Barbara Wood - Partnership working patients, public & the community #hcs15

Barbara Wood - Partnership working patients, public & the community #hcs15

• 1.
  Partnership Working: Patients, Public& the Community. Barbara Wood Karen Sandler
• 2.
  NHS Constitution Under theproposed updating of the Constitution Patients have the right to be involved in planning and making decisions about their health and care with their care provider, including end of life care, and to be given information to enable them to do this. Where appropriate this right includes their family and carers. This includes being given the chance to manage their own care and treatment. They have the right to be involved, directly or through representatives, in the planning of healthcare services commissioned by NHS bodies, the development and consideration of proposals for changes in the way those services are provided and in the decisions to be made affecting the operation of those services.
• 3.
  NHS Constitution –pledges The NHS also commits: To provide patients with the information and support they need to influence and scrutinise the planning and delivery of NHS services To work in partnership with patients, their families, carers and representatives To involve patients in discussions about planning their care…….. To encourage and welcome feedback on their health and care experiences and use this to improve services
• 4.
  Partnership Working, i.e.Patients, Public & the Community with Health Care Professionals. Thepatient’sperspective: What is partnership? The patient of the future, their needs What are the benefits of partnership?  the Five-Year Forward View; which argues for “a more engaged relationship with patients, carers, and citizens in order to promote wellbeing and prevent ill-health”
• 5.
  Partnership is morethan engagement The “duty” to participate belongs equally to all partners – patients, families, communities and all who work, teach and learn in the healthcare system. “The people have the right and duty to participate individually and collectively in the planning and implementation of their health care” (Alma Ata Declaration 1978) “No decision about me, without me.” (Liberating the NHS 2012) Future models of care will require partnerships of equal respect and trust
• 6.
  The Future Patient Informed– Through the use of IT, data, and the knowledge base shared with the global community of patients Expert – In their own health and goals for themselves Self-managing – through access to their own test results, online records, technological aids, and access to healthcare professionals when needed Demographic changes including older patients with multiple co-morbidities New technologies leading to more personalised care and more choices to be made
• 7.
  Patient care deliveredby HCSs Increasingly direct patient care is being delivered by HCSs in examples ranging from audiologists, radiographers, diagnosticians performing point of care testing, prosthetics and reconstructive scientists, clinical photographers, and clinical physiologists. These direct relationships require a partnership of trust and the professionalism, values and behaviours which enable that. This also requires education, training and professional development for the whole workforce. It requires services designed to deliver the rights and pledges set out in the NHS Constitution and Good Scientific Practice code of conduct.
• 8.
  Partnership with HealthcareScientists? >50% of biochemical tests are related to chronic disease management Approximately 800m tests performed annually 300k patients have a test each working day 50m electronic results reports sent by labs to GPs annually Pathology involved in 70% of diagnoses made in the NHS Source: digital.innovation.nhs.uk Making these accessible and understandable by other professionals in the MDT is not enough. Patients and their families are also members of the team.
• 9.
  Partnership with HealthcareScientists in the new care models? Where will this happen? Primary and Acute Care Systems (PACS) GP’s and Multispecialty Community Providers (MCPs) Urgent and Emergency Care Networks Viable Smaller hospitals Specialised care Modern Maternity Services Enhanced health in care homes AND Co-design and implementation of new care models
• 10.
  The benefits ofpartnership? To the HCP; Opportunities to develop specialist skills Job satisfaction Maximise opportunities for career development Research opportunities Opportunities to develop a care model based on skills and competencies rather than on qualification(s) eg Haematologist vs Blood Scientist Opportunity to develop a care model that maximises input from all partners thereby increasing (cost) –effectiveness and minimising attrition To the patient; Confidence in quality of care from specialist centre Potential for integrated care Opportunity to maximise contribution to own treatment and care Confidence in value for money of treatment and care pathway Maximise choice of treatment options Self-care which starts with patients who understand their own medical data
• 11.
  Co-design and implementationof the new care models; HCSs as partners with patients? Design of new care models and patient pathways provides the opportunity to ensure that HCSs leverage their skills for the maximum benefit of all partners The skills and knowledge of the HCSs are invaluable to optimising new models of care and to the development of new treatments egs radiotherapies, gene therapies Give attention to both cutting-edge and everyday, point of care technologies and skills. Everyday, point of care delivery makes the biggest difference to the most people. BUT Do the HCSs want to be in the vanguard? Information and communication is key HCSs generate a huge % of data used to diagnose and treat. How will you make this available and accessible to fellow professionals and to the patients and carers How can this data be available to benefit research
• 12.
  Examples of partnershipworking PatientView: Shows your latest test results, plus info about diagnosis and treatment. You can view it from anywhere you want, and share your information with anyone you want. www.patientview.org PatientView started out as a service for kidney patients in the UK. Information comes directly from existing records, for example hospital and GP records, or may be entered directly or via other apps. It now includes most renal units in the UK plus some places dealing with inflammatory Bowel Disease and Diabetes (Salford and centres in Scotland) Labtestsonline-UK: This site is designed to help patients and their families and friends, better understand laboratory tests and results www.labtestsonline.org.uk As yet evidence is limited on how health outcomes are affected but the value of direct access is greater than simply viewing results: it is an opportunity for redrawing the HCS/patient relationship. BMJ 2015;350:h673 Can patients use test results effectively if they have direct access? UK Thalassaemia Society Patient held record designed in partnership with HCSs and clinicians www.ukts.org
• 13.
  WHAT NEXT? Be ambitious- Select new care models with the biggest case for change and with the greatest involvement of HCSs in partnership with patients and the public. Focus on service as much as science. Understand and explain potential new roles of HCSs and the impact on numbers and range of HCSs required. Recognise the importance of values, skills, behaviours and support to provide safe, high- quality care wherever and whenever the patient is, at all times and in all settings. HEE Framework 15 Work in partnership to ensure that HCS recruitment and training is values based and attracts and selects students, trainees or employees on the basis that their individual values and behaviours align with the values of the NHS Constitution: Respect and dignity, Commitment to quality of care, Compassion, Improving lives, Working together and Everyone counts. BE OPEN TO CHANGE!