Canadian Organization for Rare Disorders
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Personal Information
Organization / Workplace
Toronto, Ontario Canada
Industry
Medical / Health Care / Pharmaceuticals
Website
www.raredisorders.ca
About
CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.
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Presentations

(252)
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Access to Drugs for Rare Diseases in Canada - April 2014

11 years ago • 1776 Views

Update: National Plans for Rare Diseases

10 years ago • 1408 Views

Funding of Drugs for Rare Diseases Provincial Program Perspective

10 years ago • 689 Views

CORD Rare Disease Patient Survey

10 years ago • 1642 Views

ROC POP Working with Rare Diseases as Extreme Expressions of Common

10 years ago • 1489 Views

Managed Access: What Should It Look Like & How Are We Doing

10 years ago • 271 Views

David page cord standards of care 05 03-2015

10 years ago • 448 Views

Multidisciplinary teams for diagnosis and treatment of children (and adults) with inborn errors of metabolism

10 years ago • 1391 Views

Managed Access Programs: Timely, Appropriate, Sustainable Access for Rare Disease Drugs

10 years ago • 664 Views

Vers une Stratégie québécoise en matière de maladies rares

10 years ago • 218 Views

A Brief History of the CDFI

10 years ago • 389 Views

Customized Patient Care through Patient Support Programs for Rare/Orphan Drugs

10 years ago • 1256 Views

Strategy for Rare Diseases in Canada Where are we now? What else is needed?

10 years ago • 567 Views

Your input on the Goals Feedback, metrics and priority actions

10 years ago • 218 Views

How Is Canada doing? CDR-Evaluated Drugs for Rare Diseases

10 years ago • 384 Views

Canada's path forward for rare diseases: Discovery to translation

10 years ago • 538 Views

The Scleroderma Patient-centered Intervention Network: SPIN

10 years ago • 885 Views

Clinical Trials on Repurposed Treatments for Immediate Incorporation into Clinical Use

10 years ago • 785 Views

ECOGENE-21 translational research in genetics and omic sciences for application to clinical practice at the community level

10 years ago • 10321 Views

Grant Reviewing: The Experience of a Parent

10 years ago • 259 Views

E-Rare project “RNA-ALS”

10 years ago • 1071 Views

Ocular gene transfer:Developing an ethical framework to communicate clinical trial information to patients and families

10 years ago • 373 Views

IRDiRC: progress and expectations

10 years ago • 342 Views

Pediatric Vasculitis Initiative (PedVas) A CIHR Emerging Team Grant in Rare Disease (2012)

10 years ago • 1182 Views

Cardiac Arrhythmia Conditions: Finding Causes with Microgrants

10 years ago • 569 Views

Individualized Patient Individualized Patient Outcomes: Goal Attainment Scaling

10 years ago • 1123 Views

Partnering with industry: how to engage in ‘win-win’ collaborations

10 years ago • 446 Views

Effective Patient Advocacy: Problem + Solution = Collaboration

10 years ago • 2222 Views

Patient Input: What is asked for and what is helpful in a patient submission

10 years ago • 530 Views

Health Coach Brief Overview

10 years ago • 339 Views

Documents

(2)

Afternoon Session: Jan 31, 2018 A Consultation on Patented Medicine Prices Review Board & Biologic Medicines

7 years ago • 101 Views

Afternoon Session: Score Card

7 years ago • 165 Views
Personal Information
Organization / Workplace
Toronto, Ontario Canada
Industry
Medical / Health Care / Pharmaceuticals
Website
www.raredisorders.ca
About
CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada.