Stargardt disease awareness week serves as an opportunity to spotlight this inherited retinal condition, which causes progressive vision loss. Raising awareness is essential to fostering earlier recognition, improving access to resources, and supporting continued research efforts. We stand alongside the Stargardt community in advocating for progress, innovation, and improved patient outcomes. Graphics courtesy of Prevent Blindness
Orsini - Rare Disease Pharmacy Solutions
Pharmaceutical Manufacturing
Elk Grove Village, IL 7,984 followers
Your Leader in Rare Disease and Complex Therapy Programs
About us
Providing patients with comprehensive and compassionate care since 1987, Orsini is the leading, independent specialty pharmacy focused on rare diseases, gene therapies, and complex conditions. Orsini’s high-touch care model centers around compassionate, therapy-specific care teams who provide personalized care to patients based on their specific condition and treatment. The company’s comprehensive solutions include medication adherence programs, data analytics, customized manufacturer programs, and nationwide nursing coverage for convenient in-home infusion services. Headquartered in Elk Grove Village, IL, Orsini Specialty Pharmacy holds accreditations with the Accreditation Commission for Health Care (ACHC), NABP, and ACHC’s Distinction in Rare Diseases and Orphan Drugs. Conditions Treated Include: CLN2 Disease Molecularly Confirmed Long-Chain Fatty Acid Oxidation Disorders (LC-FAOD) Duchenne Muscular Dystrophy (DMD) Mucopolysaccharidosis (MPS) Fabry Disease Paroxysmal Nocturnal Hemoglobinuria (PNH) Growth Hormone Deficiency Pompe Disease Gaucher Disease Phenylketonuria (PKU) Hereditary Angioedema (HAE) Progressive Keratoconus Hereditary ATTR (hATTR) Spinal Muscular Atrophy (SMA) Hunter Syndrome Tardive Dyskinesia Idiopathic Pulmonary Fibrosis (IPF) X-Linked Hypophosphatemia (XLH)
- Website
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http://www.orsini.com
External link for Orsini - Rare Disease Pharmacy Solutions
- Industry
- Pharmaceutical Manufacturing
- Company size
- 201-500 employees
- Headquarters
- Elk Grove Village, IL
- Type
- Privately Held
- Founded
- 1987
- Specialties
- Rare Disease, Infusion Therapy, Specialty Pharmacy, Drug Launch, Nationwide Infusion Nursing Services, Gene Therapies, Cell Therapies, and Complex Conditions
Locations
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Primary
Get directions
1111 Nicholas Blvd.
Elk Grove Village, IL 60007, US
Employees at Orsini - Rare Disease Pharmacy Solutions
Updates
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We’re hiring at Orsini, and this role truly makes an impact. Every role here helps move a patient closer to life-changing therapy, and we’re excited to be adding an HR Administrator to our People Operations team in Elk Grove Village, IL. This is a hands-on role where you’ll support the full employee lifecycle, from onboarding and benefits to leave administration and day-to-day HR operations, all while supporting the teams that make our patient mission possible. If you’re someone who thrives in a fast-paced environment, enjoys being the go-to resource, and wants your work to truly matter—let's connect. Apply here 👇 https://lnkd.in/eTwNW4f8
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💜 Today, we recognize Hereditary Angioedema (HAE) Awareness Day by proudly highlighting our patient advocate, Jenny Barnes. Jenny's 35+ years of advocacy in this community as an HAE mother reminds us that our role as a specialty pharmacy in the patient journey is personal and meaningful, and that every interaction matters. Jenny inspires us each and every day to deliver the highest level of care, compassion, and support in honor of her late son, Jim. See her powerful story featured here: https://bit.ly/44CXNT7 🩵 We are proud to partner with advocacy organizations like the Hereditary Angioedema Association - HAEA, pharma, and our valued patients and families, who, like Jenny, are so very dedicated to raising awareness and support for the HAE community. #HAEAwarenessDay #RareDiseaseAwareness #PatientCommunity #NoPatientLeftBehind
Jenny's Story - HAE Mother & Patient Advocate
https://www.youtube.com/
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May 15 is MPS Awareness Day 💜 Raising awareness for rare diseases like mucopolysaccharidoses helps drive earlier diagnosis, better care, and improved outcomes. We are honored to share in the journeys of these patients and families by partnering in their care to dispense therapies that support this brave community. #MPSAwarenessDay #RareDisease #NoPatientLeftBehind
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Congratulations to our partners at Immedica Pharma US Inc. on the first commercial shipment of Loargys® (pegzilarginase-nbln) through our pharmacy last week. We’re proud to help deliver meaningful care to patients. Beginning in our 3PL facility before moving through our specialty pharmacy, then onward to the patient, we are reminded at every step that this shipment carries more than medicine. It delivers a measure of hope and reinforces the purpose that drives our work every day. #NoPatientLeftBehind
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We proudly spotlight the strength of the Thalassaemia community during this time of awareness ❤️ #ThalassemiaAwareness #NoPatientLeftBehind #SpecialtyPharmacy #HiddenNoMore #VisibilityVoiceValue
Today, we raise our voices for every person affected by #Thalassaemia. For those diagnosed. For those still searching for answers. For those living unseen. For every patient, every family, every caregiver, every healthcare professional, and every advocate who keeps hope moving forward. On #InternationalThalassaemiaDay 2026, we stand united in hope, solidarity, and purpose, honouring every journey, amplifying every voice, and turning a global spotlight on a condition that too often remains in the shadows. A Global Community. A Shared Voice. Together, we are #HiddenNoMore. https://lnkd.in/dR8bsD6S #ITD2026 #8May #VisibilityVoiceValue #Thalassaemia
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Congratulations to our partners at Denali Therapeutics on their first commercial shipment of AVLAYAH™ (tividenofusp alfa-eknm) through our pharmacy this week. Kierra Sanders, Orsini’s Program Manager for the AVLAYAH program, reflected on how this milestone holds special meaning for her. She began her career with Orsini as a Patient Care Coordinator supporting the Hunter syndrome community, with the goal of one day guiding “her own” therapy as a Program Manager. Her words capture her excitement for this full-circle moment: “I could barely sleep last night because I was so excited…I even got to work early.” Moments like these reflect the passion behind our work and the patients who inspire us every day.
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Big things are happening at Orsini—and our team continues to grow! If you’re looking to do meaningful work that truly impacts patients, now is a great time to join us. We’re actively hiring across several teams supporting patients and rare disease programs, including: • Compliance Analyst • Pharmacist (Illinois & Ohio locations) • Prior Authorization / Clinical Review Nurse • Sales Account Executive – Nashville Region • Specialty Pharmacy Program Analyst Check out our open roles and apply here: https://lnkd.in/guUWcsFX #TeamOrsini #SpecialtyPharmacyJobs #NoPatientLeftBehind
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We're thrilled to welcome Raquel Cabo to #TeamOrsini !
I've stepped into a newly created Chief Strategy Officer role at Orsini - Rare Disease Pharmacy Solutions, a move grounded in my focus on helping patients access therapies they’ve often waited years, sometimes decades, for. In my first few weeks getting deep into the work, what's stood out is the way Orsini works urgently to help patients get on therapy, with a high-touch, personalized model that recognizes every patient journey is different. In this space, that level of care isn’t a “nice to have”—it’s essential. I'll be leading launch implementation and shaping strategy to deliver a top-tier experience for both patients and biopharma partners- earlier in the product lifecycle and faster, with AI. Grateful to be part of a talented, deeply committed team-- excited to be working alongside Brandon Tom, Eyad Farah, Lynda Parker, Kyle Felmet, Darin DeCarlo, Nancy Marino Roche, Rose Bain, Morgan Olson, Ashok Singh, Victor J. Haddock, Ashley Keller, Matthew Behrens, Nick Calla, Joseph Owen See for yourself 👇 #NoPatientLeftBehind #RareDisease #Leadership
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This Mental Health Awareness Month, we honor the strength it takes to navigate both the visible and invisible challenges our patients and families living with rare disease face every day 💚 #MentalHealthAwarenessMonth #RareDisease #MHAM2026 #NoPatientLeftBehind
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