
Oh where to begin with this. Janica is my sweetheart girl. She was born with a tethered spinal cord and has had two surgeries to correct it.

She has had a tough time with her bladder her whole life. We didn't notice it when she was still in diapers, for obvious reasons. Her bladder issues became more apparent as she grew older and kept wetting her pants. I think on her worst day she had about six accidents. That meant she had to change her pants six times. It was her fifth birthday and that was when Jason and I decided something had to be medically wrong. This wasn't Janica not wanting to go to the bathroom.

Janica had already had one surgery at this point and we took her back to the neurosurgeon to see what was going on. After numerous tests, including an MRI, the doctor concluded her spinal cord had re-tethered and back she went for surgery. This was February 2009.

Janica is such a trooper! She recovered from the surgery and went on with her life. She started kindergarten in pull-ups, since the accidents hadn't stopped, but the doctor said it could take some time. Life kept moving on.

When it was time for Janica to start 1st grade, Jason and I took her back to Primary Children's Medical Center. We wanted to learn strategies to control her constant accidents so she wouldn't be embarrassed being in school all day. They put her on medication to calm her bladder and she learned to use a catheter.

So think about it. Whenever Janica has to use the bathroom, she needs to insert a catheter into her bladder to empty it. Her bladder still doesn't send the right messages telling her when it is too full, so Janica needs to empty her bladder every two hours. This means that at school, she needs to be excused to use the bathroom. She can't make it through church without having to go to the bathroom. It isn't fair!

So that brings us to today. Janica had her yearly tests done at Primary Children's and we learned that her bladder is about 1/10th the size it should be. Where her bladder ought to hold 10 oz of urine, it only holds 1 oz. That certainly explains why it leaks out so much!
This means surgery. Again. For the third time. Life isn't fair.
The urologist will be taking a piece of her intestine and attaching it to her bladder, greatly increasing the size. She'll still need to use a catheter to empty her bladder, but it will only be every 4 -6 hours instead of every two. The surgery will last about five hours and believe me, it will be a very wrenching time for Jason and me. It is horrible to watch your baby being wheeled away on a gurney and this will be our third time.
Janica has a very positive outlook about it. She loves the idea that she'll have an xbox all to herself. She also remembers that she can eat whatever she wants. Last time, she had mashed potatoes and gravy for breakfast! I love her attitude.
I know things could be worse. I'm grateful we live so close to Primary Children's and that we have so many medical options for her. Could you imagine her life if she had been born 100 years ago? It would have been awful! She is a beautiful, smart, talented and happy girl. I think the worse tragedy would be to not know her at all.
Still, life isn't fair.