Rare Disease Foundation
Research
Vancouver, British Columbia 5,839 followers
For people with rare or undiagnosed conditions, Research IS Care. https://linktr.ee/Rarediseasefdn
About us
One in 12 people will be affected by a rare disease in their lifetime and children bear the brunt of this burden. The Rare Disease Foundation bridges the gap between research and care for children with rare diseases, funding inspired patient-focused research projects poised to directly impact their care and quality of life. Our vision is to transform the world of rare disease care. The Rare Disease Foundation empowers parents to solve problems that are commonly seen in the rare diseases by linking parents together locally and on the web with our Parent 2 Parent Resource Networks. We are always looking to expand so please contact us if you wish to start a group in your area.
- Website
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http://www.rarediseasefoundation.org
External link for Rare Disease Foundation
- Industry
- Research
- Company size
- 11-50 employees
- Headquarters
- Vancouver, British Columbia
- Type
- Nonprofit
- Founded
- 2009
- Specialties
- Organizing cross-disease resource networks and Translational care
Locations
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Primary
Get directions
C234, 4500 OAK ST.
Vancouver, British Columbia V6H 3N1, CA
Employees at Rare Disease Foundation
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Millan Patel
Chief Medical Officer at Rare Disease Foundation
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Eric Schofield
Education / Culinary Arts / Food Literacy / Climate Change / Future of Food / Eco-Anxiety / Human Geography / Social and Emotional Learning / Mental…
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Beth Leahy
Accountant at Rare Disease Foundation
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AB TEB
Medical equipment