Jail Break

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I have made two “jail breaks” the past few weeks, and boy does it feel good!! Its so nice being out of the house in real people world.  Feeling the sun, seeing people, meeting people I don’t even know – socializing!  Those things were so a year and a half ago in my opinion, lol.  I have a very good friend to thank for this, for getting me out.  Thank you C.M.G.

I don’t have a lot to say on the subject, except that I’m getting out of the house, which means I’m so much closer to getting well!  I’m off my pain killers, it took forever and a day to wean off those, but its done!!!  We’re in August, so that means I was on pain killers for about 8.5 months.  No driving for that time either.  I’m almost ready to drive (last time was Dec 31st, a night to remember) except I need to get my ammonia levels down.  They are elevated because I can’t process my migraine medication correctly.  And every time I try to wean off those, I get a wicked migraine.  Vicious cycle.  The high levels of ammonia cloud my mind so I can’t always think coherently and I don’t want to risk my life or anybody else’s by hitting the road the road too soon.  So I guess that’s my next hurdle, my next goal.

And I do have to say that I have re-read some of these blogs and my typing and autocorrect is terrible.  Just a warning, that even though I have a college education, there is no battling the meds I take at night.  They made me drowsy, but I still can’t sleep a lot of the time.

50 Life Hacks to Simplify your World

#10, FINALLY!!!

twistedsifter's avatarTwistedSifter

 

Life hacks are little ways to make our lives easier. These low-budget tips and trick can help you organize and de-clutter space; prolong and preserve your products; or teach you something (e.g., tie a full Windsor) that you simply did not know before.

Most of these came from a great post on tumblr. There is also a great subreddit ‘r/lifehacks‘ with some fantastic tips as well.

 

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20. Separate egg yolks like a boss

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Good Relationship

1175664_10151796612767863_792962157_nI think this is what we all strive for, we shouldn’t accept anything less.

 

New York, New York

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“New York, New York” used to be my favorite song.  When that baby played, my shift waitressing in a tiny outfit in a small bar wearing a minimum of 3″ heels (not wedges) was over and I could set my tray down for the first time in 8 hours, sit down have my pau drink, and sort tips.  I saw so many Hawaii Sunsets, its kind of sad.  But I made a shit ton of money and the bestest friends in the world, so I’d call it even 🙂

I recently made a stupid post on FB as a part of a breast cancer support chain thing, that I was going to NY for 17 months.  Big fat lie.  I am planning on going after October when my friend closes escrow on her condo.  I don’t know how long I’ll stay for, but its just going to be very mellow.  I’m excited to go and see my friend, but wish I was well enough to go see more of the city.  Time will tell I guess.

Its really nice and reassuring to have friends that will do stuff like that for you (buddy pass – Delta employee).  We didn’t always get along, actually I kinda used to be terrified of her, she was mean!! And I don’t know when it happened, but we became friends.  I also have a friend who wants to fly me to FL so I can get some sun and to help me feel better.  I know him from Hawaii, and he’s lived in SoCal, so I’m not sure what FL son will do for me, haha, again, its nice that the gesture was made.  Now his family has premier tickets that have been passed down from generation to generation for the Kentucky Derby.  I wouldn’t mind taking advantage of that!

I have other friends that in the past week + that have not been too nice to me.  It is the worst feeling in the world to find out that who you thought you could trust, you can’t.  This happens almost every time I get sick.  In HS I only came out with one friend in my senior class.  I got sick, attended 2 weeks, and homeschooled the rest.  I reached out to people, but they didm’t care too much.  And the one friend I came out with, lied to my BF and tried to steal him away from me!  In retrospect, she could have had him, lol.  In college, I had my dorm friends and my sorority friends.  I am fairly good friends with one of my dorm friends, and my super close sorority friends, ditched me when I took a break from school.  Anyways, I was lucky in HI, and they became some of my closest friends, even though they are spread all over the globe sometimes.  When I came back, again I was lucky and had close friends.  But I guess these were times I wasn’t so sick.  Recently some friends have weighed in their opinion on what is wrong with me – all sorts of different things, that sometimes I think is totally nuts.  I know I shouldn’t let it bother me, but since we are so close, its hard not to take personally.

But other, older friends, have really been there for me for support.  Telling me to “slap out of it” as Cougar Town would say so I’m not having a total pity party.

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Anyways, in my own thoughts I have thought about moving to some place with cleaner air.  The pollution here, all the fires, isn’t good for me.  I’m thinking about Oregon/Portland, and going back to Hawaii because my health was the best there.  But I lose a lot of my wonderful doctors if I leave.  Hawaii does not have the best healthcare system and I heard OK things about Portland because they have a medical school up there.  If anybody knows of anywhere else I should consider looking, I’d be happy to take suggestions.  I’m not sure I could handle someplace like Minnesota where the Mayo clinic is but I’m willing to hear.  And then if I move, I’ll have to make all new friends and contacts, try to find work.  In Hawaii that is not so much of a problem because I have friends there still, but the cost of living is high.  And its not like you get a lot for your money.  l paid almost the same for a studio apartment there as I did for a townhouse in Brentwood.  Ponderables.

Appreciate Life

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“We often take for granted the very things that most deserve our gratitude” – Cynthia Ozick

Things I Miss

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In no particular order…

1. Wine, a bold red

2. Unoaked chardonay

3. Dark Beer

(I’m not an alcoholic, but the sheer taste and pleasure from consuming these, I do miss)

4. Cheese – you name it.  Aged cheddar, hard cheeses, stinky cheeses, a soft blue – brie, baked brie, and I’m going to list Cheezits here.  They are pretty cheesy.  Oh and Cheetos.  Those last two, especially horrible but what can I say?

(The last four are migraine triggers – going off my migraine meds and waiting for my appt at UCLA Migraine Clinic for Botox injections…don’t want to do anything to set things off!)

5. My friends.  I do keep up with them through text, email, etc. but I miss being well enough to see them in person.  And the ones that live far away.  They seem to outnumber the ones here in LA.

6. Having a paycheck job.  I miss having responsibility and a schedule and of course excelling at something 🙂  I also miss the camaraderie of the people I used to work with.  Everyone was so nice.  In fact most of my jobs, I have loved the people I worked with.  Two jobs, everyone there became like family to me.

7.  Not feeling guilty about eating gluten full food.  I am so glad that out of all the problems I have, I do not have celiac disease, but I do have gluten intolerance.  Bread, French bread…hard on the outside, soft on the inside – yes I miss you with yummy goat milk butter.  Sometimes I think its seriously better than cheese.

8. Traveling.  I did a lot of it before I got sick, I think 4 trips in one year?  Not crazy places, but just learning all the different cultural differences within the states.  And of course I would love to go out of country.  My best friend lives in Costa, another friend lives in Oz, and I would love to go see those places with people who are familiar with the country.  And I’m totally “jelly” as my brother would say that he’s going on a crazy European vacation.  That’s what I want to be able to do.

9.  Feeling healthy.

10. Being able to sleep at a reasonable hour.

11.  Driving.  And when I can drive again, having enough money to pay for gas!  Stupid luxurious gas guzzling SUV! So conflicted with what to do with it.

12.  Dating/Being in a relationship.  Being an ice queen.  My TS totally knows what I mean here.  The movie “No Strings Attached” – well until the end, thats what I used to be like, and I wouldn’t mind going back.  Having the ice melted around my heart kinda sucks.  I actually care now and being hurt sucks.  Not that I’m hurting – its been almost two years since I last had a serious thing, and a few months since I had my single date!

13.  I miss being “tan”.  Not like getting skin cancer tan, but healthy looking.  Being paler than my really white mom who wears long sleeves outdoors at all times, because I’m stuck inside blows.  There are substitutes, but nothing is the same as soaking up some vitamin D!

I’m sure there is more, but I just can’t think right now.  I am surprised I made it all the way to 13!  I have been having a lot of cognitive problems lately.