Monthly Archives: September 2010

The lost August…

If given the opportunity to look back and reconsider the moves, Berlin, random places of employment, and buying a dog, I wonder what I would have changed.  A conversation over lunch today with a dear friend of mine made me question if this has all been moving full circle, or have I spent the past two years waiting for light at the end of the tunnel.  That light is quickly approaching and finally, for the first time in two years, I know without any uncertainty of heart, I am doing the right thing.

Would I have moved to Florida if I had known I would turn around and drive right back in 11 months?  Probably not.  Was it worth it?  Well, the monetary aspect – not so much, but the benefit of moving far outweighed the financial clinch it slightly strangled me with.  Did I need to spend a year living in humidity to realize Oregon is perfect?  Nope.  Absolutely not.  But did I go because something here was hindering any sense of progress and sheepishly, like a child, did I run home to my mother?  Yes.  Yes I did.  Was that right?  Not for all 24-year-old women, but for this one it was necessary.

Then comes the question of Berlin.  It’s hard to give any fair assessment of what happened now as I am still living with a sense of confusion.  I know what happened, I know where things took a turn for an unreasonable amount of frustration and pain.  But if I could go back and change the one thing that set us into distance and strangers, would I?  Was that broken heart a risk worth taking?  Or was I simply a fragile heart traveling naively into territory that was not mine to walk in?  Albeit a brief moment of belonging, did that moment overshadow a year of my life?  To answer those questions sequentially, it probably looks something like this: no, yes, yes, and yes.  Maybe Berlin was strictly there to be my muse.  And I think that’s where I have kept him.

There was a month of absence from writing that I’m sure was noticed.  Over lunch, that absence was discussed, though the conversation had been had during that month, it furthered over gyros.  Why didn’t I write?  Here is your answer: I sunk into a depression that was so foreign to me, to even begin to explain it would only increase a level of frustration and make it even more real.  I tried to hide it, hide myself, and I am pretty sure I hardly left my apartment for four weeks.  Was it necessary?  Yes.  And finally when I came out of my coma, though into a brighter and louder world than I had remembered, it was better.  I was simply scared and I had nothing to be afraid of.  I was afraid of sharing it with anyone and kept it my own secret.  My world suddenly struck a daemon that was meant to be handled quietly and alone.  Mission accomplished.

Then comes the light at the end of the tunnel.  A month ago, I was miserable.  I knew what I wanted and it was a matter of finding that one thing, that one person willing to take a chance and give me the opportunity I had so desired.  Well, it happened.  Light is near.  Come January, my world will be a very different place.  However unusual and foreign it will be to me, I will remind myself of the lost August and what failed to happen then.  And if ever presented with a lost month again, I will not allow for it to stifle the one thing that keeps me.

We, however, are not prisoners. No traps or snares are set about
us, and there is nothing which should intimidate or worry us.
We are set down in life as in the element to which we best
correspond, and over and above this we have through thousands of
years of accommodation become so like this life, that when we
hold still we are, through a happy mimicry,scarcely to be
distinguished from all that surrounds us. We have no reason to
mistrust our world, for it is not against us. Has it terrors,
they are our terrors; has it abysses, those abuses belong to us;
are dangers at hand, we must try to love them. And if only we
arrange our life according to that principle which counsels us
that we must always hold to the difficult, then that which now
still seems to us the most alien will become what we most trust
and find most faithful. How should we be able to forget those
ancient myths about dragons that at the last moment turn into
princesses; perhaps all the dragons of our lives are princesses
who are only waiting to see us once beautiful and brave. Perhaps
everything terrible is in its deepest being something helpless
that wants help from us.

Rainer Maria Rilke

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Genetic predisposition…

About a week ago, I noticed a post regarding a symposium at Oregon Health and Sciences University.  The symposium was about the genetics of pancreatic cancer.  Of course my mind goes sweet, sign me up. It was last night.  I signed up, signed in (pretty spiffy name tag), ate the delightful refreshments, and then proceeded to my seat in the back right of the auditorium.  What happens next may very well irk my mother (and you for that matter) and I will take full responsibility for it.

Last March, I’m sure I did a break down of the disease itself so I shall refrain from doing so again.  In case you missed it or are unfamiliar with it, well, it’s lethal.  There is a cure rate of less than 9% and as a daughter who lost her father to this devastating disease, to see that progress has only increased 3% in the past decade, let’s get on the ball, Obama.

I took my seat and took note of the transitioning PowerPoint slides.  Two of the speakers were doctors, one an oncologist dealing mostly with treatment options, and another oncologist handling the surgical side of this disease as well as spear-heading a pretty incredible research team.  The first speaker however was not a doctor.  It was a small woman, smile from ear to ear, and clearly not dressed out of the Pancreatic Cancer Action Network corporate office.  She looked thrilled to be there and when it came time for her to get on stage, she literally bounced up the stairs.  She introduced herself.  She was, excuse me, is a survivor.

OK, so my first reaction should be joy, happiness, awe in the fact that I am bearing witness to possibly the closest miracle I may ever witness in my lifetime.  She had every odd against her and with an incredible team, beat this horrid disease and has been cancer free since 2003.  Unbelievable.  This was not my first reaction though.  My knee-jerk was pain, anger, frustration, jealously, and a plethora of unanswered questions and for the first time in nearing a decade, asking a higher power why?

Feel free to insert a callous remark.  I know I deserve it there.  I should have spent that moment looking at her thinking it is amazing how far we have come in the past two decades.  She is remarkable. After an hour, I got over myself enough to look at her and say those words.  I cried as I hugged her at the end.  I cried when the doctors listed the high risk categories for pancreatic cancer.  That list may as well have used the words Mary and Burger.  I need to quit smoking – noted.  But at the end, the lead research doctor asked anyone with a family history of the disease (aka high risk Mary Burgers of the room) to please sign up for the Oregon Pancreas Tumor Registry.  Blah blah blah, genetic testing.

My father was 46.  Let’s say I am predisposed to this disease.  They have managed to isolate a few of the genes that are contributing factors in this nightmare of a disease and have testing that can at least detect it earlier than my father’s 28 day mark.  Basically, annual testing of the pancreas.  Do the math though, I am 25.  My father was 46.  Of course I am realistic and am aware I am just as likely to get hit by a bus crossing the street, and if I do get this disease, probably won’t get it at the exact same age my father was.  But I sure don’t want to spend the next 21 years of my life getting annual endocrine ultrasounds.  And when approached about genetic testing, I graciously accepted the pamphlet and told the doctors that I would have to think about it.

Do I want to know if I posess these genes?  No.  I’m sure I probably do have the exact markers.  I am half Bill Burger – best and worst of him.  From what I know already, my family history on both sides trickles down to one Mary Burger that would rather spend the next 21 years living with a bit of apprehension, and welcoming the unknown.  If my ultimate demise is this disease, I don’t want to know.  I know the symptoms and the day I feel them approaching, I’ll run to the doctor.  Not yet.  Not now.  I will sign up to donate my genes to research and beg the doctors not to give me any results.  Unless my death sentence is moving at the speed of a freight train, I’ll wait until it gets here.  So I ask you, would you want to know?

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