BBMRI-ERIC

🗣️ Zisis Kozlakidis, National Node Director at BBMRI.IARC, presented at TEDx MedUniGraz this week with the question "Do algorithms design future ready healthcare systems"? 🤝 Inspired by the work of the canSERV project, he discussed the levels of digital engagement between hospitals, research infrastructures and the general public and the need for improvements to benefit the entire healthcare ecosystem. #ideaschangeeverything #TomorrowStartsNOW #tedxmedunigraz

📢 Special Project Thursday announcement for EU-CiP: The EU Cancer Information Portal Project 🤝 Together with our many consortium partners, we at #BBMRI-#ERIC are building the #EU #CancerInfoPortal a central hub to house scientifically sound, accessible and reliable information about cancer. ❓ Curious HOW we are doing this? 🧩 Our fresh project website explains it step by step: https://buff.ly/a02aPsO 🔎 Explore the new "How the EU-CIP project works" page to learn about: ❗️The content creation group & board who curate accurate information on all stages of a cancer patient’s journey. ❗️How state-of-the-art technology will be used to create a portal serving diverse needs with reliable, evidence-based information in lay-term language across Europe ❗️The development of the national implementations in European countries. ❗️Why social sciences and humanities (SSH) play a central role to address challenges of health literacy promotion, patient empowerment, and information accessibility. 🗞️ Stay tuned for regular #project #news and more in-depth info on how the project builds synergies with our sister projects CANDLE Project and UNCAN-Connect as part of EU Mission: Cancer and Europe’s Beating Cancer plan. #MissionCancer #EUMissions #HorizonEU

Last week, BBMRI-ERIC's Petr Holub, Head of IT, contributed to the James Read Memorial Lecture at #SNOMEDCT in Antwerp. Peter discussed how international interoperability is vital for BBMRI-ERIC. Building a relationship between BBMRI and SNOMED communities will help to leverage the well-maintained SNOMED ontologies to make the data of healthcare-integrated biobanks and biomolecular resources easier to locate and reuse by research communities. #SCTExpo25

🔬 BBMRI-ERIC’s Dr. Saba Abdulghani, Head of Biobanking Development, was delighted to participate in the Conference of the #ISCIII Platforms supporting R + D + i in Biomedicine and Health Sciences in Salamanca, Spain - organised by Platform ISCIII Biomodels and Biobanks, the Spanish Clinical Research Network (SCReN) and ITEMAS. 🚀 She spoke about on how RIs can drive Europe’s innovation and competitiveness.

👋 Welcome back to our #ProjectThursday 💡 We collect the latest news from the biobanking world for you here every Thursday. Enjoy! 🤝 💡 CANDLE Project 👋 #CANDLE started a post series to highlight the key aspects of each work package. 🔗 https://buff.ly/1iq3t6y And don't miss the cBioPortal Symposium co-organised by #CANDLE 📆 11 Nov 🔗 https://buff.ly/51EYXaz 💡 EP PerMed - the European Partnership for Personalised Medicine On 28 Oct, #EPPerMed organised an info day about the Research, Innovation and Technology Call (RITC) 2026 which will fund innovation projects in human health focusing on multimodal data usage for #PersonalisedMedicine approaches 🎥 recording & slides: https://buff.ly/qEsz6ec 🔗 More details: https://buff.ly/fxrepBL 💡 EP PerMed - the European Partnership for Personalised Medicine 𝐂𝐚𝐥𝐥 𝐏𝐫𝐞-𝐀𝐧𝐧𝐨𝐮𝐧𝐜𝐞𝐦𝐞𝐧𝐭❗ #𝘌𝘗𝘗𝘦𝘳𝘔𝘦𝘥 𝘑𝘰𝘪𝘯𝘵 𝘛𝘳𝘢𝘯𝘴𝘯𝘢𝘵𝘪𝘰𝘯𝘢𝘭 𝘊𝘢𝘭𝘭 (𝘑𝘛𝘊) 2026 - #𝘗𝘦𝘳𝘴𝘰𝘯𝘢𝘭𝘪𝘴𝘦𝘥𝘔𝘦𝘥𝘪𝘤𝘪𝘯𝘦 𝘧𝘰𝘳 𝘊𝘈𝘙𝘥𝘪𝘰𝘷𝘢𝘴𝘤𝘶𝘭𝘢𝘳, 𝘔𝘌𝘵𝘢𝘣𝘰𝘭𝘪𝘤, 𝘢𝘯𝘥 𝘬𝘪𝘥𝘕𝘦𝘺 𝘥𝘪𝘴𝘦𝘢𝘴𝘦𝘴 (𝘊𝘈𝘙𝘔𝘌𝘕2026) With this JTC2026, #EPPerMed will fund research projects in human health on innovative personalised medicine strategies for patients with #cardiovascular #metabolic or #kidney diseases 🚀 Launch: 25 Nov 2025. 🔗 Read more on LinkedIn: https://buff.ly/mBvNYkb 💡 ERIC Forum 🇪🇺 The #ERICForum2 project hosted an online webinar to promote synergies between #ERICs and National Contact Points' networks, ultimately resulting in stronger proposals and a better use of Research Infrastructures resources in European-funded projects. 🔗 Read more on LinkedIn: https://buff.ly/JRx8Wdr 💡 ERDERA #ERDERA co-hosted the workshop “Innovative methodological approaches accelerating rare diseases drug development: bridging data, innovative design, and decision-making.” at the World Orphan Drug Congress 2025 🔗 Here's a news article with highlights from the workshop: https://buff.ly/FFSyj2o 💡 ERDERA Join the 2nd International Conference on Clinical Research Networks for Rare Diseases "Mobilising the global rare disease clinical research ecosystem", co-organised by #ERDERA 📅 9–10 Dec 2025 🔗 Programme & registration: https://buff.ly/wF4aowu 💡 Genomic Data Infrastructure (GDI) What is federated analysis? And what are its benefits? 🎥 The GDI project released an explainer video introducing the concept and importance of the 1+MG #FederatedAnalysis infrastructure. 🔗 https://buff.ly/uF9WDC2 💡 INTERVENE 🤖 AI model predicts 1-year mortality risk for everyone in Finland but raises key ethical questions As part of the #INTERVENE project, researchers developed an AI model that analysed data from over 5.4 Mio people and 8k factors to predict the risk of dying within a year. 🔗 Full article: https://buff.ly/PYSJpcI 🔗 More info on LinkedIn: https://buff.ly/M59rCMJ That’s a wrap! 👋 See you here next week 🧡💙

📣 Last week, our #ELSISymposium 2025: "Ethical, Legal, and Societal Aspects in View of Recent EU Legislation" brought together experts from across Europe and beyond. 🤝 We were delighted to host many colleagues from the BBMRI ELSI Helpdesk Network as National Node experts, alongside other experts beyond the Network, including participants from Japan, Colombia and South Africa. Meetings like this are crucial for nurturing and strengthening our outstanding community of experts. 🎤 A special thank you to our keynote speakers and all organisers, especially Pilar Nicolás, National ELSI expert for Spain, for her dedication in bringing the Symposium to Bilbao. 🧬 The event also highlighted the importance of continuing interdisciplinary exchanges on EHDS. With contributions from lawyers, bioethicists, patient representatives, social scientists and biomedical professionals, we can navigate EHDS’s challenges and opportunities, clarify regulatory frameworks and ensure that health data is used responsibly while safeguarding individual and community rights. EHU, Università degli Studi di Milano-Bicocca, Platform ISCIII Biomodels and Biobanks

📰 Welcome back to #NodeTuesday: We sweep the socials to curate these #biobanking gems for you. Sit back, relax and be in the know on the latest community news. 📅 BBMRI.be - Registrations are now open for the BBMRI.be Annual Meeting 2025, taking place on November 26th at UZ KULeuven, where professionals across the Belgian biobank landscape will connect, collaborate and shape the future of biobanking together: https://buff.ly/UTU6MJN 🗞️ biobank.cy Center of Excellence in Biobanking and Biomedical Research - The latest edition of the biobank.cy newsletter is out now, featuring key updates, highlights and insights from across the community: https://buff.ly/n9wi1P2 🏥 BBMRI.cz - Síť českých biobank - The Oncopatient 2025 Conference was held in Prague, where Kateřina Nováková and Veronika Guziurová had the opportunity to present and discuss prevention programs and biobanking at the stand: https://buff.ly/KrjTQgA 🧬 German Biobank Network (GBN) - Registration is now open for the NUM Convention 2026 on 21-22 January in Berlin, where the GBN will take part with sessions on biobanking and its importance for translational research: https://buff.ly/K0pgZgA 🔬 BBMRI.nl - A new Radboudumc study highlights reporting gaps in biobank-based biomarker research, noting missing key pre-analytical details and calling for better standards to boost reproducibility and support BBMRI.nl’s efforts to harmonise biobanking in the Netherlands: https://buff.ly/RtSMawq 💡 Instituto de Salud Carlos III - The III ISCIII Platforms Conference opened in Salamanca, showcasing the SCReN, ISCIII Biomodels and Biobanks and ITEMAS in supporting research, innovation and knowledge transfer to Spain’s National Health System: https://buff.ly/799wU8e

💼 #WeAreHiring 📝 Public Affairs Officer (f/m/d). As a member of the Public Affairs department, you will work with representatives of BBMRI-ERIC Member States, Observer countries and those that may join in the future; engage with BBMRI-ERIC’s central and scientific services; contribute to the implementation of the BBMRI-ERIC Roadmap; work on different EU projects and support other Public Affairs activities. 📍 Preferably on site in Graz, Austria 🔗 https://buff.ly/1F6klwT

🌍 This week, BBMRI-ERIC's Jana Pavlič-Zupanc, Head of Public Affairs, attended the #RTISummit, hosted under the Danish Presidency of the Council of the EU 2025.   🤝 The summit brought together leaders from across Europe to discuss the future of #RIs and #TIs and to present the new European strategy in this field - for our part, we were especially excited to connect with members of the community at the LS-RI booth.

👋 Welcome back to our #ProjectThursday 💡 We collect the latest news from the biobanking world for you here every Thursday. Enjoy! 🤝 💡 #Diamonds 🗞️ A recent multinational study leveraged the power of the #DIAMONDS biobank to explore how pandemic-related restrictions affected immune development in early childhood. 🔗 More info on the website: https://buff.ly/zWwR1R1 💡 EP PerMed - the European Partnership for Personalised Medicine ❗️ 𝐎𝐧𝐥𝐢𝐧𝐞 𝐌𝐚𝐭𝐜𝐡𝐦𝐚𝐤𝐢𝐧𝐠 for the #EPPerMed 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡, 𝐈𝐧𝐧𝐨𝐯𝐚𝐭𝐢𝐨𝐧 𝐚𝐧𝐝 𝐓𝐞𝐜𝐡𝐧𝐨𝐥𝐨𝐠𝐲 𝐂𝐚𝐥𝐥 𝐟𝐨𝐫 𝐏𝐫𝐨𝐩𝐨𝐬𝐚𝐥𝐬 (𝐑𝐈𝐓𝐂) 2026 - 𝘛𝘦𝘴𝘵 𝘢𝘯𝘥 𝘋𝘦𝘮𝘰𝘯𝘴𝘵𝘳𝘢𝘵𝘪𝘰𝘯 𝘰𝘧 𝘔𝘶𝘭𝘵𝘪𝘮𝘰𝘥𝘢𝘭 𝘋𝘢𝘵𝘢 𝘈𝘱𝘱𝘳𝘰𝘢𝘤𝘩𝘦𝘴 𝘧𝘰𝘳 #𝘗𝘦𝘳𝘴𝘰𝘯𝘢𝘭𝘪𝘴𝘦𝘥𝘔𝘦𝘥𝘪𝘤𝘪𝘯𝘦 🤝 The partnering tool helps connect with relevant organisations and build a strong, eligible consortium to apply for the #EPPerMed RITC2026. 🔗 Details on LinkedIn: https://buff.ly/aYhuhOS 🔗 Online Info Day on 28 Oct will introduce the #EPPerMed Research, Innovation and Technology Call for Proposals (RITC) 2026: https://buff.ly/C1BSTxM 💡 EP PerMed - the European Partnership for Personalised Medicine 📢 Submitting "Advances and Learnings in #PersonalisedMedicine" (APMs) ❗️Publishing APMs helps communicating the benefits of Personalised Medicine to the informed public. 🔗 More info on the website: https://buff.ly/3E9ntp6 💡 ERDERA #ERDERA 2026 Call for Proposals pre-announcement 🚀 💡 Call theme: “Resolving unsolved cases in rare genetic and non-genetic diseases through variant validation and new technological approaches.” 🔗 Read more on LinkedIn: https://buff.ly/WqHq3xy 💡 ERDERA 📢 #ERDERA Open Session: 📆 30 October ⏰ 9:00–11:20 CET. 🔗 More info on LinkedIn: https://buff.ly/99MkMNL 💡 EuCanImage 🎙️ In the next BBMRI-ERIC ELSI session, Karim Lekadir, #EUCANIMAGE coordinator, and Maciej Bobowicz, clinical WP leader, share experiences developing and using #AI tools in real-world #CancerResearch / care. 📆 28 Oct ⏰ 2 pm CET 🔗 Event page: https://buff.ly/2RfnWhD 💡 PROPHET.EU 🗞️ New paper "Scanning the horizon of personalised prevention research: an overview of ongoing European funded initiatives" 🔗 More info on LinkedIn: https://buff.ly/XPNtOWq 💡 RI-SCALE Read about the recent 𝐑𝐈-𝐒𝐂𝐀𝐋𝐄 𝐃𝐄𝐏 𝐖𝐨𝐫𝐤𝐬𝐡𝐨𝐩: 𝐒𝐡𝐚𝐩𝐢𝐧𝐠 𝐭𝐡𝐞 𝐅𝐮𝐭𝐮𝐫𝐞 𝐨𝐟 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐈𝐧𝐟𝐫𝐚𝐬𝐭𝐫𝐮𝐜𝐭𝐮𝐫𝐞 𝐃𝐚𝐭𝐚: 🔗 More info on LinkedIn: https://buff.ly/1k4gM2f 💡 QUANTUM Recording of the 4th QUANTUM Patients & Citizens Forum session, dedicated to the latest developments around the #EHDS 🔗 More on LinkedIn: https://buff.ly/FNjE5lD 💡 QUANTUM 👋 Join the 3rd QUANTUM Project Forum on 28 Oct. 🔗 More info on LinkedIn: https://buff.ly/FNjE5lD 💡UNCAN-Connect 🥳 Highlights from the #UNCAN-Connect Kick-Off in Tallinn: https://buff.ly/Jv5G7DK That’s a wrap! 👋 See you here next week 🧡💙