Victor Chang Cardiac Research Institute

“New Year, New You”. This is a recording of the webinar hosted by Team Titin in January 2026 designed for individuals and families affected by TTN-related heart conditions or who carry variants in the TTN gene and may be at risk for heart health concerns. This video covers: -An overview of TTN-related heart conditions -Highlights from recent research in titin and heart health -Lifestyle and environmental factors that may influence heart health -Exercise considerations for people with TTN-related cardiomyopathy -Current recommendations for the care and management of heart conditions -Q &A Featured Speakers include: Professor Diane Fatkin, MD, a molecular cardiologist and internationally recognized expert in inherited heart diseases, with a particular focus on familial dilated cardiomyopathy (DCM) and atrial fibrillation, including conditions caused by changes in the TTN gene. Renee Johnson, PhD, is a clinical research coordinator and genetic counsellor specializing in dilated cardiomyopathy and atrial fibrillation. Her work focuses on understanding the genetic causes of these conditions and supporting individuals and families through research participation and clinical care. Both speakers are from the Victor Chang Cardiac Research Institute are long-standing collaborators with the titin community, and we are deeply grateful for their willingness to share their expertise with Team Titin families. https://lnkd.in/eACA9psE

📝The Medical Research Future Fund is a federal investment scheme to fund medical research. It was created to deliver $1 billion every year in sustainable funding for lifesaving research - but right now, only about $650 million is being released by the Australian government each year. Independent Representative Dr Monique Ryan has recently launched a direct email campaign, which generates emails to the Federal Treasurer, Finance Minister and Minister for Health, calling for the full $1billion released. If you have 2-minutes we'd gratefully appreciate your support in adding your name to the campaign: https://lnkd.in/ggZn8HnS #MedicalResearch

#OnThisDay in 2011, Institute scientists led by Professor Jamie Vandenberg discover how the heart’s electrical “gates” open and close revealing why some common medications can trigger dangerous heart rhythm problems and sudden cardiac death. This vital insight changed the way new drugs are designed and tested around the world. Fast forward to today and thanks to game-changing technology in our Innovation Centre we can now identify dangerous cardiac side effects before drugs ever reach patients. It’s already making new medicines safer, faster, and more cost-effective. #MedicalResearch #HeartDisease

CHF is delighted to announce Professor @Jason Kovacic as our expert speaker for the upcoming CHF Talks webinar on the impact of mis- and disinformation on health. Professor Kovacic is the Director and CEO of the Victor Chang Cardiac Research Institute, Chair and Professor of Medicine at UNSW Sydney, and President of the Australian Cardiovascular Alliance. He is also a clinical cardiologist at St Vincent's Hospital in Sydney. With 80 per cent of cardiovascular disease being preventable, Professor Kovacic sees social media as a powerful tool to empower people to minimise their risk and make informed decisions about their health. He never imagined he'd be filming TikToks from his desk, but it has become an essential part of his work, helping raise awareness about heart health and combat the growing spread of mis- and disinformation. Register here and join us for this important conversation: https://ow.ly/G2YY50XZVkl

Join our team! New opportunities now open at Victor Chang Cardiac Research Institute, world-leaders in cardiovascular research. Research Scientist - Stem Cell Production Facility (Darlinghurst) People & Culture Manager (Darlinghurst) Heart Health Check Leads (NSW, VIC, QLD and SA) Please also share with your colleagues, friends or family who may be interested in helping us in our fight against heart disease: https://lnkd.in/gPjYTVz #ResearchJobs #ScienceJobs #STEMCareers #HR #HRjobs #SydneyJobs

We were honoured to welcome cardiac arrest survivor Syed and his wife Nageen to the Institute's Darlinghurst headquarters to meet Professor Jamie Vandenberg and tour our Innovation Centre. Syed's cardiac arrest was caused by Brugada Syndrome, a genetic condition that is the focus of Prof Vandenberg's research. The team have developed a powerful new test that can help save the lives of families affected by the condition by empowering them to be diagnosed and treated before a cardiac arrest occurs. Thank you so much for visiting us Syed and Nageen, and for helping us to raise awareness about Brugada syndrome. Read Syed's story: https://lnkd.in/gatGJxdF #MedicalResearch #HeartDisease #CardiacArrest #BrugadaSyndrome #HeartWarrior

The new US dietary guidelines are out – and they are sparking global debate. But are they in line with the science on heart health? The Institute’s Professor Jason Kovacic shares his expert perspective in The Australian: https://lnkd.in/gNNrA6au #HeartDisease #HeartHealth #diet #HealthyEating

Did you know loneliness can take a toll on your physical health, including affecting how your heart functions? Learn about the relationship between social isolation and heart health, and how to build social connections for your heart and wellbeing: https://lnkd.in/g4QJcrf3 #HeartDisease #HeartHealth #MentalHealth #SocialIsolation #Loneliness