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Exploring Hospice Care
This document provides information about hospice care, including statistics on where people die, myths about hospice, eligibility criteria, levels of care under the Medicare hospice benefit, and considerations for choosing a quality hospice provider. It notes that while most people hope to die at home, approximately 50% die in hospitals, but hospice allows three out of four patients to die at home. It aims to educate healthcare professionals about the benefits of hospice to provide timely, quality end-of-life care for terminally ill patients and their families.
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Introduction to hospice care, discussing its importance, and ensuring quality end-of-life care.Goals and objectives aimed at educating healthcare professionals about hospice benefits and eligibility.
Audience engagement on personal experiences and thoughts regarding hospice care.
Origins and significant milestones in the development of hospice care and organizations.
Addressing myths and misunderstandings families have about hospice services and care.
Comprehensive definition of hospice, emphasizing patient dignity, comfort, and support.
Overview of the hospice team providing interdisciplinary care tailored to patient and family needs.
Definition and importance of palliative care as it relates to enhancing life quality.
Discussion on patient satisfaction, quality of care, and concerns around palliative treatment.
Comparison of curative and palliative care approaches, highlighting patient choice and comfort.
Patients' desires for pain control and relationship strengthening during serious illness.
Data on chemotherapy near death and demographics of hospice admissions, including racial statistics.
Discussion on underutilization of hospice services among minorities and its contributing factors.
Statistics related to the length of hospice care, admissions, and their implications on patient outcomes.
Description of Medicaid reform, eligibility criteria, and common challenges in presenting hospice benefits.
Explaining the four levels of hospice care: routine home care, continuous care, inpatient, and respite.
Discussion on important hospice benefits and quality measures when selecting a hospice provider.
Encouraging professionals to advocate for quality end-of-life care and providing useful resources.
Open floor for questions and feedback on hospice education and care.Citing various sources and studies referenced throughout the presentation.
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Exploring Hospice Care
- 1. Exploring Hospice Care TheWho, What, Where, Why and How of End-of-Life Care
- 2. Care at theEnd of Life Statistics show that while most people hope to die at home, approximately 50% of the general population dies in an acute care hospital setting. The chances, however, improve with hospice— which allows three out of four hospice patients to die in their home Journal of Oncology Practice, 2008
- 3. How We Die… MisleadingInformation <10% suddenly, unexpected event, MI, accident, etc. >90% protracted life-threatening illness • Predictable steady decline with a relatively short “terminal” phase (e.g cancer) • Slow decline punctuated by periodic crises (e.g CHF, emphysema, Alzheimer’s)
- 4. Goal To educate healthcareprofessionals about the benefits of hospice, in order to provide timely, quality end-of-life care for terminally ill patients and their families
- 5. Objectives • List twomyths about hospice care • Identify the difference between palliative and curative care • Explain services provided under the hospice benefit • List four eligibility criteria for hospice services • Describe how hospice is structured to meet the needs of terminally ill patients and their families
- 6. Your Thoughts? Many peoplealready know something about hospice… What are your perceptions and/or experiences?
- 7. Hospice Origins • Theorigin of the word hospice was used to describe a “shelter or haven for the weary traveler” • The term “hospice” has come to be associated with support and care • Shelter from discomfort is provided to enable dying patients to approach death in a peaceful way
- 8. History of Hospice •1905 St. Joseph’s, London • 1967 St. Christopher’s, London • 1969 Elisabeth Kubler-Ross (On Death and Dying) • 1974 New Haven Hospice of CT • 1978 National Hospice Organization — now called the National Hospice & Palliative Care Organization (NHPCO) • 1979 First state hospice licensure law • 1982 Congress enacts Medicare hospice benefit
- 9. Hospice Facts Question #1 Whatare some of the most common misconceptions you’ve heard from providers and families about hospice?
- 10. Hospice Misconceptions • Hospiceis a place • Someone dies right away • Hospice is for those who are in their last days of life • Hospice/palliative care means “doing nothing” • All treatments are discontinued
- 11. What is Hospice? •Affirms life • Regards dying as a normal process • Focus is on the patient’s physical, spiritual, emotional and social needs • Neither hastens nor postpones death • Expert medical care, pain management and emotional/spiritual support • The belief that each person has the right to die pain-free and with dignity
- 12. Hospice Interdisciplinary Team Photoretrieved May 2, 2013 from:http://www.hospicebr.org/s3web/1001964/Images/1001964interdisciplinaryt eamdiagram.jpg The plan of care is determined by the patient & caregiver Hospice care is focused on their needs and quality of life
- 13. Palliative Care • Palliativecare means patient- and family-centered care that optimizes quality of life by anticipating, preventing and treating suffering • Palliative care should be given throughout the continuum of illness and involve management of physical, intellectual, emotional, social and spiritual needs and facilitate patient autonomy, access to information and choice 73 FR 32204, June 5, 2008 Medicare Hospice Conditions of Participation – Final RuleV Copyright 2008 Center to Advance Palliative Care. Reproduction by permission only.
- 14. Hospice. A Typeof Palliative Care • The aggressive treatment of physical, social and emotional pain & symptoms at the end of life • An active treatment plan, not intended to cure the disease • Palliative treatment focuses on enhancing a patient’s comfort and overall quality of life • Palliative care redirects energy – Patient and family drive the plan of care and decide what is important to accomplish – Focus can be on physical, psychosocial or spiritual – or all three
- 15. Palliative Care Improves Qualityand Reduces Costs • Hospice programs demonstrate high patient satisfaction and quality of care for terminally ill patients • A 2012 study found that 96% of physicians supported palliative care
- 16. Palliative Care Improves Qualityand Reduces Costs (Cont.) However • 42% of MDs expressed concern that emphasizing palliative care could interfere with treatment aimed at extending lives • 25% of MDs were reluctant to recommend because patients may perceive they are not doing everything possible to extend their lives
- 17. Curative vs. PalliativeCare Curative Treatment • Disease driven • Doctor in charge • Disease process is primary focus • Few choices Palliative Care • Symptom driven • Patient is in charge • Disease process is secondary to person • Many choices • Comfort & quality of life
- 18. What Do PatientsWith Serious Illness Want? • Pain and symptom control • Avoid inappropriate prolongation of the dying process • Achieve a sense of control • Relieve burdens on family • Strengthen relationships with loved ones Hospice Management Advisor, 2011
- 19. Hospice Facts Question #2 Whatpercentage of Medicare patients started a new course of chemotherapy within two weeks of their death?
- 20. How Long ShouldAggressive Treatment Continue? • More than 20% of Medicare patients who have advanced cancer start a new chemotherapy regimen two weeks before they die • Only 37% of MDs told patients how long they had to live, even when patients asked for the information • Patients frequently learn more about their prognosis from other patients in the waiting room than from their doctors, authors say Journal of the American Medical Association (2008).
- 21. Hospice Facts Question #3 Whatpercentage of hospice admissions were of a minority race?
- 22. Hospice Facts –2012 (NHPCO) Answer: Only 17.2% of hospice admissions were of a minority race National Hospice and Palliative Care Organization, 2012
- 23. Example African-Americans’ underutilization of hospiceservices • Stronger preference for aggressive care • Lack of knowledge about hospice • Religious/hope factors • Mistrust of healthcare system National Hospice and Palliative Care Organization, 2012
- 24. Hospice use amongminorities • Only one in five patients are of a minority race • Cancer diagnoses account for less than half of all hospice admissions (37.7%) • 1/3 of all deaths in the US were under the care of a hospice program (1.65 million patients) • 44.6% of all deaths in the US were under the care of a hospice program “The greatest challenge is having honest conversations with patients and their families so we can bring the appropriate resources to bear.” National Hospice and Palliative Care Organization, 2012
- 25. Hospice Facts Question #4 Whatis the average length of service for hospice patients?
- 26. Answer • The averagelength of service is 69.1 days • However, the median length of service in 2011 was only 19.1 days – This means that half of hospice patients received care for less than three weeks and half received care for more than three weeks National Hospice and Palliative Care Organization, 2012
- 27. Hospice Facts Question #5 Whatpercentage of patients died or were discharged in seven days or less of service?
- 28. Answer 35.8% of hospicepatients were discharged in seven days or less National Hospice and Palliative Care Organization, 2012
- 29. Hospice Facts Question #6 Howmany patients died or were discharged 180 days or more after admission to hospice?
- 30. Answer: 11.4% of patientsdied or were discharged 180 days or more after hospice admission National Hospice and Palliative Care Organization, 2012
- 31. Short and LongLengths of Hospice Services National Hospice and Palliative Care Organization, 2012 Experts agree that hospice patients gain the full benefit of hospice when provided for at least three months
- 32. Hospice Reduces Medicare HealthcareCosts • Hospice services save money for Medicare and bring quality care to patients with life-limiting illness and their families • Duke University : Hospice reduced Medicare costs by an average of $2,309 per hospice patient • Reduced costs for seven out of 10 hospice recipients if hospice has been used for a longer period of time Taylor DH Jr, Ostermann J, Van Houtven CH, Tulsky JA, Steinhauser K. What length of hospice use maximizes reduction in medical expenditures near death in the US Medicare program? Soc Sci Med. 2007 Oct;65(7):1466-78.
- 33. Patients on Hospice LiveLonger Recent study of 4,493 patients with CHF or cancer of breast, colon, lung, prostate or pancreas • Mean survival was 29 days longer with hospice care than those who did not choose hospice Connor ST, Pyenson B, Fitch K, Spence C, Iwasaki K. Comparing hospice and non-hospice patient survival among patients who die within a three-year window. Journal of Pain and Symptom Management. 2007 Mar; 33(3):238–46
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- 35. Medicare Hospice Benefit •Part A Medicare Benefit • Terminal illness • Certified by two physicians • Comfort, not cure • Covers 100% of costs related to the terminal diagnosis • Unlimited election periods if criteria met for recertification
- 36. Hospice Certification and Recertification Dividedinto distinct periods • Two benefit periods of 90 days each • Followed by unlimited number 60 day benefit periods • Prior to the start of any new benefit period the hospice team is required to recertify the patient’s terminal prognosis
- 37. Medicare Hospice Benefit: ServiceComponents • Medical direction and physician participation in the development of the plan of care • Expert pain and symptom management 24/7 • Medications, DME, medical supplies related to terminal diagnosis • Dietary counseling, speech, physical and occupational therapy as indicated • Education/support of family/caregivers • Bereavement services for up to 13 months
- 38. Presenting the Hospice Benefit •What challenges do you face when you present hospice as an option? • Have there been difficult responses with the member or their family? • Has the physician explained the terminal illness before you talk to the member?
- 39. Hospice Interdisciplinary Team • Attendingphysician • Hospice physician • Nurse (RN & LPN) • Social worker • Chaplain/clergy • Hospice aide • Trained volunteer
- 40. Eligibility Criteria: General •Patient preferences –Patient’s personal goals –Burden of treatment vs. potential benefit • Changes in functional status –Dependence in at least 3/6 activities of daily living (non-cancer patients) • Unintentional weight loss –> 10% of normal body weight –Body Mass Index (BMI) < 22 kg/m2 Kinzbrunner, Barry 20 Common Problems in End-of-Life Care (Ch 1) New York, McGraw Hill, 2011
- 41. General Criteria: Clinical Progressionof Disease • Increased utilization of health care resources –Multiple hospitalizations –ED visits –Other health care services • Disease progression –Serial physician assessments –Laboratory or diagnostic studies • Changes in MDS in LTC facilities • Decline identified by home health care provider Kinzbrunner, Barry 20 Common Problems in End-of-Life Care (Ch 1) New York, McGraw Hill, 2011
- 42. End-of-Life Symptoms • Unrelievedpain • Frequent infections • Repeat hospitalizations • Weight loss/swallowing difficulty • Inability to ambulate independently • Nausea or vomiting • Withdrawn, confused, bed-bound • Shortness of breath/oxygen dependent • Progressive decline despite use of curative medical therapies
- 43. Terminal Diagnosis: Examples • Cancer •End stage non-cancer diseases: – Alzheimer’s disease/dementia – Heart disease – Lung/respiratory disease – Kidney disease – Liver disease – Stroke – AIDS-related diseases
- 44. When is itTime to Consider Hospice? Would I be surprised if this patient died in the next six months?
- 45. Medicare Hospice Benefit FourLevels of Care • Routine Home Care • Continuous Care • Inpatient Care • Respite Care
- 46. Hospice: Routine Home Care •Most frequently delivered level of care • Proactive plan of care • Frequency of visits by the care team is determined by the needs of the patient
- 47. Hospice: Continuous Care Goal:To avoid a hospitalization • Indicated during a period of crisis • Patient desires to stay at home, but requires more intensive medical care • Minimum of eight hours of care per day; > 50% must be provided by a nurse • Reimbursement is hourly — based on the number of actual hours of care • Examples: Uncontrolled pain, dyspnea, bleeding, change in level of consciousness, nausea/vomiting
- 48. Hospice: General Inpatient Care Goal:acute symptom management when issues cannot be controlled in the home setting • Pain, nausea/vomiting, agitation, seizure, dyspnea, bleeding, wound care, etc • Care may be provided in: – Free-standing units – Leased wing of hospital/LTC facility – Contract beds
- 49. Hospice: Respite Care Goal:Short-term inpatient care provided to relieve the patient’s caregiver • Must be provided by a hospice, hospital, skilled nursing facility or intermediate care facility staffed with a 24-hour RN • Respite care may be provided only on an occasional basis and may not be reimbursed for more than five consecutive days at a time
- 50. The Value ofHospice Think about which hospice benefit is most important to your members? • Care delivered in their home • Management of pain and symptoms • Coverage of medications and medical needs related to the terminal condition • Additional caregiver support • Spiritual care
- 51. Hospice Facts Question #7 Trueor False? A DNR must be signed before a patient can be admitted to hospice
- 52. Answer False However, the hospiceteam will educate, provide counseling and clarify end-of-life decisions with the patient and family
- 53. Considerations when choosing aquality hospice provider • Rapid response time; same day admission • Direct access to clinicians 24/7 • Ability to accept complicated cases & access to an ethics committee • Routine care staffing and frequency of visits
- 54. Considerations when choosing aquality hospice provider (Cont.) • Continuous care staffing • Death attendance • Bereavement counseling/support groups • Quality and process improvement systems • Robust clinical system and outcome reporting
- 55. How Can YouMake a Difference? • Become an advocate for quality end-of-life care • Consider your own beliefs about advanced illness and death • Carry the tools that help you identify a terminal illness • Evaluate the patient’s understanding of their condition • Suggest an order evaluation for hospice care in your treatment options when speaking with the patient’s physician Ask yourself—what does the patient want and am I an advocate for his/her wishes?
- 56. For Additional Information: NHPCONational Hospice & Palliative Care Organization www.nhpco.org
- 57. For Additional Information: www.caringinfo.org •Caring Connections is a national consumer and community engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation • State-specific documents for advance care planning are available
- 58. For Additional Information: DukeUniversity Institute http://www.iceol.duke.edu/
- 59.
- 60. References • Adams, C.(2010). Dying with dignity in America: The transformational leadership of Florence Wald. Journal of Professional Nursing, 26(2), 125-132. doi:10.1016/j.profnurs.2009.12.009 • Brumley, R., Enguidanos, S., Jamison, P., Seitz, R., Morgenstern, N., Saito, S., & ... Gonzalez, J. (2007). Increased satisfaction with care and lower costs: results of a randomized trial of in-home palliative care. Journal of The American Geriatrics Society, 55(7), 993-1000. doi:10.1111/j.1532-5415.2007.01234. • Buck, J. (2011). Policy and the reformation of hospice: lessons from the past for the future of palliative care. Journal of Hospice & Palliative Nursing, 13(6S), S35-43. doi:10.1097/NJH.0b013e3182331160 • Campbell, C., Williams, I., & Orr, T. (2010). Factors that impact end-of-life decision making in African Americans with advanced cancer. Journal of Hospice & Palliative Nursing, 12(4), 214-224. doi:10.1097/NJH.0b013e3181de1174 • Connor, S., Pyenson, B., Fitch, K., Spence, C., & Iwasaki, K. (2007). Comparing hospice and non-hospice patient survival among patients who die within a three-year window. Journal of Pain & Symptom Management 33(3), 238- 246. • Consider palliative care, hospice as options. (2012). Hospital Case Management, 20(12), 175-177. • Epstein, A. S., Volandes, A. E., & O'Reilly, E. M. (2011). Building on individual, State, and Federal initiatives foradvance care planning, an integral component of palliative and end-of-life cancer care. Journal of Oncology Practice,7(6), 355-359. doi:10.1200/JOP.2011.000355 • Fletcher, D., & Panke, J. (2012). Improving Value in Healthcare: Opportunities and Challenges for Palliative Care Professionals in the Age of Health Reform. Journal of Hospice & Palliative Nursing, 14(7), 452-461.
- 61. References (Cont.) • Fletcher,D., & Panke, J. (2012). Improving Value in Healthcare: Opportunities and Challenges for Palliative CareProfessionals in the Age of Health Reform. Journal of Hospice & Palliative Nursing, 14(7), 452-461. • Howell, D., & Lutz, S. (2008). Hospice referral: An important responsibility of the oncologist. Journal of OncologyPractice, 4(6), 303-304. • Institute of Medicine. (2013). Committed on Transforming End-of-Life Care. Retrieved from http://www.institute+of+medicine+report+on+end+of+life+care&rls=com.microsoft%3Aen-us&oe=UTF- 8&startIndex=&startPage=1&oq=Institute+of+Medicine%2C+End&gs_l=heirloom- serp.1.7.0l2j0i22i30l7.5015.7703.0.12859.8.7.1.0.0.0.187.781.1j5.6.0...0.0...1ac.1.12.heirloom-serp.ucG-nWk-CRQ • Jencks, S., Williams, M., & Coleman, E. (2009). Re-hospitalizations among patients in the Medicare fee-for- serviceprogram. New England Journal of Medicine, 360(14), 1418-1428. doi:10.1056/NEJMsa0803563 • Kinzbrunner, M., & Policzer, M. (2011). End-of-life care. (2nd ed.). New York, NY: McGraw Hill Medical • Mack, J., Cronin, A., Keating, N., Taback, N., Huskamp, H., Malin, J., & ... Weeks, J. (2012). Associations between end- of-life discussion characteristics and care received near death: A prospective cohort study. Journal of ClinicalOncology, 30(35), 4387-4395. doi:10.1200/JCO.2012.43.6055 • Murray, M., Fiset, V., Young, S., & Kryworuchko, J. (2009). Where the dying live: A systematic review of determinants of place of end-of-life cancer care. Oncology Nursing Forum, 36(1), 69-77. doi:10.1188/09.ONF.69-77
- 62. • NHPCO Factsand Figures: Hospice Care in America. (2011). Alexandria, VA: National Hospice and Palliative Care Organization, 2012. Last accessed May 3, 2013. • Rogers, T. (2009). Hospice myths: what is hospice really about?. Pennsylvania Nurse, 64(4), 4-8. • Smedley, B., Stith, A., & Nelson, A. (2003). Unequal treatment: Confronting racial and ethnic disparities in health care. Washington, D.C: The National Academies Press. • Taylor, D., Ostermann, J., Van Houtven, C., Tulsky, J., & Steinhauser, K. (2007). What length of hospice use maximizes reduction in medical expenditures near death in the US Medicare program? Social Science & Medicine, 65(7), 1466-1478. • VITAS (2013). VITAS: About us. Retrieved from: http://www.vitas.com/Aboutus.aspx • Wu, H., & Volker, D. L. (2012). Humanistic nursing theory: Application to hospice and palliative care. Journal of Advanced Nursing, 68(2), 471-479. doi:10.1111/j.1365-2648.2011.05770.x References (Cont.)