Examining Traumatic Brain Injury as a Chronic Condition: Proceedings of a Workshop (2025)

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Appendix B Workshop Agenda March 11, 2025 INTRODUCTION Objectives • Explore the evidence for characterizing TBI as a chronic condition. • Assess the current state of care and services that are available, as well as alignment with the needs of those living with the lasting effects of TBI across the life span. • Examine opportunities to advance research and improve care and services for individuals living with the lasting effects of TBI as well as their families. 10:00 am Welcome and Introductory Remarks Odette Harris, Planning Committee Chair 10:10 am Video—Perspectives of Individuals Living with Chronic TBI Symptoms 10:15 am Keynote Speaker John Corrigan, Ohio State University 89 PREPUBLICATION COPY—Uncorrected Proofs 

90 EXAMINING TBI AS A CHRONIC CONDITION Discussion SESSION 1—EPIDEMIOLOGY OF TRAUMATIC BRAIN INJURY AS A CHRONIC CONDITION Objectives • Assess the current evidence on the incidence and prevalence of long-term symptoms and/or disabilities following TBI across dif- ferent populations. • Describe what is known about characteristics and biological and sociodemographic factors associated with developing chronic symptoms or disabilities over the life course. • Identify scientific knowledge gaps and other barriers that impede a comprehensive understanding of TBI as a chronic condition. 10:35 am Session Introduction Kristin Dams-O’Connor, Planning Committee Member Presentation Andrea Schneider, University of Pennsylvania Perelman School of Medicine Angelle Sander, Baylor College of Medicine Discussion SESSION 2—NEUROPATHOPHYSIOLOGICAL MECHANISMS UNDERLYING TBI AS A CHRONIC CONDITION Objectives • Examine the state of the evidence on the biological basis for TBI as a chronic condition. • Identify research gaps or barriers to advancing understanding of the lasting health effects of TBI. 11:35 am Session Introduction Amy Wagner, Planning Committee Member Presentation David Loane, Trinity College Dublin Amy Wagner, Planning Committee Member PREPUBLICATION COPY—Uncorrected Proofs 

APPENDIX B 91 Discussion 12:35 am Break SESSION 3— EVIDENCE ON OUTCOMES AND COMORBIDITIES ASSOCIATED WITH TBI AS A CHRONIC CONDITION Objectives • Examine the evidence on common symptoms and co-occurring health conditions associated with TBI as a chronic condition over the life course. • Identify knowledge gaps and barriers that impede a comprehensive understanding of TBI as a chronic condition. • Discuss the compounding contributions of TBI sequalae on func- tional outcomes and quality of life, as well as their effect on access to and management of care. 12:55 pm Video—Perspectives of Individuals Living with Chronic TBI Symptoms 1:00 pm Session Introduction Jeanne Hoffman, Planning Committee Member Presentation Charles Bombardier, University of Washington Mary Jo Pugh, University of Utah Tamara Wexler, New York University Saef Izzy, Brigham and Women’s Hospital Raquel Gardner, Sheba Medical Center, Israel, Discussion 2:15 pm Break SESSION 4— GAPS IN THE CURRENT LANDSCAPE OF REHABILITATIVE CARE AND SPECIALIZED SERVICES FOR TBI AS A CHRONIC CONDITION Objectives • Discuss current care pathways and services available to address outcomes associated with TBI as a chronic condition. • Identify gaps and points of failure in the current landscape of care and specialized services. PREPUBLICATION COPY—Uncorrected Proofs 

92 EXAMINING TBI AS A CHRONIC CONDITION • Explore barriers to timely access to care and services. 2:25 pm Video—Perspectives of Individuals Living with Chronic TBI Symptoms 2:30 pm Session Introduction Stacy Susakuer, Planning Committee Member Presentation Joel Scholten, Department of Veterans Affairs Mark Ashley, Centre for Neuro Skills Tolu Oyesanya, Duke University School of Nursing Rebecca Quinn, University of North Dakota School of Medicine & Health Sciences Derek Fales, Planning Committee Member Shannon Juengst, University of Texas, Houston Discussion CONCLUSION OF DAY 1 3:20 pm Closing Remarks by Workshop Chairs Odette Harris, Workshop Chair 3:30 pm Workshop Day 1 Concludes March 12, 2025 INTRODUCTION 10:00 am Welcome and Introductory Remarks Odette Harris, Planning Committee Chair SESSION 5—OPPORTUNITIES FOR THE USE OF CHRONIC CARE MODELS FOR TBI Objectives • Discuss recent findings on the use of specialized chronic care mod- els for TBI. PREPUBLICATION COPY—Uncorrected Proofs 

APPENDIX B 93 • Explore essential characteristics of an ideal care model that could be brought to scale. 10:10 am Session Introduction and Presentation Risa Nakase-Richardson, Planning Committee Member Speaker: Flora Hammond, Indiana University School of Medicine Discussion Panel Judy Dettmer, NASHIA Kelli Gary Talley, Planning Committee Member Eric Spier, Craig Hospital Helene Moriarty, Villanova University, Corporal Michael J. Crescenz VA Medical Center, Philadelphia Derek Fales, Planning Committee Member 11:15 am Break SESSION 6— NEAR-TERM OPPORTUNITIES TO IMPROVE CARE FOR TBI AS A CHRONIC CONDITION Objectives • Review gaps and challenges identified by speakers and workshop participants on Day 1 relating to the current state of care and ser- vices for TBI as a chronic condition. • Identify near-term actions to improve care and services for all people living with the lasting effects of TBI across the life course. 11:30 am Session Introduction Flora Hammond, Planning Committee Member Discussion Panel Owen Perlman, Planning Committee Member John Corrigan, The Ohio State University Shannon Juengst, University of Texas, Houston Judy Dettmer, NASHIA PREPUBLICATION COPY—Uncorrected Proofs 

94 EXAMINING TBI AS A CHRONIC CONDITION SESSION 7— NEAR-TERM OPPORTUNITIES TO ADVANCE RESEARCH ON TBI AS A CHRONIC CONDITION Objectives • Review research gaps and challenges identified by speakers and workshop participants on Day 1. • Identify near-term actions to advance a comprehensive understand- ing of TBI as a chronic condition and inform the development of new approaches to treatment and prevention. 12:10 pm Session Introduction Ramon Diaz-Arrastia, Planning Committee Member Discussion Panel Angelle Sander, Baylor College of Medicine David Loane, Trinity College Dublin Jeanne Hoffman, Planning Committee Member CONCLUSION 12:50 pm Closing Remarks by Workshop Chairs Odette Harris, Workshop Chair 1:00 pm Workshop Day 2 Concludes PREPUBLICATION COPY—Uncorrected Proofs