Support & information for radiotherapy patients: how can social media help?
- 1. KIM MEEKING MRes, BSc University Hospital Southampton #UKRCO2018
- 2. No conflicts of interest
- 3. THE ISSUE: support and information for radiotherapy patients… How can social media help? Social media for healthcare professionals? Risks and limitations How we are part of the solution Social media for patient benefit?
- 4. 360,000 PEOPLE ARE DIAGNOSED WITH CANCER EVERY YEAR IN THE UK Half will have radiotherapy Maddams J, Utley M, Moller H. Projections of cancer prevalence in the United Kingdom, 2010-2040, Br J Cancer 2012; 107: 1195-1202 Delaney G and Barton M. Evidence-based estimates of the demand for radiotherapy, Clin Oncol 2015; (2): 70-76
- 5. 85% Yes, completely 12% To some extent 2% No (Other 1%) Meeting information needs Before radiotherapy? During radiotherapy? 51% Yes, completely 23% To some extent 12% No (Other 14%) Quality Health. National Cancer Patient Experience Survey 2016. 2016 Available from http://www.ncpes.co.uk/ Did you have all the information you needed…
- 6. Radiotherapy is a poorly understood treatment How can social media help? Halkett G and Kristjanson L. Patient perspectives on the role of radiation therapists. Patient Educ. Couns. 2007; 69 (1-3):76-83
- 7. social media: “Websites and applications that enable users to create and share content or to participate in social networking” (And be able to listen/‘lurk’)
- 8. 3.2 billion people use social media We Are Social ‘Digital around the world in 2018. 2018 Available from http://wearesocial.com/uk/blog/2018/01/global-digital-report-2018
- 9. 2.1 billion active users 1/5
- 10. 1.5 billion active users 2/5
- 11. 800 million active users 3/5
- 12. 500 million active users 4/5
- 13. 330 million active users 5/5
- 14. BIG DATA small datasets Researching social media dynamic data & complex methods
- 15. Consent Data quality Search restrictions Not representative Methodology Challenges for researchers “…use, copy, reproduce, process, adapt, modify, publish, transmit, display and distribute in any methods…and let others do the same…”
- 17. More likely to report a more deliberative decision Use of online communication by patients with newly diagnosed cancer during the treatment decision process Higher degree of decision satisfaction Wallner L, Martinez K, Li Y. et al. Use of online communications by patients with newly diagnosed breast cancer during the treatment decision process. JAMA Oncol. 2016; 2(12):1654-1655
- 18. 20% decrease in anxiety after participating in the #BCSM tweet chat Effectiveness of social media as a tool for breast cancer education and for decreasing anxiety. Perceived level of knowledge increased Except for radiotherapy? Attai D, Cowher M, Al-Hamadani et al. Twitter social media is an effective tool for breast cancer patient education and support: Patient reported outcomes by survey. J Med Internet Res. 2015: 17(7): e188
- 19. An insight into patient experience Exploring radiotherapy related content posted on Twitter Reliability of information? Who’s tweeting? 35% Patients 16% H/C Profnls 15% H/C Orgs 14% Media 9% Marketing 11% Other Meeking, K. The Radiotherapy Conversation in the Digital Age. Poster presented at: United Kingdom Radiological and Radiation Oncology Congress; 2017 Jun 12-14; Manchester, UK.
- 21. Social media can facilitate professional networking and collaboration on projects, the dissemination of evidence and engagement with patients. How Twitter can enrich professional development McAloon C, Makin S, Warriner D et al. How Twitter can enrich professional development. BMJ Careers. 17th March 2016. Available from http://careers.bmj.com/careers/advice/How_Twitter_can_enrich_professional_development
- 22. Presenting papers on social media can increase the chance of citation Ramezami-Pakpour-Langeroudi, Okhavati M, Talebian A Do highly cited clinicians get more citations when being present at social networking sites? J Ed Hlth Promotion 2018; 7: 18
- 23. Global participation collaboration and networking @MedRadJClub Informal peer learning Twitter journal clubs and continuing professional development Open access articles Bolderston A, Watson J, Woznitza, N et al. Twitter journal clubs and continuing professional development: An analysis of a #MedRadJClub tweet chat. Radiography 2018; 24(1): 3-8
- 25. Information overload Not a replacement for F2F Patient confidentiality Professional boundaries Public trust Lack of skills Inefficiency Time consuming Information quality Society and College of Radiographers SoMeRAD: Guidance for the radiography workforce on the professional use of Social Media 2015. Available from https://www.sor.org/learning/document-library/somerad-guidance-radiography-workforce-professional-use-social-media
- 26. What happens on social media… …stays on forever! Don’t forget:
- 27. Summary 5 Radiotherapy is poorly understood Social media can inform & empower patients Engaged in health = improve outcomes Professionals can learn, network and collaborate Get involved, be aware of risk & limitations Improve the quality of radiotherapy information
- 28. Thank You For more information: Kim Meeking @kimbomeek [email protected] 023 8120 5442