“Delivering results to you”
Share information. Facilitate
diabetes care planning.
Dr Pete Davies; p.davies@nhs.net
Sandwell & West Birmingham NHS Trust
The Problem:
• Diabetes care. Too often a passive affair.
– Are we surprised if appointments & tests are
forgotten or missed?
• Cards stacked against patients
– Professionals have the power & knowledge
and can prepare
– Patients cannot easily be prepared
• We lack shared understanding
– So many tests: which are important?
– What does all the data mean?
“Breaking bad news” in diabetes
consultations
e.g. HbA1c blood test results
• Similar to hearing
negative feedback at
performance
review/appraisal
• Can’t take it in
• Don’t hear anything else
that is said
There has to be a better way!
To achieve better outcomes in
Long-term Conditions
You need all these components
Engaged
empowered
patient
Organised
proactive
system
Partnership
= Better outcomes
All eggs in one basket?
Engaged
empowered
patient
Organised
proactive
system
Partnership
= Better outcomes
Service redesign;
QoF, etc.
Lots of focus, attention and
investment“Cinderella”
Self-care
The average person with diabetes:
spends three hours each year with a professional
The remaining 8,757 hours, they care for
themselves.
3
8,760
=% 0.03 %
Historical Diabetes Care
• Passive
– Nurse/doctor agenda
– Telling e.g. results of
tests, examination etc.
– Judging
– Prescribing &
proscribing
• “thou shalt not”
– Often time-constrained
To support Self Care
Get Active!
– Patient-led agenda
– Share information before the
care plan meeting
– Allow time for reflection
– Patient is
• better prepared
• Engaged
• An active partner
Understanding Glucose control- HbA1c Test
We do not make it easy for patients!
• …a surrogate for glucose
control
• …useful clinically
• BUT abstract, not easy to
explain, or understand
• Units of measurement have
changed!
– 7%  53mol/mol
The solution
• When blood tests are
processed
• Send HbA1c result direct to
person with diabetes
– For everyone
– Within 5 days (before the care-
planning review)
– In a form that
• communicates meaning
• promotes reflection & care planning
Lean Six-sigma Methodology
Key Moments
Force-field analysis
Voice of the Customer
Survey
Root Cause Analysis
Inventive
problem solving
Helped identify key enablers; helped us
‘manage’ resistors
Game-changer!
Demand high
original idea (text message) NOT popular
Understanding of HbA1c is poor
Identified low health literacy
Product design would be critical
Incorporate low cost AND high quality-
The ‘Personal Mailer’
Product Design is everything
• Give the result meaning
– You don’t have to‘get it’ (i.e. understand A1c)
in order to know how your diabetes treatment
plan is doing
• makes the result easier to understand
assimilate into
– positive health behaviours,
– Engagement in care planning
Health Literacy & patient/user views
• Patient group consultation
• Online communities: DAFNE-online (UK)
& Tu-Diabetes (international)
– Feedback on idea & options for graphics and
text via online survey tool
Professional Help
• One member of patient
group was a graphic
designer!
• Artwork ideas discussed
with 2 independent
graphic designers
Descriptor text
Aim for a low reading age
– Calculated reading age =‘easy to read’ for a
13-15 or 11 year old, respectively
Not bad for an abstract concept 
Design Features
Trend
present and previous results
Scale
Coloured ruler
Number and arrow
3 categories
linked to NICE & QoF targets
Simple descriptors
Clear advice
“what next” ‘pause, reflect.. bring
to consultation’
Goal setting & individualised
targets
Design Features
Trend
present and previous results
Scale
Coloured ruler
Number and arrow
3 categories
linked to NICE & QoF targets
Simple descriptors
Clear advice
“what next” ‘pause, reflect.. bring
to consultation’
Goal setting & individualised
targets
Design Features
Trend
present and previous results
Scale
Coloured ruler
Number and arrow
3 categories
linked to NICE & QoF targets
Simple descriptors
Clear advice
“what next” ‘pause, reflect.. bring
to consultation’
Goal setting & individualised
targets
Design Features
Trend
present and previous results
Scale
Coloured ruler
Number and arrow
3 categories
linked to NICE & QoF targets
Simple descriptors
Clear advice
“what next” ‘pause, reflect.. bring
to consultation’
Goal setting & individualised
targets
Design Features
Trend
present and previous results
Scale
Coloured ruler
Number and arrow
3 categories
linked to NICE & QoF targets
Simple descriptors
Clear advice
“what next” ‘pause, reflect.. bring
to consultation’
Goal setting & individualised
targets
Design Features
Trend
present and previous results
Scale
Coloured ruler
Number and arrow
3 categories
linked to NICE & QoF targets
Simple descriptors
Clear advice
“what next” ‘pause, reflect.. bring
to consultation’
Goal setting & individualised
targets
Design Features
Trend
present and previous results
Scale
Coloured ruler
Number and arrow
3 categories
linked to NICE & QoF targets
Simple descriptors
Clear advice
“what next” ‘pause, reflect.. bring
to consultation’
Goal setting & individualised
targets
Pilot Evaluation 2011
• n=1800
– 8 general practices recruited
– 1 specialist practice (PHD)
• Evaluated by questionnaire
• Administered at time of consultation
• Patient and HCP gave their views
• We could match the responses
Quantitative analysis of Results to Patients
Statement % Agreeing/ Strongly
agreeing*
“Getting my HbA1c result
before my appointment
helped me”
73%
“having my HbA1c result
made it easier to talk to my
doctor and/or nurse”
76%
“I would like to receive my
HbA1c result in this way in
future”
89%
“The fact my patient had
their HbA1c result made the
consultation easier”
74%
Peoplewithdiabete
Hea
prof
*n=178 questionnaires returned for analysis
Qualitative analysis of Results to Patients
Domain Patient comment
Medication adherence
(concordance)
“getting my result made me
take my tablets”
Dietary adherence “I’ve been trying hard with my
diet, so this really gave me a
boost”
Empowerment “I will go back to my nurse
and ask to go on a diabetes
course”
Confidence “I can now see that my
treatment plan is really
working!”
Peoplewithdiabe
*n=178 questionnaires returned for analysis
Qualitative analysis of Results to Patients (2)
Domain HCP comment*
Understanding diabetes “they wanted to know more
about their result”
Engagement “before this it was difficult to
get her to come”
Partnership working “after we’d discussed their
result, they could see its value
and were all for it”
Did this create time pressures? No extra time pressures
*n=17 professionals across 8 practices
Healthcareprofes
Present State
• Successful roll-out from December 2011,
all Sandwell GP practices
• Safeguard excluding screening for
diabetes
• National interest high, other PCTs/CCGs
and patients
• Support from my Trust’s CEO =
sustainable
Summary & Conclusions
• Patient involvement shaped product quality
– enabling better understanding
• Sharing information in this way
– Was welcomed
– Led to positive health behaviours, suggesting
people have taken greater control of their
diabetes
– Enhanced consultations with doctors & nurses,
suggesting partnerships were strengthened




Summary & Conclusions (2)
• The project team are firm advocates of
Lean and Six-Sigma methodologies
• Many other applications of this
technology are feasible
• Easily transferable to other areas
• Lots of options for moving this into the
digital health domain




Acknowledgements
Mr Stuart Davis, type 2 diabetes 15 yrs, podiatrist 37 years, Sandwell PCT
Ms Dottie Tipton, Service Improvement Manager, SWBH
Dr Jenny Harding, pharmacist, Director of Clinical Governance Sandwell PCT
Thanks to Lilly UK for providing project support.
Thanks to Sandwell Diabetes Support Group for financial support for the pilot
Understand diabetes. Take control
p.davies@nhs.net
Maybe initiatives like ours can help achieve that

Results to patients for qi c presentation

  • 1.
    “Delivering results toyou” Share information. Facilitate diabetes care planning. Dr Pete Davies; [email protected] Sandwell & West Birmingham NHS Trust
  • 2.
    The Problem: • Diabetescare. Too often a passive affair. – Are we surprised if appointments & tests are forgotten or missed? • Cards stacked against patients – Professionals have the power & knowledge and can prepare – Patients cannot easily be prepared • We lack shared understanding – So many tests: which are important? – What does all the data mean?
  • 3.
    “Breaking bad news”in diabetes consultations e.g. HbA1c blood test results • Similar to hearing negative feedback at performance review/appraisal • Can’t take it in • Don’t hear anything else that is said There has to be a better way!
  • 4.
    To achieve betteroutcomes in Long-term Conditions You need all these components Engaged empowered patient Organised proactive system Partnership = Better outcomes
  • 5.
    All eggs inone basket? Engaged empowered patient Organised proactive system Partnership = Better outcomes Service redesign; QoF, etc. Lots of focus, attention and investment“Cinderella”
  • 6.
    Self-care The average personwith diabetes: spends three hours each year with a professional The remaining 8,757 hours, they care for themselves. 3 8,760 =% 0.03 %
  • 8.
    Historical Diabetes Care •Passive – Nurse/doctor agenda – Telling e.g. results of tests, examination etc. – Judging – Prescribing & proscribing • “thou shalt not” – Often time-constrained
  • 9.
    To support SelfCare Get Active! – Patient-led agenda – Share information before the care plan meeting – Allow time for reflection – Patient is • better prepared • Engaged • An active partner
  • 10.
    Understanding Glucose control-HbA1c Test We do not make it easy for patients! • …a surrogate for glucose control • …useful clinically • BUT abstract, not easy to explain, or understand • Units of measurement have changed! – 7%  53mol/mol
  • 11.
    The solution • Whenblood tests are processed • Send HbA1c result direct to person with diabetes – For everyone – Within 5 days (before the care- planning review) – In a form that • communicates meaning • promotes reflection & care planning
  • 12.
    Lean Six-sigma Methodology KeyMoments Force-field analysis Voice of the Customer Survey Root Cause Analysis Inventive problem solving Helped identify key enablers; helped us ‘manage’ resistors Game-changer! Demand high original idea (text message) NOT popular Understanding of HbA1c is poor Identified low health literacy Product design would be critical Incorporate low cost AND high quality- The ‘Personal Mailer’
  • 13.
    Product Design iseverything • Give the result meaning – You don’t have to‘get it’ (i.e. understand A1c) in order to know how your diabetes treatment plan is doing • makes the result easier to understand assimilate into – positive health behaviours, – Engagement in care planning
  • 15.
    Health Literacy &patient/user views • Patient group consultation • Online communities: DAFNE-online (UK) & Tu-Diabetes (international) – Feedback on idea & options for graphics and text via online survey tool
  • 16.
    Professional Help • Onemember of patient group was a graphic designer! • Artwork ideas discussed with 2 independent graphic designers
  • 17.
    Descriptor text Aim fora low reading age – Calculated reading age =‘easy to read’ for a 13-15 or 11 year old, respectively Not bad for an abstract concept 
  • 21.
    Design Features Trend present andprevious results Scale Coloured ruler Number and arrow 3 categories linked to NICE & QoF targets Simple descriptors Clear advice “what next” ‘pause, reflect.. bring to consultation’ Goal setting & individualised targets
  • 22.
    Design Features Trend present andprevious results Scale Coloured ruler Number and arrow 3 categories linked to NICE & QoF targets Simple descriptors Clear advice “what next” ‘pause, reflect.. bring to consultation’ Goal setting & individualised targets
  • 23.
    Design Features Trend present andprevious results Scale Coloured ruler Number and arrow 3 categories linked to NICE & QoF targets Simple descriptors Clear advice “what next” ‘pause, reflect.. bring to consultation’ Goal setting & individualised targets
  • 24.
    Design Features Trend present andprevious results Scale Coloured ruler Number and arrow 3 categories linked to NICE & QoF targets Simple descriptors Clear advice “what next” ‘pause, reflect.. bring to consultation’ Goal setting & individualised targets
  • 25.
    Design Features Trend present andprevious results Scale Coloured ruler Number and arrow 3 categories linked to NICE & QoF targets Simple descriptors Clear advice “what next” ‘pause, reflect.. bring to consultation’ Goal setting & individualised targets
  • 26.
    Design Features Trend present andprevious results Scale Coloured ruler Number and arrow 3 categories linked to NICE & QoF targets Simple descriptors Clear advice “what next” ‘pause, reflect.. bring to consultation’ Goal setting & individualised targets
  • 27.
    Design Features Trend present andprevious results Scale Coloured ruler Number and arrow 3 categories linked to NICE & QoF targets Simple descriptors Clear advice “what next” ‘pause, reflect.. bring to consultation’ Goal setting & individualised targets
  • 28.
    Pilot Evaluation 2011 •n=1800 – 8 general practices recruited – 1 specialist practice (PHD) • Evaluated by questionnaire • Administered at time of consultation • Patient and HCP gave their views • We could match the responses
  • 29.
    Quantitative analysis ofResults to Patients Statement % Agreeing/ Strongly agreeing* “Getting my HbA1c result before my appointment helped me” 73% “having my HbA1c result made it easier to talk to my doctor and/or nurse” 76% “I would like to receive my HbA1c result in this way in future” 89% “The fact my patient had their HbA1c result made the consultation easier” 74% Peoplewithdiabete Hea prof *n=178 questionnaires returned for analysis
  • 30.
    Qualitative analysis ofResults to Patients Domain Patient comment Medication adherence (concordance) “getting my result made me take my tablets” Dietary adherence “I’ve been trying hard with my diet, so this really gave me a boost” Empowerment “I will go back to my nurse and ask to go on a diabetes course” Confidence “I can now see that my treatment plan is really working!” Peoplewithdiabe *n=178 questionnaires returned for analysis
  • 31.
    Qualitative analysis ofResults to Patients (2) Domain HCP comment* Understanding diabetes “they wanted to know more about their result” Engagement “before this it was difficult to get her to come” Partnership working “after we’d discussed their result, they could see its value and were all for it” Did this create time pressures? No extra time pressures *n=17 professionals across 8 practices Healthcareprofes
  • 32.
    Present State • Successfulroll-out from December 2011, all Sandwell GP practices • Safeguard excluding screening for diabetes • National interest high, other PCTs/CCGs and patients • Support from my Trust’s CEO = sustainable
  • 33.
    Summary & Conclusions •Patient involvement shaped product quality – enabling better understanding • Sharing information in this way – Was welcomed – Led to positive health behaviours, suggesting people have taken greater control of their diabetes – Enhanced consultations with doctors & nurses, suggesting partnerships were strengthened    
  • 34.
    Summary & Conclusions(2) • The project team are firm advocates of Lean and Six-Sigma methodologies • Many other applications of this technology are feasible • Easily transferable to other areas • Lots of options for moving this into the digital health domain    
  • 35.
    Acknowledgements Mr Stuart Davis,type 2 diabetes 15 yrs, podiatrist 37 years, Sandwell PCT Ms Dottie Tipton, Service Improvement Manager, SWBH Dr Jenny Harding, pharmacist, Director of Clinical Governance Sandwell PCT Thanks to Lilly UK for providing project support. Thanks to Sandwell Diabetes Support Group for financial support for the pilot
  • 36.
    Understand diabetes. Takecontrol [email protected] Maybe initiatives like ours can help achieve that

Editor's Notes

  • #2 Pleasure to be here Title of our project- Delivering… But its about sharing info.
  • #5 This is the Better outcomes equation.. After Sue Roberts, Nat Clin Dir for Care Planning It can be applied to any LTC Need it all
  • #6 In diabetes there has been a lot of attention given to systems.. Whilst lip service paid to these areas, e.g. local surveys show… little movement in education courses being offered