning Committee!
Join the 2026 Step Forward to Cure TSC National Planning Committee!
Federal Special Education Offices Hollowed Out, Putting Students’ Rights at Risk - The Arc
Federal Special Education Offices Hollowed Out, Putting Students’ Rights at Risk - The Arc
Take Action: Cuts to Special Education Protections Are Happening NOW
Take Action: Cuts to Special Education Protections Are Happening NOW
Give to TSC Research!
Give to TSC Research!
Team TSC 2025 - Sponsor a Mile or a Runner here!
Team TSC 2025 - Sponsor a Mile or a Runner here!
Behavioral Impact Project Survey – Patient Journeys
Behavioral Impact Project Survey – Patient Journeys
2024 TSC Alliance Annual Report
2024 TSC Alliance Annual Report
Team TSC 2025
Support Jen
Support Jen
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Support Margie
Support Margie
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Support Gadi
Support Gadi
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Support Emily
Support Emily
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Support Diana
Support Diana
Accelerate TSC Research: Give to the 50 Forward Fund! YOUR DONATION MATCHED 2X
Accelerate TSC Research: Give to the 50 Forward Fund! YOUR DONATION MATCHED 2X
2025 TSC Research Conference
Subscribe to TSC Alert eNewsletter
Subscribe to TSC Alert eNewsletter
Clinician Survey on TAND Patient-Reported Outcome Measures
Clinician Survey on TAND Patient-Reported Outcome Measures
Research Funding Survey
Research Funding Survey
TSC Biosample Repository
TSC Biosample Repository
50 Forward Fund
50 Forward Fund - TSC Alliance DONATE HERE
50 Forward Fund - TSC Alliance DONATE HERE
Introducing the 50 Forward Fund
Introducing the 50 Forward Fund
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
TSC Research Changes Lives: Rosy’s Story
TSC Research Changes Lives: Rosy’s Story
Rosy was just four months old when she was diagnosed with tuberous sclerosis complex (TSC), a rare disease that would upend her family’s lives. Then the TSC ...
Support Team TSC!
Support Team TSC!
Update on Medicaid and TSCRP Funding
Update on Medicaid and TSCRP Funding
Step Forward to Cure TSC
2025 Step Forward to Cure TSC!
2025 Step Forward to Cure TSC!
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TSC Now Episode 50: What happens when a clinical trial fails?
TSC Now Episode 50: What happens when a clinical trial fails?
Learn more about clinical trials
Learn more about clinical trials
Reproductive and Perinatal Health Initiative - Participate in the survey here!
Reproductive and Perinatal Health Initiative - Participate in the survey here!
NORD Rare Disease Day
NORD Rare Disease Day
Support Team TSC 2025
Support Team TSC 2025
Register today for the 2025 Step Forward to Cure TSC!
Register today for the 2025 Step Forward to Cure TSC!
The Arc Take Action Toolkit
The Arc Take Action Toolkit
Seizure Action Plan Awareness Week 2025
Seizure Action Plan Awareness Week 2025
Sources of Distress Survey Tool
Sources of Distress Survey Tool
TSC Navigator
TSC Navigator
Home - Infantile Spasms Action Network
Home - Infantile Spasms Action Network
Give to TSC Research!
Give to TSC Research!
Volunteer Opportunities
Apply here: Future Leaders Class of 2025
Apply here: Future Leaders Class of 2025
A Clinical Study for children and adults with TSC | Epicom Study
A Clinical Study for children and adults with TSC | Epicom Study
EPICOM Study Webinar: Looking Beyond Seizure Control - 9/26/24
EPICOM Study Webinar: Looking Beyond Seizure Control - 9/26/24
TSC Alliance Endowment Fund - Plan my Legacy!
TSC Alliance Endowment Fund - Plan my Legacy!
TSC Biosample Repository & Natural History Database
TSC Biosample Repository & Natural History Database
Steven Sparagana Legacy Fund
Steven Sparagana Legacy Fund
Perspective Magazine - Spring 2024
Perspective Magazine - Spring 2024
#50Forward
#50Forward
Contact Us!
Contact Us!
Share your story of hope!
Share your story of hope!
TSC Navigator
TSC Navigator
ISAW - Infantile Spasms Action Network
ISAW - Infantile Spasms Action Network
Sudden Unexpected Death in Epilepsy (SUDEP) Individual with TSC or Caregiver QI Survey
Sudden Unexpected Death in Epilepsy (SUDEP) Individual with TSC or Caregiver QI Survey
TSC Alliance - Great Nonprofits
TSC Alliance - Great Nonprofits
Give to TSC Research!
Give to TSC Research!
Apply here: TSC Alliance Community Alliance Leadership
Apply here: TSC Alliance Community Alliance Leadership
Baby Talk in TSC Study
Baby Talk in TSC Study
Resources
TSC- STEPS
TSC- STEPS
Biosample Repository and Natural History Database
Biosample Repository and Natural History Database
Subscribe to Perspective magazine
Subscribe to Perspective magazine
TSC Navigator
TSC Navigator
TSC Now | a podcast from the TSC Alliance®
TSC Now | a podcast from the TSC Alliance®
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