Drugs for Neglected Diseases initiative (DNDi)’s Post

🤔 How can patient and community perspectives help shape better clinical research? This was one of the key questions guiding discussions at last week's India Community Advisory Committee (ICAC) meeting in New Delhi.    Bringing together people with lived experience of neglected diseases, researchers, health professionals, caregivers, and advocates, the meeting created a space to discuss community priorities, treatment experiences, and how to strengthen patient and community engagement across DNDi’s work. Key highlights from the meeting:  👉 Discussed what meaningful community engagement looks like and how patient perspectives can be better integrated into research   👉 Shared experiences and lessons from working with communities across different disease areas and settings   👉 Identified priorities and developed a roadmap for the year ahead, including opportunities for engagement, collaboration, and contribution across DNDi's work.   👉 Strengthened communication skills through sessions on storytelling, media engagement, and effective communication    We were also pleased to welcome Blessina Kumar, CEO of the Global Coalition of TB Advocates (GCTA), who shared practical insights on community engagement and the importance of meaningful patient participation in clinical research.    🙏 Thank you to all ICAC members for their time, insights, and continued commitment. We look forward to building on these discussions and strengthening community engagement in the year ahead.     #CommunityEngagement #PatientVoices #PatientEngagement #GlobalHealth #NeglectedDiseases Sanjay Sarin | Minati Chaklanavis | Surinder Jaswal | Neha Kumari | rachna kumari | Rajni Singh | Shabana Patel | Diogo Galvão | Craig Tipple