Advocacy and the NDIS Jim Simpson

Advocacy and the NDIS Jim Simpson

• 1.
  Making Australia betterfor people with intellectual disability Systemic advocacy
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  NSW CID Who arewe? What role do people with intellectual disability have?
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  What we do Information You can call us Information on our website Like Healthier Lives Fact Sheets Projects Like
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  Systemic advocacy – MakingAustralia better for people with intellectual disability  Better disability support  Changing mainstream services  Changing the community  Changing laws
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  Who sets theagenda? • Governments set the agenda • And we set the agenda – Health – People in trouble with the police – NDIS and people on the fringe
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  How do weadvocate?  We get the evidence  We work with allies  We set a goal and some first steps  We try to be – Assertive – Constructive – Practical – Persistent
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  Healthier lives campaignin NSW “Stark health inequalities” say our members and researchers People die young Health problems not diagnosed or treated Doctors don’t understand and are too rushed BUT changing the health system is hard!
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   2002 -Conference with Ombudsman  Advocacy with ID health specialists  2 things needed:  All health services to do better  Specialists in ID health  Lots of talk and training packages  Not much progress  Ombudsman annual reports  We seek more allies – a mainstream issue!
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   2006 –Roundtable –experts and key decision makers  NSW Health commitment to an ID health framework  2007 – Framework  2009 – KPMG economic analysis  2010-11 – NSW Government funds pilot teams and Clinical Network But still lots to do!
• 10.
  Do people withID need their own systemic advocate? We say YES - People with ID • need accessible processes in advocacy groups • are a vulnerable group • face specific problems • 60%+ of NDIS participants nswcid.blogspot.com.au/2015/02/people-with-intellectual-disability.html
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  Systemic advocacy can... •Help the NDIS to work well • Help make the community work for people with disability It’s often slow, hard work but remember.......
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  As our chairpersonsays: