UCB

Nearly a decade to diagnosis. That’s the reality for many people living with axial spondyloarthritis (axSpA). At UCB, we believe that’s far too long. That’s why we have partnered with University Health Network to launch FASTRAX, a global digital initiative designed to accelerate diagnosis, streamline referrals, and redesign the axSpA care pathway. FASTRAX is active in several countries including Canada, France, the UK and the US, each tailored to address specific healthcare system dynamics. #DigitalHealth #HealthInnovation #FASTRAX #UCB

At UCB, we are dedicated to supporting those living with Thymidine Kinase 2 deficiency (#TK2d), an ultra-rare, life-threatening, genetic mitochondrial disease characterized by progressive and severe muscle weakness that can worsen over time. Learn more about our commitment to the TK2d community: https://lnkd.in/ej_mdYUk

FOR MEDIA ONLY: FDA approves new treatment option for Thymidine Kinase 2 deficiency (#TK2d), with symptom onset on or before 12 years. For full details: https://lnkd.in/evNZPZKV

#LGSAwarenessDay is an opportunity to recognize that developmental and epileptic encephalopathies (DEEs), such as Lennox-Gastaut syndrome (LGS), are about #MoreThanSeizures. These conditions take a toll on the parents of children living with the condition. We spoke to Eileen Devine, a therapist and founder of Brain First Parenting, which supports parents of children with serious and complex neurobehavioral conditions. Learn more about how DEEs are about more than seizures https://lnkd.in/ehnyK4CV 

On #LGSAwarenessDay, we’re shining a light on Lennox-Gastaut syndrome (LGS), a rare and severe condition that profoundly affects the lives of patients and their families. We are committed to improving our understanding of LGS, with the shared goal that every person has the chance to live their life to the fullest.  Learn more about LGS here https://lnkd.in/e8y2amRZ 

Lennox-Gastaut syndrome (LGS) is about #MoreThanSeizures. Imagine the knock-on effect on a child because their parents are focused on managing their sibling’s seizures. Studies show siblings of children living with LGS face psychological challenges, with parents expressing concerns that they have to grow up too fast, miss out on holidays and don’t receive enough attention. #LGSAwarenessDay You can find out more here https://lnkd.in/ehnyK4CV

“Sometimes, we might have the impression that people with MG are managing just fine with supportive care, but what we don't see behind the scenes is an enormous amount of energy and effort for people with MG to show up every day.” Hear more from Anna Kole, Global Patient Engagement Lead for MG at UCB, as she explains how the resilience and strength of the #MG community inspires her in her daily work with advocacy organizations. Through the #FacesOfMG campaign, we are sharing stories of those deeply connected to this rare, chronic, neuromuscular condition, that without this additional recognition could go under the radar. Find out more at https://lnkd.in/ecG9fvhK

At UCB, we’re passionate about improving the lives of those living with #MyastheniaGravis (MG) – a rare, neuromuscular condition that targets the connections between the nerves and the muscles. As part of our ongoing support with the #MG community, we launched the ENGAGE Program, an immersive learning experience for healthcare professionals (HCPs) that utilizes virtual reality to better understand the impact MG has on patients’ lives. As part of the program, we conducted a survey aimed to identify the barriers in patient-HCP dialogue that could affect shared decision-making and overall care. Find out more about our program and our findings: https://lnkd.in/dimQGB-2 #RareDisease

At UCB, we believe the experiences of those living with chronic diseases, like lupus, should drive innovation - in particular when it comes to supporting women of childbearing age. Meet Lynette, a passionate lupus community leader and advocate, whose early access to peer support and reliable information empowered her to take charge of her health. “Anything is possible when you're driven.” Lynette’s story is a powerful reminder of how healthcare professionals play a critical role - not only in care, but in fostering confidence, education, and participation in research. Watch to hear more. #WomensHealth #Rheumatology #InclusiveResearch 

This year’s World Psoriasis Day #WPD2025 theme, ‘understanding the domino effect,’ reminds us that psoriatic disease is more than a skin condition, it is a lifelong, systemic disease that can lead to multiple health complications, creating a domino effect on overall health. Hear Prof. Griffiths’ expert opinion on why early intervention and inflammation control is vital to improving outcomes and enhancing quality of life for people living with psoriatic disease. #WPD2025 #StopTheDominoEffect #PsoriaticDiseaseComorbidities #PsoriasisAwareness