Rare Disease Day

🌍 There’s still time! Join us next week to discover everything we’ve created for #RareDiseaseDay 2026 and start planning campaign activities in your national context. We can’t wait to show you our new social media designs, updated advocacy toolkits, expanded multilingual resources, and much more! 🗓️ Can't join because of the time difference? We are hosting two identical sessions to accommodate different time zones: 27 & 28 October. 👉 Register now: https://lnkd.in/er8HQtkQ #RareDiseaseDay #ShareYourColours #RareDiseases #GlobalHealth #Community #equity

💙We’re committed to making Rare Disease Day content as inclusive as possible. Our webinar from last year, “Enhancing Accessibility in Physical and Digital Spaces” has been re-released with subtitles in 12 languages to ensure more voices can join the conversation. Learn from accessibility experts about the barriers in, but most importantly the solutions to, creating accessible physical and digital spaces for people in the rare disease community. 👉Watch now and share with your networks: https://lnkd.in/dT67HrGf #RareDiseaseDay #Accessibility #Equity #Inclusion

🧠This #WorldMentalHealthDay, we highlight the often-overlooked impact of living with a rare disease on mental wellbeing. The connection between physical and mental health is complex, with each influencing the other. Mental struggles can manifest physically, just as poor physical health can impact mental wellbeing leading to elevated rates of depression, anxiety, and stress amongst our community. Additionally, many rare diseases also manifest with a mental health condition as a comorbidity. 👉 That is why mental health must be part of the conversation! Read more about what it’s like to live with a rare disease: https://lnkd.in/eCXsFYTm #WorldMentalHealthDay #RareDiseaseAwareness #MentalHealth

The countdown is on! ⏰ With 20 November — our official launch day — fast approaching, we’re excited to introduce our new social media designs, updated advocacy toolkits, and expanded multilingual resources! Discover everything we’ve created, and now made available for download, and start planning your campaign activities in your national context. 🗓️ Can't join because of the time difference? We are hosting two identical sessions to accommodate different time zones: 27 & 28 October. 👉 Register now: https://lnkd.in/ee3KwyW5 #RareDiseaseDay #ShareYourColours #RareDiseases #GlobalHealth #Community #equity

We’re back, bigger and better than ever! 💡 Last year's Rare Disease Day webinar on ‘Engaging Healthcare Professionals (HCPs)’ has just been re-released in bitesize clips, all of which are available with subtitles in 12 languages! The session explored strategies from four nations, Serbia, Ukraine, Malaysia and Japan, that strengthen collaboration between healthcare professionals and the rare disease community. The new, translated format ensures this important advice is accessible and convenient to learn, inspiring communities across the world to connect with healthcare professionals in their area. 👉 Watch now and share with your networks: https://lnkd.in/ey7C6W_Z Not yet available in your language? Get in touch! #RareDiseaseDay #Accessibility #Equity #Inclusion Stefan Živković, NORBS - National Organisation for Rare Diseases of Serbia. Nadiah Hanim Abdul Latif, Malaysian Rare Disorders Society (MRDS), Yukiko Nishimura

Equity means recognising that each person starts from a different place – and providing the right support, resources, and opportunities so everyone can reach fair outcomes. For the 300 million people living with a rare disease worldwide, achieving equity means: ✔️ Timely access to diagnosis, treatment, and lifelong care ✔️ Social participation free from stigma and discrimination ✔️ Full inclusion in education, work, and community life Equality treats everyone the same. Equity removes the barriers that prevent people from participating on equal terms – so that no one is left behind. This Rare Disease Day, we are calling for action to remove these barriers and create a fairer, more inclusive world for everyone living with a rare disease. 🔗 Explore the campaign toolkit and join the movement: https://lnkd.in/eRWcqKH6 #EquityForRare #RareDiseaseDay #ShareYourColours #HealthEquity

Rare Disease Day, held every year on the last day of February (either the 28 or 29 February—the rarest day! 💫), is a global awareness raising movement dedicated to achieving equity in healthcare, social opportunities, diagnosis, and treatments, for the 300 million people living with a rare disease worldwide. Launched in 2008 and coordinated by EURORDIS-Rare Diseases Europe alongside 70+ national patient alliances, this day brings together a diverse, international, and united community: patients, families, caregivers, researchers, clinicians, and advocates. 🔦 Why it matters: People living with rare diseases face unique challenges and often go unseen. Rare Disease Day shines a light on their stories, needs, and rights, driving change at local, national, and global levels. ✅ How you can help: 📣 Share the campaign online 🏛️ Illuminate landmarks 🗣️ Share your experiences 📬 Call on policymakers 💬 Start conversations at work or school Together, we can create a more inclusive world, one where no one is left behind. 🔗 Learn more about how to get involved: https://lnkd.in/eAmmCK58 #RareDiseaseDay #ShareYourColours #EquityForRare #RareButNotAlone

A disease is considered rare when it impacts fewer 1 in 2,000 people. But, did you know that over 300 million people worldwide are living with a rare disease? That’s 3.5%-5.9% of the world’s population! They may be rare, but their impact is wide-reaching and deeply personal, and for many, diagnosis and treatment are still out of reach. This is why awareness matters. This is why you matter! 💙Support #RareDiseaseDay 💚Learn more: https://lnkd.in/eAmmCK58 #SupportRare #RareIsMany #HealthEquity #RareDiseaseAwareness

🚨 Just a few days left! 🚨 We’re inviting industry leaders to join us for an exclusive first look at the 2026 Rare Disease Day campaign during our upcoming webinar. Learn how your company can play a key role in a global effort to raise awareness, drive innovation, and create positive change for the rare disease community. This is your opportunity to align with a movement that makes real impact. 🚀 🔗 Reserve your place now: https://lnkd.in/ejU3ayvn #RareDiseases #LifeSciences #IndustryEngagement #GlobalHealth #StrongerTogether #RaisingAwareness

📣 Calling all industry representatives: join us for an exclusive first look at #RareDiseaseDay 2026! You are warmly invited to register for a special introductory webinar revealing the vision and strategic direction for next year’s campaign. We’ll share key insights from 2025, unveil the concept for 2026, and wrap up with a Q&A to better align on how we can amplify impact together. 🗓️ 21 July 2025 ⏰ 15:00 CET 💬 Webinar: Rare Disease Day 2026 – Concept Introduction ➡️ Register now: https://lnkd.in/ejU3ayvn #RareDiseases #RaisingAwareness #global #community